In Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ Population

While sexual and gender minorities are at increased risk for poor health outcomes, there is limited data regarding patient-provider interactions. In this study, we explored the perspectives of LGBTQ patients and their encounters with physicians in order to improve our understanding of patient-physi...

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Main Authors: Saba Malik, Zubin Master, Wendy Parker, Barry DeCoster, Lisa Campo-Engelstein
Format: Article
Language:English
Published: Programmes de bioéthique, École de santé publique de l'Université de Montréal 2019-07-01
Series:Canadian Journal of Bioethics
Subjects:
Online Access:https://cjb-rcb.ca/index.php/cjb-rcb/article/view/119
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author Saba Malik
Zubin Master
Wendy Parker
Barry DeCoster
Lisa Campo-Engelstein
author_facet Saba Malik
Zubin Master
Wendy Parker
Barry DeCoster
Lisa Campo-Engelstein
author_sort Saba Malik
collection DOAJ
description While sexual and gender minorities are at increased risk for poor health outcomes, there is limited data regarding patient-provider interactions. In this study, we explored the perspectives of LGBTQ patients and their encounters with physicians in order to improve our understanding of patient-physician experiences. Using purposive selection of self-identified LGBTQ patients, we performed fourteen in-depth semi-structured interviews on topics of sexual orientation and gender identity, as well as their perceived role in the patient-provider relationship. Coding using a modified grounded theory approach was performed to generate themes. We identified three major themes that demonstrate the complexity of LGBTQ patient experiences. The first, Lacking trust, identifies mistrust and loss of the physician-patient relationship resulting from physicians’ poor or judgmental communication, or from physicians making assumptions about gender, using incorrect pronouns, and not recognizing heterogeneity within the transgender community. A second theme, Being vulnerable, describes the challenges and fears related to comfort of patients with disclosing their sexual orientation and/or gender identity. A final theme, Navigating discrimination, outlines racial or ethnic discrimination which creates an additional burden on top of illness and stigmatized identity. Our results reveal the complex needs of individuals with multiple stigmatized identities when developing relationships with providers. By using an intersectional perspective that appreciates the plurality of patients’ identities, providers can help to improve their relationships with LGBTQ patients. Incorporating intersectional training for medical students and residents could greatly benefit both LGBTQ patients and their physicians.
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spelling doaj.art-709b5d41099149679d1097eedbf6ca1b2024-03-14T17:25:06ZengProgrammes de bioéthique, École de santé publique de l'Université de MontréalCanadian Journal of Bioethics2561-46652019-07-012210.7202/1062305arIn Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ PopulationSaba Malik0Zubin Master1Wendy Parker2Barry DeCoster3Lisa Campo-Engelstein4Family Medicine, Harbor UCLA, Harbor City, USABiomedical Ethics Research Program and Center for Regenerative Medicine, Mayo Clinic, Rochester, USAPopulation Health Sciences, Albany College of Pharmacy and Health Sciences, Albany, USAHumanities & Communication, Albany College of Pharmacy and Health Sciences, Albany, USADepartment of Obstetrics & Gynecology, Alden March Bioethics Institute, Albany, USA While sexual and gender minorities are at increased risk for poor health outcomes, there is limited data regarding patient-provider interactions. In this study, we explored the perspectives of LGBTQ patients and their encounters with physicians in order to improve our understanding of patient-physician experiences. Using purposive selection of self-identified LGBTQ patients, we performed fourteen in-depth semi-structured interviews on topics of sexual orientation and gender identity, as well as their perceived role in the patient-provider relationship. Coding using a modified grounded theory approach was performed to generate themes. We identified three major themes that demonstrate the complexity of LGBTQ patient experiences. The first, Lacking trust, identifies mistrust and loss of the physician-patient relationship resulting from physicians’ poor or judgmental communication, or from physicians making assumptions about gender, using incorrect pronouns, and not recognizing heterogeneity within the transgender community. A second theme, Being vulnerable, describes the challenges and fears related to comfort of patients with disclosing their sexual orientation and/or gender identity. A final theme, Navigating discrimination, outlines racial or ethnic discrimination which creates an additional burden on top of illness and stigmatized identity. Our results reveal the complex needs of individuals with multiple stigmatized identities when developing relationships with providers. By using an intersectional perspective that appreciates the plurality of patients’ identities, providers can help to improve their relationships with LGBTQ patients. Incorporating intersectional training for medical students and residents could greatly benefit both LGBTQ patients and their physicians. https://cjb-rcb.ca/index.php/cjb-rcb/article/view/119LGBTQhealth disparitiesintersectionalityhealthpatient-physician relationship
spellingShingle Saba Malik
Zubin Master
Wendy Parker
Barry DeCoster
Lisa Campo-Engelstein
In Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ Population
Canadian Journal of Bioethics
LGBTQ
health disparities
intersectionality
health
patient-physician relationship
title In Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ Population
title_full In Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ Population
title_fullStr In Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ Population
title_full_unstemmed In Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ Population
title_short In Our Own Words: A Qualitative Exploration of Complex Patient-Provider Interactions in an LGBTQ Population
title_sort in our own words a qualitative exploration of complex patient provider interactions in an lgbtq population
topic LGBTQ
health disparities
intersectionality
health
patient-physician relationship
url https://cjb-rcb.ca/index.php/cjb-rcb/article/view/119
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