The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data Registry
Abstract Background Physiotherapy-related data, such as airway clearance techniques (ACTS), physical activity and aerobic fitness are not consistently included in international cystic fibrosis (CF) data registries. This study aimed to pilot the collection of ACTS, physical activity and fitness in a...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2022-09-01
|
| Series: | BMC Pulmonary Medicine |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12890-022-02141-5 |
| _version_ | 1811211722776641536 |
|---|---|
| author | Angela Potter Ben Singh Emily Scutter Carol Maher |
| author_facet | Angela Potter Ben Singh Emily Scutter Carol Maher |
| author_sort | Angela Potter |
| collection | DOAJ |
| description | Abstract Background Physiotherapy-related data, such as airway clearance techniques (ACTS), physical activity and aerobic fitness are not consistently included in international cystic fibrosis (CF) data registries. This study aimed to pilot the collection of ACTS, physical activity and fitness in a hospital CF clinic, as a step towards informing future national implementation. Methods This study was undertaken in a CF clinic within a major tertiary hospital. Patients and families were invited to participate. Participants completed self-report questionnaires on ACT use and those aged ≥ 10 years completed a physical activity questionnaire (Core Indicators and Measures of Youth Health Survey) and aerobic fitness test (the A-STEP test). Participants also completed a survey to explore the tolerance and acceptability of the fitness test, and the perceived accuracy of the self-reported data collection. Results Forty patients agreed to participate in the study (mean age = 9.8, SD = 4.1 years old; 52.5% female). All patients and/or families that were approached agreed to participate and completion rate for the ACTs and physical activity surveys was 98% and 100% (respectively). Completion rate for the fitness test was 55%, due to time constraints. Most participants agreed (≥ 90%) they could accurately provide ACT and physical activity data, and the assessments were tolerable and acceptable. Conclusions Patients with CF and their families are able to and can acceptably provide physiotherapy-related data, and collecting self-report ACTs and physical activity data is highly feasibly during routine CF clinic visits. However, aerobic fitness testing using the A-STEP test may be less feasible in clinic environments, due to time constraints. |
| first_indexed | 2024-04-12T05:18:09Z |
| format | Article |
| id | doaj.art-6d90675f23c8431fb35d5b748814b5d5 |
| institution | Directory Open Access Journal |
| issn | 1471-2466 |
| language | English |
| last_indexed | 2024-04-12T05:18:09Z |
| publishDate | 2022-09-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Pulmonary Medicine |
| spelling | doaj.art-6d90675f23c8431fb35d5b748814b5d52022-12-22T03:46:35ZengBMCBMC Pulmonary Medicine1471-24662022-09-012211910.1186/s12890-022-02141-5The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data RegistryAngela Potter0Ben Singh1Emily Scutter2Carol Maher3Physiotherapy Department, Women’s and Children’s Hospital, SA HealthAllied Health and Human Performance, University of South AustraliaAllied Health and Human Performance, University of South AustraliaAllied Health and Human Performance, University of South AustraliaAbstract Background Physiotherapy-related data, such as airway clearance techniques (ACTS), physical activity and aerobic fitness are not consistently included in international cystic fibrosis (CF) data registries. This study aimed to pilot the collection of ACTS, physical activity and fitness in a hospital CF clinic, as a step towards informing future national implementation. Methods This study was undertaken in a CF clinic within a major tertiary hospital. Patients and families were invited to participate. Participants completed self-report questionnaires on ACT use and those aged ≥ 10 years completed a physical activity questionnaire (Core Indicators and Measures of Youth Health Survey) and aerobic fitness test (the A-STEP test). Participants also completed a survey to explore the tolerance and acceptability of the fitness test, and the perceived accuracy of the self-reported data collection. Results Forty patients agreed to participate in the study (mean age = 9.8, SD = 4.1 years old; 52.5% female). All patients and/or families that were approached agreed to participate and completion rate for the ACTs and physical activity surveys was 98% and 100% (respectively). Completion rate for the fitness test was 55%, due to time constraints. Most participants agreed (≥ 90%) they could accurately provide ACT and physical activity data, and the assessments were tolerable and acceptable. Conclusions Patients with CF and their families are able to and can acceptably provide physiotherapy-related data, and collecting self-report ACTs and physical activity data is highly feasibly during routine CF clinic visits. However, aerobic fitness testing using the A-STEP test may be less feasible in clinic environments, due to time constraints.https://doi.org/10.1186/s12890-022-02141-5PhysiotherapyAirway clearancePhysical activityFitnessHealth service improvement |
| spellingShingle | Angela Potter Ben Singh Emily Scutter Carol Maher The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data Registry BMC Pulmonary Medicine Physiotherapy Airway clearance Physical activity Fitness Health service improvement |
| title | The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data Registry |
| title_full | The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data Registry |
| title_fullStr | The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data Registry |
| title_full_unstemmed | The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data Registry |
| title_short | The feasibility of collecting the physiotherapy outcomes airway clearance, physical activity and fitness for the Australian Cystic Fibrosis Data Registry |
| title_sort | feasibility of collecting the physiotherapy outcomes airway clearance physical activity and fitness for the australian cystic fibrosis data registry |
| topic | Physiotherapy Airway clearance Physical activity Fitness Health service improvement |
| url | https://doi.org/10.1186/s12890-022-02141-5 |
| work_keys_str_mv | AT angelapotter thefeasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry AT bensingh thefeasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry AT emilyscutter thefeasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry AT carolmaher thefeasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry AT angelapotter feasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry AT bensingh feasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry AT emilyscutter feasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry AT carolmaher feasibilityofcollectingthephysiotherapyoutcomesairwayclearancephysicalactivityandfitnessfortheaustraliancysticfibrosisdataregistry |