A Survey of Research Participants’ Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers

A Survey of Research Participants’ Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers

Background: Real-world data (RWD) privacy is an increasingly complex topic within the scope of personalized medicine, as it implicates several sources of data. Objective: To assess how privacy-related experiences, when adjusted for age and education level, may shape adult research participants’ will...

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Bibliographic Details
Main Authors: Rachele M. Hendricks-Sturrup, Fang Zhang, Christine Y. Lu
Format: Article
Language:English
Published: MDPI AG 2022-11-01
Series:Journal of Personalized Medicine
Subjects:
privacy
real-world data
real-world evidence
precision medicine
personalized medicine
research
Online Access:https://www.mdpi.com/2075-4426/12/11/1922

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