Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
Among the multitude of care places in which children with cancer spend time, the home has remained little studied. A prolonged observational ethnographic survey in a pediatric home care unit allowed us to reconstruct this part of children’s care trajectories. The study allows us to grasp children’s...
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| Format: | Article |
| Language: | fra |
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Association Anthropologie Médicale Appliquée au Développement et à la Santé
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| Series: | Anthropologie & Santé |
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| Online Access: | https://journals.openedition.org/anthropologiesante/9987 |
| _version_ | 1797308818950979584 |
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| author | Sarra Mougel |
| author_facet | Sarra Mougel |
| author_sort | Sarra Mougel |
| collection | DOAJ |
| description | Among the multitude of care places in which children with cancer spend time, the home has remained little studied. A prolonged observational ethnographic survey in a pediatric home care unit allowed us to reconstruct this part of children’s care trajectories. The study allows us to grasp children’s words, which are more substantial than in the hospital setting, and yet sometimes overwhelmed by the urgency of exchanges between adults. It also provides a view of the children’s agency, initiated by adults or won over by the children themselves. This agency, insofar as it is perceived by adults, can become a source of valorization for children, on the condition that it does not call into question a principle of acceptance of care. Nevertheless, the children may remain mute on the more intimate experience of their illness, as they are expected to behave like a child and not like a sick child. |
| first_indexed | 2024-03-08T01:17:13Z |
| format | Article |
| id | doaj.art-71f79aa8ba3548df8f6be43610374168 |
| institution | Directory Open Access Journal |
| issn | 2111-5028 |
| language | fra |
| last_indexed | 2024-03-08T01:17:13Z |
| publisher | Association Anthropologie Médicale Appliquée au Développement et à la Santé |
| record_format | Article |
| series | Anthropologie & Santé |
| spelling | doaj.art-71f79aa8ba3548df8f6be436103741682024-02-14T14:39:48ZfraAssociation Anthropologie Médicale Appliquée au Développement et à la SantéAnthropologie & Santé2111-50282310.4000/anthropologiesante.9987Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicileSarra MougelAmong the multitude of care places in which children with cancer spend time, the home has remained little studied. A prolonged observational ethnographic survey in a pediatric home care unit allowed us to reconstruct this part of children’s care trajectories. The study allows us to grasp children’s words, which are more substantial than in the hospital setting, and yet sometimes overwhelmed by the urgency of exchanges between adults. It also provides a view of the children’s agency, initiated by adults or won over by the children themselves. This agency, insofar as it is perceived by adults, can become a source of valorization for children, on the condition that it does not call into question a principle of acceptance of care. Nevertheless, the children may remain mute on the more intimate experience of their illness, as they are expected to behave like a child and not like a sick child.https://journals.openedition.org/anthropologiesante/9987Franceparenthoodagencyobservationhome care unit |
| spellingShingle | Sarra Mougel Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile Anthropologie & Santé France parenthood agency observation home care unit |
| title | Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile |
| title_full | Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile |
| title_fullStr | Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile |
| title_full_unstemmed | Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile |
| title_short | Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile |
| title_sort | paroles d enfants paroles sur l enfant atteint de cancer en hospitalisation pediatrique a domicile |
| topic | France parenthood agency observation home care unit |
| url | https://journals.openedition.org/anthropologiesante/9987 |
| work_keys_str_mv | AT sarramougel parolesdenfantsparolessurlenfantatteintdecancerenhospitalisationpediatriqueadomicile |