Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed Study

Canada deployed a digital exposure notification app (COVID Alert) as a strategy to support manual contact tracing. Our aims are to (1) assess the use, knowledge, and concerns of the COVID Alert app, (2) identify predictors of app downloads, and (3) develop strategies to promote social acceptability....

Full description

Bibliographic Details
Main Authors: Esli Osmanlliu, Jesseca Paquette, Maria Alejandra Rodriguez Duarte, Sylvain Bédard, Nathalie de Marcellis-Warin, Majlinda Zhegu, Catherine Régis, Marie-Eve Bouthillier, Annie-Danielle Grenier, Paul Lewis, Marie-Pascale Pomey
Format: Article
Language:English
Published: MDPI AG 2022-04-01
Series:Journal of Personalized Medicine
Subjects:
Online Access:https://www.mdpi.com/2075-4426/12/5/729
_version_ 1797498671811526656
author Esli Osmanlliu
Jesseca Paquette
Maria Alejandra Rodriguez Duarte
Sylvain Bédard
Nathalie de Marcellis-Warin
Majlinda Zhegu
Catherine Régis
Marie-Eve Bouthillier
Annie-Danielle Grenier
Paul Lewis
Marie-Pascale Pomey
author_facet Esli Osmanlliu
Jesseca Paquette
Maria Alejandra Rodriguez Duarte
Sylvain Bédard
Nathalie de Marcellis-Warin
Majlinda Zhegu
Catherine Régis
Marie-Eve Bouthillier
Annie-Danielle Grenier
Paul Lewis
Marie-Pascale Pomey
author_sort Esli Osmanlliu
collection DOAJ
description Canada deployed a digital exposure notification app (COVID Alert) as a strategy to support manual contact tracing. Our aims are to (1) assess the use, knowledge, and concerns of the COVID Alert app, (2) identify predictors of app downloads, and (3) develop strategies to promote social acceptability. A 36-item questionnaire was co-designed by 12 citizens and patients partnered with 16 academic researchers and was distributed in the province of Québec, Canada, from May 27 to 28 June 2021. Of 959 respondents, 43% had downloaded the app. Messaging from government sources constituted the largest influence on app download. Infrequent social contacts and perceived app inefficacy were the main reasons not to download the app. Cybersecurity, data confidentiality, loss of privacy, and geolocation were the most frequent concerns. Nearly half of the respondents inaccurately believed that the app used geolocation. Most respondents supported citizen involvement in app development. The identified predictors for app uptake included nine characteristics. In conclusion, this project highlights four key themes on how to promote the social acceptability of such tools: (1) improved communication and explanation of key app characteristics, (2) design features that incentivize adoption, (3) inclusive socio-technical features, and (4) upstream public partnership in development and deployment.
first_indexed 2024-03-10T03:36:42Z
format Article
id doaj.art-6e4a6e4a2ad744cba11cba3ec96f9a7e
institution Directory Open Access Journal
issn 2075-4426
language English
last_indexed 2024-03-10T03:36:42Z
publishDate 2022-04-01
publisher MDPI AG
record_format Article
series Journal of Personalized Medicine
spelling doaj.art-6e4a6e4a2ad744cba11cba3ec96f9a7e2023-11-23T11:43:48ZengMDPI AGJournal of Personalized Medicine2075-44262022-04-0112572910.3390/jpm12050729Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed StudyEsli Osmanlliu0Jesseca Paquette1Maria Alejandra Rodriguez Duarte2Sylvain Bédard3Nathalie de Marcellis-Warin4Majlinda Zhegu5Catherine Régis6Marie-Eve Bouthillier7Annie-Danielle Grenier8Paul Lewis9Marie-Pascale Pomey10Research Institute of the McGill University Health Centre, Montreal, QC H4A 3J1, CanadaResearch Centre of the University of Montréal Hospital Centre, Montreal, QC H2X 0A9, CanadaResearch Centre of the University of Montréal Hospital Centre, Montreal, QC H2X 0A9, CanadaCentre of Excellence for Partnership with Patients and the Public (CEPPP), Montreal, QC H2X 0A9, CanadaDepartment of Mathematics and Industrial Engineering, Polytechnique Montreal, Montreal, QC H3C 3A7, CanadaDepartment of Management, University of Québec in Montréal, Montreal, QC H2X 1L7, CanadaLaw Faculty, University of Montreal, Montreal, QC H3T 1J7, CanadaOffice of Clinical Ethics, Faculty of Medicine, University of Montreal, Montreal, QC H3C 3J7, CanadaDIGICIT Advisory Committee, Research Centre of the University of Montréal Hospital Centre, Montreal, QC H2X 0A9, CanadaDIGICIT Advisory Committee, Research Centre of the University of Montréal Hospital Centre, Montreal, QC H2X 0A9, CanadaResearch Centre of the University of Montréal Hospital Centre, Montreal, QC H2X 0A9, CanadaCanada deployed a digital exposure notification app (COVID Alert) as a strategy to support manual contact tracing. Our aims are to (1) assess the use, knowledge, and concerns of the COVID Alert app, (2) identify predictors of app downloads, and (3) develop strategies to promote social acceptability. A 36-item questionnaire was co-designed by 12 citizens and patients partnered with 16 academic researchers and was distributed in the province of Québec, Canada, from May 27 to 28 June 2021. Of 959 respondents, 43% had downloaded the app. Messaging from government sources constituted the largest influence on app download. Infrequent social contacts and perceived app inefficacy were the main reasons not to download the app. Cybersecurity, data confidentiality, loss of privacy, and geolocation were the most frequent concerns. Nearly half of the respondents inaccurately believed that the app used geolocation. Most respondents supported citizen involvement in app development. The identified predictors for app uptake included nine characteristics. In conclusion, this project highlights four key themes on how to promote the social acceptability of such tools: (1) improved communication and explanation of key app characteristics, (2) design features that incentivize adoption, (3) inclusive socio-technical features, and (4) upstream public partnership in development and deployment.https://www.mdpi.com/2075-4426/12/5/729surveyCOVID-19appexposure notificationcitizenpatient
spellingShingle Esli Osmanlliu
Jesseca Paquette
Maria Alejandra Rodriguez Duarte
Sylvain Bédard
Nathalie de Marcellis-Warin
Majlinda Zhegu
Catherine Régis
Marie-Eve Bouthillier
Annie-Danielle Grenier
Paul Lewis
Marie-Pascale Pomey
Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed Study
Journal of Personalized Medicine
survey
COVID-19
app
exposure notification
citizen
patient
title Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed Study
title_full Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed Study
title_fullStr Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed Study
title_full_unstemmed Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed Study
title_short Public Perspectives on Exposure Notification Apps: A Patient and Citizen Co-Designed Study
title_sort public perspectives on exposure notification apps a patient and citizen co designed study
topic survey
COVID-19
app
exposure notification
citizen
patient
url https://www.mdpi.com/2075-4426/12/5/729
work_keys_str_mv AT esliosmanlliu publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT jessecapaquette publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT mariaalejandrarodriguezduarte publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT sylvainbedard publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT nathaliedemarcelliswarin publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT majlindazhegu publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT catherineregis publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT marieevebouthillier publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT anniedaniellegrenier publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT paullewis publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy
AT mariepascalepomey publicperspectivesonexposurenotificationappsapatientandcitizencodesignedstudy