Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature
Abstract Background Primary care data gathered from Electronic Health Records are of the utmost interest considering the essential role of general practitioners (GPs) as coordinators of patient care. These data represent the synthesis of the patient history and also give a comprehensive picture of t...
| Main Authors: | , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2017-09-01
|
| Series: | BMC Medical Informatics and Decision Making |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12911-017-0538-x |
| _version_ | 1818499864646909952 |
|---|---|
| author | Marie-Line Gentil Marc Cuggia Laure Fiquet Camille Hagenbourger Thomas Le Berre Agnès Banâtre Eric Renault Guillaume Bouzille Anthony Chapron |
| author_facet | Marie-Line Gentil Marc Cuggia Laure Fiquet Camille Hagenbourger Thomas Le Berre Agnès Banâtre Eric Renault Guillaume Bouzille Anthony Chapron |
| author_sort | Marie-Line Gentil |
| collection | DOAJ |
| description | Abstract Background Primary care data gathered from Electronic Health Records are of the utmost interest considering the essential role of general practitioners (GPs) as coordinators of patient care. These data represent the synthesis of the patient history and also give a comprehensive picture of the population health status. Nevertheless, discrepancies between countries exist concerning routine data collection projects. Therefore, we wanted to identify elements that influence the development and durability of such projects. Methods A systematic review was conducted using the PubMed database to identify worldwide current primary care data collection projects. The gray literature was also searched via official project websites and their contact person was emailed to obtain information on the project managers. Data were retrieved from the included studies using a standardized form, screening four aspects: projects features, technological infrastructure, GPs’ roles, data collection network organization. Results The literature search allowed identifying 36 routine data collection networks, mostly in English-speaking countries: CPRD and THIN in the United Kingdom, the Veterans Health Administration project in the United States, EMRALD and CPCSSN in Canada. These projects had in common the use of technical facilities that range from extraction tools to comprehensive computing platforms. Moreover, GPs initiated the extraction process and benefited from incentives for their participation. Finally, analysis of the literature data highlighted that governmental services, academic institutions, including departments of general practice, and software companies, are pivotal for the promotion and durability of primary care data collection projects. Conclusion Solid technical facilities and strong academic and governmental support are required for promoting and supporting long-term and wide-range primary care data collection projects. |
| first_indexed | 2024-12-10T20:35:25Z |
| format | Article |
| id | doaj.art-69fa3ad0dedb443ea733019f04410d44 |
| institution | Directory Open Access Journal |
| issn | 1472-6947 |
| language | English |
| last_indexed | 2024-12-10T20:35:25Z |
| publishDate | 2017-09-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Medical Informatics and Decision Making |
| spelling | doaj.art-69fa3ad0dedb443ea733019f04410d442022-12-22T01:34:33ZengBMCBMC Medical Informatics and Decision Making1472-69472017-09-0117112110.1186/s12911-017-0538-xFactors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literatureMarie-Line Gentil0Marc Cuggia1Laure Fiquet2Camille Hagenbourger3Thomas Le Berre4Agnès Banâtre5Eric Renault6Guillaume Bouzille7Anthony Chapron8Department of General Practice, University of Rennes 1INSERM, U1099Department of General Practice, University of Rennes 1Department of General Practice, University of Rennes 1Department of General Practice, University of Rennes 1Department of General Practice, University of Rennes 1University of Rennes 1, LTSI (Laboratory for signal and image processing)INSERM, U1099Department of General Practice, University of Rennes 1Abstract Background Primary care data gathered from Electronic Health Records are of the utmost interest considering the essential role of general practitioners (GPs) as coordinators of patient care. These data represent the synthesis of the patient history and also give a comprehensive picture of the population health status. Nevertheless, discrepancies between countries exist concerning routine data collection projects. Therefore, we wanted to identify elements that influence the development and durability of such projects. Methods A systematic review was conducted using the PubMed database to identify worldwide current primary care data collection projects. The gray literature was also searched via official project websites and their contact person was emailed to obtain information on the project managers. Data were retrieved from the included studies using a standardized form, screening four aspects: projects features, technological infrastructure, GPs’ roles, data collection network organization. Results The literature search allowed identifying 36 routine data collection networks, mostly in English-speaking countries: CPRD and THIN in the United Kingdom, the Veterans Health Administration project in the United States, EMRALD and CPCSSN in Canada. These projects had in common the use of technical facilities that range from extraction tools to comprehensive computing platforms. Moreover, GPs initiated the extraction process and benefited from incentives for their participation. Finally, analysis of the literature data highlighted that governmental services, academic institutions, including departments of general practice, and software companies, are pivotal for the promotion and durability of primary care data collection projects. Conclusion Solid technical facilities and strong academic and governmental support are required for promoting and supporting long-term and wide-range primary care data collection projects.http://link.springer.com/article/10.1186/s12911-017-0538-xPrimary careData miningData collectionSecondary useElectronic health recordsGovernance |
| spellingShingle | Marie-Line Gentil Marc Cuggia Laure Fiquet Camille Hagenbourger Thomas Le Berre Agnès Banâtre Eric Renault Guillaume Bouzille Anthony Chapron Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature BMC Medical Informatics and Decision Making Primary care Data mining Data collection Secondary use Electronic health records Governance |
| title | Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature |
| title_full | Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature |
| title_fullStr | Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature |
| title_full_unstemmed | Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature |
| title_short | Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature |
| title_sort | factors influencing the development of primary care data collection projects from electronic health records a systematic review of the literature |
| topic | Primary care Data mining Data collection Secondary use Electronic health records Governance |
| url | http://link.springer.com/article/10.1186/s12911-017-0538-x |
| work_keys_str_mv | AT marielinegentil factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT marccuggia factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT laurefiquet factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT camillehagenbourger factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT thomasleberre factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT agnesbanatre factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT ericrenault factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT guillaumebouzille factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature AT anthonychapron factorsinfluencingthedevelopmentofprimarycaredatacollectionprojectsfromelectronichealthrecordsasystematicreviewoftheliterature |