Democratising access to dementia research
As the UK population ages, dementia affects an increasing proportion of the population. There is a drive to accelerate dementia research, however access to research is not equitably distributed. We examine access to dementia research and discuss some enabling factors and barriers. High recruitment i...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
Whitehouse Publishing
2023-11-01
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| Series: | Advances in Clinical Neuroscience & Rehabilitation |
| Online Access: | https://acnr.co.uk/?post_type=articles&p=25806 |
| _version_ | 1797626692605313024 |
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| author | Ruth Dobson Rimona Weil Niran Rehill |
| author_facet | Ruth Dobson Rimona Weil Niran Rehill |
| author_sort | Ruth Dobson |
| collection | DOAJ |
| description | As the UK population ages, dementia affects an increasing proportion of the population. There is a drive to accelerate dementia research, however access to research is not equitably distributed. We examine access to dementia research and discuss some enabling factors and barriers. High recruitment is frequently driven by a person (or people) dedicated to improving research participation. Barriers are commonly structural, rather than lack of willing or knowledge. A recurring issue was lack of time and/or resources. Leveraging existing infrastructure, such as streamlined and efficient governance frameworks, is a clear part of the solution. Research teams need to ensure inclusion/exclusion criteria serve the target population, and that any intervention is accessible to a range of patients. An injection of resources is crucial to support the recruitment process on the ground. |
| first_indexed | 2024-03-11T10:13:49Z |
| format | Article |
| id | doaj.art-6e63f67f8e7b4cf48efc6311a17e49a4 |
| institution | Directory Open Access Journal |
| issn | 1473-9348 2397-267X |
| language | English |
| last_indexed | 2024-03-11T10:13:49Z |
| publishDate | 2023-11-01 |
| publisher | Whitehouse Publishing |
| record_format | Article |
| series | Advances in Clinical Neuroscience & Rehabilitation |
| spelling | doaj.art-6e63f67f8e7b4cf48efc6311a17e49a42023-11-16T12:44:20ZengWhitehouse PublishingAdvances in Clinical Neuroscience & Rehabilitation1473-93482397-267X2023-11-0110.47795/SQWE8437Democratising access to dementia researchRuth Dobson0Rimona Weil1Niran Rehill2Professor of Clinical NeurologyProfessor of NeurologyUCLAs the UK population ages, dementia affects an increasing proportion of the population. There is a drive to accelerate dementia research, however access to research is not equitably distributed. We examine access to dementia research and discuss some enabling factors and barriers. High recruitment is frequently driven by a person (or people) dedicated to improving research participation. Barriers are commonly structural, rather than lack of willing or knowledge. A recurring issue was lack of time and/or resources. Leveraging existing infrastructure, such as streamlined and efficient governance frameworks, is a clear part of the solution. Research teams need to ensure inclusion/exclusion criteria serve the target population, and that any intervention is accessible to a range of patients. An injection of resources is crucial to support the recruitment process on the ground.https://acnr.co.uk/?post_type=articles&p=25806 |
| spellingShingle | Ruth Dobson Rimona Weil Niran Rehill Democratising access to dementia research Advances in Clinical Neuroscience & Rehabilitation |
| title | Democratising access to dementia research |
| title_full | Democratising access to dementia research |
| title_fullStr | Democratising access to dementia research |
| title_full_unstemmed | Democratising access to dementia research |
| title_short | Democratising access to dementia research |
| title_sort | democratising access to dementia research |
| url | https://acnr.co.uk/?post_type=articles&p=25806 |
| work_keys_str_mv | AT ruthdobson democratisingaccesstodementiaresearch AT rimonaweil democratisingaccesstodementiaresearch AT niranrehill democratisingaccesstodementiaresearch |