Studying Genetic Risk in the Conduct of Everyday Life
<span style="font-family: 'Times New Roman'; font-size: 12pt; mso-ansi-language: EN-GB; mso-fareast-font-family: 'Times New Roman'; mso-fareast-language: DA; mso-bidi-language: AR-SA;">This article is a revised version of a talk given in lieu of the Ph.D. disserta...
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Format: | Article |
Language: | English |
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The Outlines Association
2003-03-01
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Series: | Outlines |
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Online Access: | http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2161 |
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author | Lotte Huniche |
author_facet | Lotte Huniche |
author_sort | Lotte Huniche |
collection | DOAJ |
description | <span style="font-family: 'Times New Roman'; font-size: 12pt; mso-ansi-language: EN-GB; mso-fareast-font-family: 'Times New Roman'; mso-fareast-language: DA; mso-bidi-language: AR-SA;">This article is a revised version of a talk given in lieu of the Ph.D. dissertation: "Huntington´s Disease in Everyday Life. Knowledge, Ignorance and Genetic Risk". The dissertation evolves around the analysis of modern living with risk for a late onset genetic disorder. Here, three aspects of everyday lives faced with Huntington´s Disease (HD) are discussed. First, HD is one aspect of everyday living along with a variety of other aspects. The importance of risk is analysed as personal and changing in changing circumstances. Second, genetic knowledge and technology are not solid universals, but situated and changing, and of varying importance in lives at risk. Last, the ethical rationalities of everyday living, research and clinical practice concerned with a hereditary condition are discussed as complex and contradictory in and across structures of social practice.</span> |
first_indexed | 2024-04-11T03:42:08Z |
format | Article |
id | doaj.art-6c510e2073b84de0bbdc8404b747060f |
institution | Directory Open Access Journal |
issn | 1399-5510 1904-0210 |
language | English |
last_indexed | 2024-04-11T03:42:08Z |
publishDate | 2003-03-01 |
publisher | The Outlines Association |
record_format | Article |
series | Outlines |
spelling | doaj.art-6c510e2073b84de0bbdc8404b747060f2023-01-02T03:34:24ZengThe Outlines AssociationOutlines1399-55101904-02102003-03-015147541962Studying Genetic Risk in the Conduct of Everyday LifeLotte Huniche<span style="font-family: 'Times New Roman'; font-size: 12pt; mso-ansi-language: EN-GB; mso-fareast-font-family: 'Times New Roman'; mso-fareast-language: DA; mso-bidi-language: AR-SA;">This article is a revised version of a talk given in lieu of the Ph.D. dissertation: "Huntington´s Disease in Everyday Life. Knowledge, Ignorance and Genetic Risk". The dissertation evolves around the analysis of modern living with risk for a late onset genetic disorder. Here, three aspects of everyday lives faced with Huntington´s Disease (HD) are discussed. First, HD is one aspect of everyday living along with a variety of other aspects. The importance of risk is analysed as personal and changing in changing circumstances. Second, genetic knowledge and technology are not solid universals, but situated and changing, and of varying importance in lives at risk. Last, the ethical rationalities of everyday living, research and clinical practice concerned with a hereditary condition are discussed as complex and contradictory in and across structures of social practice.</span>http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2161geneshuntington's disease |
spellingShingle | Lotte Huniche Studying Genetic Risk in the Conduct of Everyday Life Outlines genes huntington's disease |
title | Studying Genetic Risk in the Conduct of Everyday Life |
title_full | Studying Genetic Risk in the Conduct of Everyday Life |
title_fullStr | Studying Genetic Risk in the Conduct of Everyday Life |
title_full_unstemmed | Studying Genetic Risk in the Conduct of Everyday Life |
title_short | Studying Genetic Risk in the Conduct of Everyday Life |
title_sort | studying genetic risk in the conduct of everyday life |
topic | genes huntington's disease |
url | http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2161 |
work_keys_str_mv | AT lottehuniche studyinggeneticriskintheconductofeverydaylife |