Studying Genetic Risk in the Conduct of Everyday Life

<span style="font-family: 'Times New Roman'; font-size: 12pt; mso-ansi-language: EN-GB; mso-fareast-font-family: 'Times New Roman'; mso-fareast-language: DA; mso-bidi-language: AR-SA;">This article is a revised version of a talk given in lieu of the Ph.D. disserta...

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Main Author: Lotte Huniche
Format: Article
Language:English
Published: The Outlines Association 2003-03-01
Series:Outlines
Subjects:
Online Access:http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2161
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author Lotte Huniche
author_facet Lotte Huniche
author_sort Lotte Huniche
collection DOAJ
description <span style="font-family: 'Times New Roman'; font-size: 12pt; mso-ansi-language: EN-GB; mso-fareast-font-family: 'Times New Roman'; mso-fareast-language: DA; mso-bidi-language: AR-SA;">This article is a revised version of a talk given in lieu of the Ph.D. dissertation: "Huntington´s Disease in Everyday Life. Knowledge, Ignorance and Genetic Risk". The dissertation evolves around the analysis of modern living with risk for a late onset genetic disorder. Here, three aspects of everyday lives faced with Huntington´s Disease (HD) are discussed. First, HD is one aspect of everyday living along with a variety of other aspects. The importance of risk is analysed as personal and changing in changing circumstances. Second, genetic knowledge and technology are not solid universals, but situated and changing, and of varying importance in lives at risk. Last, the ethical rationalities of everyday living, research and clinical practice concerned with a hereditary condition are discussed as complex and contradictory in and across structures of social practice.</span>
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spelling doaj.art-6c510e2073b84de0bbdc8404b747060f2023-01-02T03:34:24ZengThe Outlines AssociationOutlines1399-55101904-02102003-03-015147541962Studying Genetic Risk in the Conduct of Everyday LifeLotte Huniche<span style="font-family: 'Times New Roman'; font-size: 12pt; mso-ansi-language: EN-GB; mso-fareast-font-family: 'Times New Roman'; mso-fareast-language: DA; mso-bidi-language: AR-SA;">This article is a revised version of a talk given in lieu of the Ph.D. dissertation: "Huntington´s Disease in Everyday Life. Knowledge, Ignorance and Genetic Risk". The dissertation evolves around the analysis of modern living with risk for a late onset genetic disorder. Here, three aspects of everyday lives faced with Huntington´s Disease (HD) are discussed. First, HD is one aspect of everyday living along with a variety of other aspects. The importance of risk is analysed as personal and changing in changing circumstances. Second, genetic knowledge and technology are not solid universals, but situated and changing, and of varying importance in lives at risk. Last, the ethical rationalities of everyday living, research and clinical practice concerned with a hereditary condition are discussed as complex and contradictory in and across structures of social practice.</span>http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2161geneshuntington's disease
spellingShingle Lotte Huniche
Studying Genetic Risk in the Conduct of Everyday Life
Outlines
genes
huntington's disease
title Studying Genetic Risk in the Conduct of Everyday Life
title_full Studying Genetic Risk in the Conduct of Everyday Life
title_fullStr Studying Genetic Risk in the Conduct of Everyday Life
title_full_unstemmed Studying Genetic Risk in the Conduct of Everyday Life
title_short Studying Genetic Risk in the Conduct of Everyday Life
title_sort studying genetic risk in the conduct of everyday life
topic genes
huntington's disease
url http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2161
work_keys_str_mv AT lottehuniche studyinggeneticriskintheconductofeverydaylife