Understanding stigma of dementia during COVID-19: a scoping review
IntroductionStigma of dementia is one of the greatest challenges for people living with dementia. However, there is little research on the different types of stigma of dementia in the COVID-19 pandemic. The purpose of this scoping review is to synthesize the existing literature on dementia-related s...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2024-03-01
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| Series: | Frontiers in Psychiatry |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fpsyt.2024.1261113/full |
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| author | Juanita-Dawne R. Bacsu Raymond J. Spiteri Kate Nanson Zahra Rahemi Claire Webster Myrna Norman Chantelle Stone |
| author_facet | Juanita-Dawne R. Bacsu Raymond J. Spiteri Kate Nanson Zahra Rahemi Claire Webster Myrna Norman Chantelle Stone |
| author_sort | Juanita-Dawne R. Bacsu |
| collection | DOAJ |
| description | IntroductionStigma of dementia is one of the greatest challenges for people living with dementia. However, there is little research on the different types of stigma of dementia in the COVID-19 pandemic. The purpose of this scoping review is to synthesize the existing literature on dementia-related stigma (self, public, and structural stigma), during the pandemic.MethodsGuided by Arksey and O’Malley’s scoping review framework and PRISMA guidelines, CINAHL, EMBASE, Google Scholar, Medline, PsycINFO, and Web of Science were searched for English language literature from January 2020 to June 2023. Inclusion criteria consisted of peer-reviewed, original research articles addressing stigma of dementia during the COVID-19 pandemic. Thematic analysis was used to analyze the data and steps were taken to ensure rigor.ResultsFifteen articles met our inclusion criteria. Four primary themes were identified including: 1) COVID-19 stereotypes and assumptions of dementia; 2) human rights issues and deprived dignity; 3) disparate access to health services and supports; and 4) cultural inequities and distrust.DiscussionThe COVID-19 pandemic has contributed to the stigmatization of people living with dementia. Further research is needed to develop, implement, and evaluate interventions targeted towards the different types of dementia-related stigma (including self, public, and structural stigma). Moreover, our findings highlight the need for more collaborative research that prioritizes the lived experience and input of diverse people living with dementia. Research partnerships with diverse people living with dementia are vital to improving future pandemic planning. Only through evidence-informed research and lived experience can we begin to fully address the different types of dementia-related stigma and enhance the quality of life of people living with dementia. |
| first_indexed | 2024-04-24T18:46:19Z |
| format | Article |
| id | doaj.art-6b9b6cce3aa54ccebc8c77e31820b352 |
| institution | Directory Open Access Journal |
| issn | 1664-0640 |
| language | English |
| last_indexed | 2024-04-24T18:46:19Z |
| publishDate | 2024-03-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Psychiatry |
| spelling | doaj.art-6b9b6cce3aa54ccebc8c77e31820b3522024-03-27T05:12:51ZengFrontiers Media S.A.Frontiers in Psychiatry1664-06402024-03-011510.3389/fpsyt.2024.12611131261113Understanding stigma of dementia during COVID-19: a scoping reviewJuanita-Dawne R. Bacsu0Raymond J. Spiteri1Kate Nanson2Zahra Rahemi3Claire Webster4Myrna Norman5Chantelle Stone6School of Nursing, Thompson Rivers University, Kamloops, BC, CanadaDepartment of Computer Science, University of Saskatchewan, Saskatoon, SK, CanadaSchool of Nursing, Thompson Rivers University, Kamloops, BC, CanadaSchool of Nursing, Clemson University, Clemson, SC, United StatesCaregiver Crosswalk Inc, Montreal, QC, CanadaEngagement of People with Lived Experience of Dementia (EPLED), Maple Ridge, BC, CanadaDepartment of Psychology, Thompson Rivers University, Kamloops, BC, CanadaIntroductionStigma of dementia is one of the greatest challenges for people living with dementia. However, there is little research on the different types of stigma of dementia in the COVID-19 pandemic. The purpose of this scoping review is to synthesize the existing literature on dementia-related stigma (self, public, and structural stigma), during the pandemic.MethodsGuided by Arksey and O’Malley’s scoping review framework and PRISMA guidelines, CINAHL, EMBASE, Google Scholar, Medline, PsycINFO, and Web of Science were searched for English language literature from January 2020 to June 2023. Inclusion criteria consisted of peer-reviewed, original research articles addressing stigma of dementia during the COVID-19 pandemic. Thematic analysis was used to analyze the data and steps were taken to ensure rigor.ResultsFifteen articles met our inclusion criteria. Four primary themes were identified including: 1) COVID-19 stereotypes and assumptions of dementia; 2) human rights issues and deprived dignity; 3) disparate access to health services and supports; and 4) cultural inequities and distrust.DiscussionThe COVID-19 pandemic has contributed to the stigmatization of people living with dementia. Further research is needed to develop, implement, and evaluate interventions targeted towards the different types of dementia-related stigma (including self, public, and structural stigma). Moreover, our findings highlight the need for more collaborative research that prioritizes the lived experience and input of diverse people living with dementia. Research partnerships with diverse people living with dementia are vital to improving future pandemic planning. Only through evidence-informed research and lived experience can we begin to fully address the different types of dementia-related stigma and enhance the quality of life of people living with dementia.https://www.frontiersin.org/articles/10.3389/fpsyt.2024.1261113/fullCOVID-19dementiastigmastereotypesprejudicenegative attitudes |
| spellingShingle | Juanita-Dawne R. Bacsu Raymond J. Spiteri Kate Nanson Zahra Rahemi Claire Webster Myrna Norman Chantelle Stone Understanding stigma of dementia during COVID-19: a scoping review Frontiers in Psychiatry COVID-19 dementia stigma stereotypes prejudice negative attitudes |
| title | Understanding stigma of dementia during COVID-19: a scoping review |
| title_full | Understanding stigma of dementia during COVID-19: a scoping review |
| title_fullStr | Understanding stigma of dementia during COVID-19: a scoping review |
| title_full_unstemmed | Understanding stigma of dementia during COVID-19: a scoping review |
| title_short | Understanding stigma of dementia during COVID-19: a scoping review |
| title_sort | understanding stigma of dementia during covid 19 a scoping review |
| topic | COVID-19 dementia stigma stereotypes prejudice negative attitudes |
| url | https://www.frontiersin.org/articles/10.3389/fpsyt.2024.1261113/full |
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