Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey study
Abstract Background: We aimed to examine the attitudes of Pennsylvania rural residents toward data sharing in the setting of the COVID-19 pandemic. Specifically, we were interested in better understanding their willingness to provide personal information for contact tracing to public health staff...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2023-01-01
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| Series: | Journal of Clinical and Translational Science |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S205986612300033X/type/journal_article |
| _version_ | 1797845406940397568 |
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| author | Jennifer B. McCormick Margaret Hopkins Erik B. Lehman Michael J. Green |
| author_facet | Jennifer B. McCormick Margaret Hopkins Erik B. Lehman Michael J. Green |
| author_sort | Jennifer B. McCormick |
| collection | DOAJ |
| description |
Abstract
Background:
We aimed to examine the attitudes of Pennsylvania rural residents toward data sharing in the setting of the COVID-19 pandemic. Specifically, we were interested in better understanding their willingness to provide personal information for contact tracing to public health staff investigating COVID-19 cases, as well as their concerns. We used a validated scale to describe the influence of distrust of healthcare organizations on their attitudes.
Methods:
We mailed 4000 surveys to rural residents identified from the electronic medical record of a healthcare system in central Pennsylvania. Data were entered into a REDCap database and analyzed using descriptive summaries, and both binomial and multivariable logistic regression.
Results:
Binomial logistic regression showed that both distrust in healthcare organizations and political values influence respondents’ willingness to share information with contact tracers as well as their concerns about sharing personal data. When our multivariable model was applied, political values remained and were consistently associated with willingness to share and concerns about sharing their data.
Conclusion:
This study is a first step in eliciting rural residents’ willingness to share personal data for contact tracing by public health officials. Understanding and addressing rural residents’ willingness to share personal data and their concerns about sharing those data will help public health officials identify effective strategies for managing COVID-19 and future pandemics in rural communities. By involving community members at the ground level, public health staff can ensure residents’ buy-in for the need to collect their personal data, thereby helping to mitigate the public health crises.
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| first_indexed | 2024-04-09T17:38:33Z |
| format | Article |
| id | doaj.art-70fe5b76624e46d9b8dd1a5165775a06 |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-04-09T17:38:33Z |
| publishDate | 2023-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-70fe5b76624e46d9b8dd1a5165775a062023-04-17T08:12:26ZengCambridge University PressJournal of Clinical and Translational Science2059-86612023-01-01710.1017/cts.2023.33Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey studyJennifer B. McCormick0https://orcid.org/0000-0002-2008-8180Margaret Hopkins1Erik B. Lehman2Michael J. Green3Department of Humanities, Penn State College of Medicine, Hershey, PA, USADepartment of Humanities, Penn State College of Medicine, Hershey, PA, USADepartment of Public Health Sciences, Penn State College of Medicine, Hershey, PA, USADepartment of Humanities, Penn State College of Medicine, Hershey, PA, USA Department of Medicine, Penn State College of Medicine, Hershey, PA, USA Abstract Background: We aimed to examine the attitudes of Pennsylvania rural residents toward data sharing in the setting of the COVID-19 pandemic. Specifically, we were interested in better understanding their willingness to provide personal information for contact tracing to public health staff investigating COVID-19 cases, as well as their concerns. We used a validated scale to describe the influence of distrust of healthcare organizations on their attitudes. Methods: We mailed 4000 surveys to rural residents identified from the electronic medical record of a healthcare system in central Pennsylvania. Data were entered into a REDCap database and analyzed using descriptive summaries, and both binomial and multivariable logistic regression. Results: Binomial logistic regression showed that both distrust in healthcare organizations and political values influence respondents’ willingness to share information with contact tracers as well as their concerns about sharing personal data. When our multivariable model was applied, political values remained and were consistently associated with willingness to share and concerns about sharing their data. Conclusion: This study is a first step in eliciting rural residents’ willingness to share personal data for contact tracing by public health officials. Understanding and addressing rural residents’ willingness to share personal data and their concerns about sharing those data will help public health officials identify effective strategies for managing COVID-19 and future pandemics in rural communities. By involving community members at the ground level, public health staff can ensure residents’ buy-in for the need to collect their personal data, thereby helping to mitigate the public health crises. https://www.cambridge.org/core/product/identifier/S205986612300033X/type/journal_articleData sharingcontact tracingsurveyCOVID-19empirical research |
| spellingShingle | Jennifer B. McCormick Margaret Hopkins Erik B. Lehman Michael J. Green Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey study Journal of Clinical and Translational Science Data sharing contact tracing survey COVID-19 empirical research |
| title | Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey study |
| title_full | Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey study |
| title_fullStr | Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey study |
| title_full_unstemmed | Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey study |
| title_short | Political views and organizational distrust affect rural residents’ willingness to share personal data for COVID-19 contact tracing: A cross-sectional survey study |
| title_sort | political views and organizational distrust affect rural residents willingness to share personal data for covid 19 contact tracing a cross sectional survey study |
| topic | Data sharing contact tracing survey COVID-19 empirical research |
| url | https://www.cambridge.org/core/product/identifier/S205986612300033X/type/journal_article |
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