Development of models of care coordination for rare conditions: a qualitative study

Development of models of care coordination for rare conditions: a qualitative study

Abstract Introduction Improving care coordination for people with rare conditions may help to reduce burden on patients and carers and improve the care that patients receive. We recently developed a taxonomy of different ways of coordinating care for rare conditions. It is not yet known which models...

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Bibliographic Details
Main Authors: Holly Walton, Amy Simpson, Angus I. G. Ramsay, Amy Hunter, Jennifer Jones, Pei Li Ng, Kerry Leeson-Beevers, Lara Bloom, Joe Kai, Maria Kokocinska, Alastair G. Sutcliffe, Stephen Morris, Naomi J. Fulop
Format: Article
Language:English
Published: BMC 2022-02-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Care coordination
Rare conditions
Rare diseases
Qualitative
Health care organisation
Online Access:https://doi.org/10.1186/s13023-022-02190-3

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