Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs
BackgroundAdolescents are using mobile health apps as a form of self-management to collect data on symptoms, medication adherence, and activity. Adding functionality to an electronic health record (EHR) to accommodate disease-specific patient-generated health data (PGHD) may support clinical care. H...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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JMIR Publications
2021-01-01
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| Series: | JMIR Pediatrics and Parenting |
| Online Access: | http://pediatrics.jmir.org/2021/1/e25413/ |
| _version_ | 1819241958589071360 |
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| author | Tiase, Victoria L Sward, Katherine A Del Fiol, Guilherme Staes, Catherine Weir, Charlene Cummins, Mollie R |
| author_facet | Tiase, Victoria L Sward, Katherine A Del Fiol, Guilherme Staes, Catherine Weir, Charlene Cummins, Mollie R |
| author_sort | Tiase, Victoria L |
| collection | DOAJ |
| description | BackgroundAdolescents are using mobile health apps as a form of self-management to collect data on symptoms, medication adherence, and activity. Adding functionality to an electronic health record (EHR) to accommodate disease-specific patient-generated health data (PGHD) may support clinical care. However, little is known on how to incorporate PGHD in a way that informs care for patients. Pediatric asthma, a prevalent health issue in the United States with 6 million children diagnosed, serves as an exemplar condition to examine information needs related to PGHD.
ObjectiveIn this study we aimed to identify and prioritize asthma care tasks and decisions based on pediatric asthma guidelines and identify types of PGHD that might support the activities associated with the decisions. The purpose of this work is to provide guidance to mobile health app developers and EHR integration.
MethodsWe searched the literature for exemplar asthma mobile apps and examined the types of PGHD collected. We identified the information needs associated with each decision in accordance with consensus-based guidelines, assessed the suitability of PGHD to meet those needs, and validated our findings with expert asthma providers.
ResultsWe mapped guideline-derived information needs to potential PGHD types and found PGHD that may be useful in meeting information needs. Information needs included types of symptoms, symptom triggers, medication adherence, and inhaler technique. Examples of suitable types of PGHD were Asthma Control Test calculations, exposures, and inhaler use. Providers suggested uncontrolled asthma as a place to focus PGHD efforts, indicating that they preferred to review PGHD at the time of the visit.
ConclusionsWe identified a manageable list of information requirements derived from clinical guidelines that can be used to guide the design and integration of PGHD into EHRs to support pediatric asthma management and advance mobile health app development. Mobile health app developers should examine PGHD information needs to inform EHR integration efforts. |
| first_indexed | 2024-12-23T14:32:11Z |
| format | Article |
| id | doaj.art-6a1fc500aa7649659feb58a57fd66164 |
| institution | Directory Open Access Journal |
| issn | 2561-6722 |
| language | English |
| last_indexed | 2024-12-23T14:32:11Z |
| publishDate | 2021-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Pediatrics and Parenting |
| spelling | doaj.art-6a1fc500aa7649659feb58a57fd661642022-12-21T17:43:27ZengJMIR PublicationsJMIR Pediatrics and Parenting2561-67222021-01-0141e2541310.2196/25413Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information NeedsTiase, Victoria LSward, Katherine ADel Fiol, GuilhermeStaes, CatherineWeir, CharleneCummins, Mollie RBackgroundAdolescents are using mobile health apps as a form of self-management to collect data on symptoms, medication adherence, and activity. Adding functionality to an electronic health record (EHR) to accommodate disease-specific patient-generated health data (PGHD) may support clinical care. However, little is known on how to incorporate PGHD in a way that informs care for patients. Pediatric asthma, a prevalent health issue in the United States with 6 million children diagnosed, serves as an exemplar condition to examine information needs related to PGHD. ObjectiveIn this study we aimed to identify and prioritize asthma care tasks and decisions based on pediatric asthma guidelines and identify types of PGHD that might support the activities associated with the decisions. The purpose of this work is to provide guidance to mobile health app developers and EHR integration. MethodsWe searched the literature for exemplar asthma mobile apps and examined the types of PGHD collected. We identified the information needs associated with each decision in accordance with consensus-based guidelines, assessed the suitability of PGHD to meet those needs, and validated our findings with expert asthma providers. ResultsWe mapped guideline-derived information needs to potential PGHD types and found PGHD that may be useful in meeting information needs. Information needs included types of symptoms, symptom triggers, medication adherence, and inhaler technique. Examples of suitable types of PGHD were Asthma Control Test calculations, exposures, and inhaler use. Providers suggested uncontrolled asthma as a place to focus PGHD efforts, indicating that they preferred to review PGHD at the time of the visit. ConclusionsWe identified a manageable list of information requirements derived from clinical guidelines that can be used to guide the design and integration of PGHD into EHRs to support pediatric asthma management and advance mobile health app development. Mobile health app developers should examine PGHD information needs to inform EHR integration efforts.http://pediatrics.jmir.org/2021/1/e25413/ |
| spellingShingle | Tiase, Victoria L Sward, Katherine A Del Fiol, Guilherme Staes, Catherine Weir, Charlene Cummins, Mollie R Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs JMIR Pediatrics and Parenting |
| title | Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs |
| title_full | Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs |
| title_fullStr | Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs |
| title_full_unstemmed | Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs |
| title_short | Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs |
| title_sort | patient generated health data in pediatric asthma exploratory study of providers information needs |
| url | http://pediatrics.jmir.org/2021/1/e25413/ |
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