Improvement of a home palliative care program in cancer patients: An action research study

Background & Aim: Cancer is a disease that affects the quality of life of the patient, and palliative care is a solution that can improve it. However, home palliative care program has not developed in most countries of the world. The aim of this study is to improve a home palliative care program...

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Main Authors: Hadi Hassankhani, Javad Dehghannezhad, Azad Rahmani, Mansour Ghafourifard, Fariba Valizadeh
Format: Article
Language:fas
Published: Tehran University of Medical Sciences 2022-12-01
Series:حیات
Subjects:
Online Access:http://hayat.tums.ac.ir/article-1-4735-en.html
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author Hadi Hassankhani
Javad Dehghannezhad
Azad Rahmani
Mansour Ghafourifard
Fariba Valizadeh
author_facet Hadi Hassankhani
Javad Dehghannezhad
Azad Rahmani
Mansour Ghafourifard
Fariba Valizadeh
author_sort Hadi Hassankhani
collection DOAJ
description Background & Aim: Cancer is a disease that affects the quality of life of the patient, and palliative care is a solution that can improve it. However, home palliative care program has not developed in most countries of the world. The aim of this study is to improve a home palliative care program for cancer patients. Methods & Materials: This research is an action research study that was conducted through quantitative and qualitative approaches in Tabriz over 2018-2020. Eighteen home care nurses were selected for interviews using purposive sampling in order to identify the care needs of cancer patients and the barriers to palliative care at home. In addition, a questionnaire to determine the attitude and knowledge was distributed among 60 home care nurses before and after the action stage. The qualitative data were analyzed using conventional content analysis method, and the SPSS software version 14 was used to analyze the quantitative data. Results: The care needs of cancer patients were determined in five categories and barriers to palliative care in three categories. Cancer patients have physical, psychological, educational, financial and spiritual needs, and barriers to palliative care include poor instruction, families' desperation, and unprofessional caregivers. In the quantitative phase, nurses had average knowledge and negative attitude towards palliative care. Training through virtual space improved the knowledge and attitude of nurses, and the paired t-test showed that the mean score of nurses' knowledge after the action stage was significant. Conclusion: according to the findings, to improve palliative care at home, the physical, psychological, educational, financial and spiritual needs of cancer patients should be considered. Removing barriers to palliative care including developing guidelines, supporting the families of cancer patients and training special nurses for palliative care at home can improve care in these patients.
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spelling doaj.art-6f3c0008e635470bb7145ec25f84057e2023-04-24T08:26:01ZfasTehran University of Medical Sciencesحیات1735-22152008-188X2022-12-01284388404Improvement of a home palliative care program in cancer patients: An action research studyHadi Hassankhani0Javad Dehghannezhad1Azad Rahmani2Mansour Ghafourifard3Fariba Valizadeh4 Dept. of Medical Surgical Nursing, School of Nursing and Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran; Center of Qualitative Studies, Tabriz University of Medical Sciences, Tabriz, Iran Dept. of Medical Surgical Nursing, School of Nursing and Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran Dept. of Medical Surgical Nursing, School of Nursing and Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran Dept. of Medical Surgical Nursing, School of Nursing and Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran Tabriz Health Center, Tabriz University of Medical Sciences, Tabriz, Iran Background & Aim: Cancer is a disease that affects the quality of life of the patient, and palliative care is a solution that can improve it. However, home palliative care program has not developed in most countries of the world. The aim of this study is to improve a home palliative care program for cancer patients. Methods & Materials: This research is an action research study that was conducted through quantitative and qualitative approaches in Tabriz over 2018-2020. Eighteen home care nurses were selected for interviews using purposive sampling in order to identify the care needs of cancer patients and the barriers to palliative care at home. In addition, a questionnaire to determine the attitude and knowledge was distributed among 60 home care nurses before and after the action stage. The qualitative data were analyzed using conventional content analysis method, and the SPSS software version 14 was used to analyze the quantitative data. Results: The care needs of cancer patients were determined in five categories and barriers to palliative care in three categories. Cancer patients have physical, psychological, educational, financial and spiritual needs, and barriers to palliative care include poor instruction, families' desperation, and unprofessional caregivers. In the quantitative phase, nurses had average knowledge and negative attitude towards palliative care. Training through virtual space improved the knowledge and attitude of nurses, and the paired t-test showed that the mean score of nurses' knowledge after the action stage was significant. Conclusion: according to the findings, to improve palliative care at home, the physical, psychological, educational, financial and spiritual needs of cancer patients should be considered. Removing barriers to palliative care including developing guidelines, supporting the families of cancer patients and training special nurses for palliative care at home can improve care in these patients.http://hayat.tums.ac.ir/article-1-4735-en.htmlpalliative carecancerhome careaction research
spellingShingle Hadi Hassankhani
Javad Dehghannezhad
Azad Rahmani
Mansour Ghafourifard
Fariba Valizadeh
Improvement of a home palliative care program in cancer patients: An action research study
حیات
palliative care
cancer
home care
action research
title Improvement of a home palliative care program in cancer patients: An action research study
title_full Improvement of a home palliative care program in cancer patients: An action research study
title_fullStr Improvement of a home palliative care program in cancer patients: An action research study
title_full_unstemmed Improvement of a home palliative care program in cancer patients: An action research study
title_short Improvement of a home palliative care program in cancer patients: An action research study
title_sort improvement of a home palliative care program in cancer patients an action research study
topic palliative care
cancer
home care
action research
url http://hayat.tums.ac.ir/article-1-4735-en.html
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AT azadrahmani improvementofahomepalliativecareprogramincancerpatientsanactionresearchstudy
AT mansourghafourifard improvementofahomepalliativecareprogramincancerpatientsanactionresearchstudy
AT faribavalizadeh improvementofahomepalliativecareprogramincancerpatientsanactionresearchstudy