Study protocol for a multicenter, multinational, observational registry of epidemiology, treatment and outcome of patients with Robin sequence

Study protocol for a multicenter, multinational, observational registry of epidemiology, treatment and outcome of patients with Robin sequence

Abstract Background Robin sequence (RS) is a congenital condition characterized by micrognathia, glossoptosis and upper airway obstruction. Diagnosis and treatment are characterized by heterogeneity, resulting in a lack of uniformly collected data. Methods We have set up a prospective, observational...

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Bibliographic Details
Main Authors: Anna-Lisa Oechsle, Cornelia Wiechers, Veronique Abadie, Francois Abel, Corstiaan Breugem, Christian F. Poets
Format: Article
Language:English
Published: BMC 2023-05-01
Series:Head & Face Medicine
Subjects:
Robin sequence
Registry
Database
Rare disease
Outcome
Online Access:https://doi.org/10.1186/s13005-023-00364-3

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