Developing a consensus statement for psychosocial support in active surveillance for prostate cancer

Abstract Purpose Our objective was to prioritise the psychosocial support needs of men on active surveillance for prostate cancer and to develop a consensus statement to provide guidance on best practice psychosocial support for men choosing active surveillance and their families. Subjects and metho...

Full description

Bibliographic Details
Main Authors: Kerri Beckmann, Declan Cahill, Christian Brown, Mieke Van Hemelrijck, Netty Kinsella
Format: Article
Language:English
Published: Wiley 2023-01-01
Series:BJUI Compass
Subjects:
Online Access:https://doi.org/10.1002/bco2.155
_version_ 1811196074223730688
author Kerri Beckmann
Declan Cahill
Christian Brown
Mieke Van Hemelrijck
Netty Kinsella
author_facet Kerri Beckmann
Declan Cahill
Christian Brown
Mieke Van Hemelrijck
Netty Kinsella
author_sort Kerri Beckmann
collection DOAJ
description Abstract Purpose Our objective was to prioritise the psychosocial support needs of men on active surveillance for prostate cancer and to develop a consensus statement to provide guidance on best practice psychosocial support for men choosing active surveillance and their families. Subjects and methods We undertook a patient and public involvement Delphi process over two rounds, informed by qualitative data and a comprehensive literature review, to prioritise the information and support needs of men on active surveillance for prostate cancer. Two panels were surveyed, a patient/carer panel (n = 55) and a health care provider panel (n = 114). Based on the findings of the Delphi surveys, an expert active surveillance discussion group developed a consensus statement to guide best practice. Results Patients and health care professionals differed slightly in their ideas concerning priorities for active surveillance psychosocial support. Broadly, agreed priority areas included ‐patients being involved in decision‐making, continuity of care, more streamlined access to health care teams, improved understanding of the risk of prostate cancer progression and information and support provided through both health care professionals and peers. Based on the identified priorities, the expert discussion group agreed on 22 consensus statements for best practice in psychosocial care for active surveillance in respect of (1) principles of an active surveillance programme; (2) structure of consultations; (3) content of information and support; and (4) delivery of information. Conclusion This consensus statement provides a framework for patient‐focused psychosocial support, which, if adopted, should increase uptake and adherence to active surveillance among men with prostate cancer.
first_indexed 2024-04-12T00:52:30Z
format Article
id doaj.art-7162d95ee5b0463382ed7b89cd4e3a22
institution Directory Open Access Journal
issn 2688-4526
language English
last_indexed 2024-04-12T00:52:30Z
publishDate 2023-01-01
publisher Wiley
record_format Article
series BJUI Compass
spelling doaj.art-7162d95ee5b0463382ed7b89cd4e3a222022-12-22T03:54:42ZengWileyBJUI Compass2688-45262023-01-014110411310.1002/bco2.155Developing a consensus statement for psychosocial support in active surveillance for prostate cancerKerri Beckmann0Declan Cahill1Christian Brown2Mieke Van Hemelrijck3Netty Kinsella4Translational Oncology and Urology Research Kings College London London UKDepartment of Urology The Royal Marsden Hospital London UKUrology Department Guy's and St Thomas' NHS Foundation Trust London UKTranslational Oncology and Urology Research Kings College London London UKDepartment of Urology The Royal Marsden Hospital London UKAbstract Purpose Our objective was to prioritise the psychosocial support needs of men on active surveillance for prostate cancer and to develop a consensus statement to provide guidance on best practice psychosocial support for men choosing active surveillance and their families. Subjects and methods We undertook a patient and public involvement Delphi process over two rounds, informed by qualitative data and a comprehensive literature review, to prioritise the information and support needs of men on active surveillance for prostate cancer. Two panels were surveyed, a patient/carer panel (n = 55) and a health care provider panel (n = 114). Based on the findings of the Delphi surveys, an expert active surveillance discussion group developed a consensus statement to guide best practice. Results Patients and health care professionals differed slightly in their ideas concerning priorities for active surveillance psychosocial support. Broadly, agreed priority areas included ‐patients being involved in decision‐making, continuity of care, more streamlined access to health care teams, improved understanding of the risk of prostate cancer progression and information and support provided through both health care professionals and peers. Based on the identified priorities, the expert discussion group agreed on 22 consensus statements for best practice in psychosocial care for active surveillance in respect of (1) principles of an active surveillance programme; (2) structure of consultations; (3) content of information and support; and (4) delivery of information. Conclusion This consensus statement provides a framework for patient‐focused psychosocial support, which, if adopted, should increase uptake and adherence to active surveillance among men with prostate cancer.https://doi.org/10.1002/bco2.155active surveillanceconsensus statementDelphi studyprostatic neoplasmspsychosocial support systems
spellingShingle Kerri Beckmann
Declan Cahill
Christian Brown
Mieke Van Hemelrijck
Netty Kinsella
Developing a consensus statement for psychosocial support in active surveillance for prostate cancer
BJUI Compass
active surveillance
consensus statement
Delphi study
prostatic neoplasms
psychosocial support systems
title Developing a consensus statement for psychosocial support in active surveillance for prostate cancer
title_full Developing a consensus statement for psychosocial support in active surveillance for prostate cancer
title_fullStr Developing a consensus statement for psychosocial support in active surveillance for prostate cancer
title_full_unstemmed Developing a consensus statement for psychosocial support in active surveillance for prostate cancer
title_short Developing a consensus statement for psychosocial support in active surveillance for prostate cancer
title_sort developing a consensus statement for psychosocial support in active surveillance for prostate cancer
topic active surveillance
consensus statement
Delphi study
prostatic neoplasms
psychosocial support systems
url https://doi.org/10.1002/bco2.155
work_keys_str_mv AT kerribeckmann developingaconsensusstatementforpsychosocialsupportinactivesurveillanceforprostatecancer
AT declancahill developingaconsensusstatementforpsychosocialsupportinactivesurveillanceforprostatecancer
AT christianbrown developingaconsensusstatementforpsychosocialsupportinactivesurveillanceforprostatecancer
AT miekevanhemelrijck developingaconsensusstatementforpsychosocialsupportinactivesurveillanceforprostatecancer
AT nettykinsella developingaconsensusstatementforpsychosocialsupportinactivesurveillanceforprostatecancer