Aspectos éticos y legales del asesoramiento genético

The genetic data have some features that makes necessary to protect it more than other individual data. There is a wide legal framework related to human genetic data that takes in account this ?excepcionalism?. Along the genetic counseling process, the bioethics principles must be bear in mind and t...

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Main Author: Joan Brunet i Vidal
Format: Article
Language:Spanish
Published: Universidad Complutense de Madrid 2005-01-01
Series:Psicooncologia
Subjects:
Online Access:http://revistas.ucm.es/index.php/PSIC/article/view/16857
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author Joan Brunet i Vidal
author_facet Joan Brunet i Vidal
author_sort Joan Brunet i Vidal
collection DOAJ
description The genetic data have some features that makes necessary to protect it more than other individual data. There is a wide legal framework related to human genetic data that takes in account this ?excepcionalism?. Along the genetic counseling process, the bioethics principles must be bear in mind and the individual autonomy with an adequate informed consent should be the priority. In some cases, a collision between these principles could appear. The ethical and legal analysis of such situations may help to prevent, identify and resolve them.In the present revision article the reasons for an special protection oh human genetic data will be analyzed, the national and international legal framework will be reviewed, the bioethics principles and its applications to the genetic counseling process will be described, and finally some clinical situations where collisions between principles could appeared will be discussed.
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spelling doaj.art-6c90dab0206147e8b05d1bd12ef944892022-12-21T21:43:51ZspaUniversidad Complutense de MadridPsicooncologia1696-72401988-82872005-01-012224326016872Aspectos éticos y legales del asesoramiento genéticoJoan Brunet i VidalThe genetic data have some features that makes necessary to protect it more than other individual data. There is a wide legal framework related to human genetic data that takes in account this ?excepcionalism?. Along the genetic counseling process, the bioethics principles must be bear in mind and the individual autonomy with an adequate informed consent should be the priority. In some cases, a collision between these principles could appear. The ethical and legal analysis of such situations may help to prevent, identify and resolve them.In the present revision article the reasons for an special protection oh human genetic data will be analyzed, the national and international legal framework will be reviewed, the bioethics principles and its applications to the genetic counseling process will be described, and finally some clinical situations where collisions between principles could appeared will be discussed.http://revistas.ucm.es/index.php/PSIC/article/view/16857Genetic dataBioethics principlesInformed consent
spellingShingle Joan Brunet i Vidal
Aspectos éticos y legales del asesoramiento genético
Psicooncologia
Genetic data
Bioethics principles
Informed consent
title Aspectos éticos y legales del asesoramiento genético
title_full Aspectos éticos y legales del asesoramiento genético
title_fullStr Aspectos éticos y legales del asesoramiento genético
title_full_unstemmed Aspectos éticos y legales del asesoramiento genético
title_short Aspectos éticos y legales del asesoramiento genético
title_sort aspectos eticos y legales del asesoramiento genetico
topic Genetic data
Bioethics principles
Informed consent
url http://revistas.ucm.es/index.php/PSIC/article/view/16857
work_keys_str_mv AT joanbrunetividal aspectoseticosylegalesdelasesoramientogenetico