Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, India

Background: Mental illness in parents impairs their parenting capability, which has a lifelong detrimental impact on their children’s physical and psychological health. In the current Indian context, due to weak social security nets, family is the only plausible intervention to ensure adequate subst...

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Main Authors: Saju Madavanakadu Devassy, Lorane Scaria, Lynette Joubert
Format: Article
Language:English
Published: MDPI AG 2022-11-01
Series:Healthcare
Subjects:
Online Access:https://www.mdpi.com/2227-9032/10/12/2408
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author Saju Madavanakadu Devassy
Lorane Scaria
Lynette Joubert
author_facet Saju Madavanakadu Devassy
Lorane Scaria
Lynette Joubert
author_sort Saju Madavanakadu Devassy
collection DOAJ
description Background: Mental illness in parents impairs their parenting capability, which has a lifelong detrimental impact on their children’s physical and psychological health. In the current Indian context, due to weak social security nets, family is the only plausible intervention to ensure adequate substitute child care. Therefore, this study explores various risk factors and barriers to providing substitute family care. Methods: We used a mixed-method approach to gather information from 94 substitute family caregivers. Quantitative screening data were collected from four hospitals using a clinical data mining tool and an interview guide to gather caregiver perspectives on economic, familial, and social risks and barriers associated with caring. We used thematic analysis to consolidate the qualitative findings. Results: Most of the substitute caregivers were females from low-income households. The study identified 11 sub-themes and 23 specific themes associated with risks and barriers to substitute care. These themes fell into four broad areas: economic, familial, school-related risks, and specific cultural and service access barriers. Focus on economic interventions is likely to result in strengthening the substitute family caregiver. Conclusion: The paradigmatic shift of treatment focus from the patient to the entire household would benefit the children just as it does the patient.
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spelling doaj.art-72570b23efef44c6b8ba3476ae1a4e022023-11-24T15:09:29ZengMDPI AGHealthcare2227-90322022-11-011012240810.3390/healthcare10122408Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, IndiaSaju Madavanakadu Devassy0Lorane Scaria1Lynette Joubert2Department of Social Work, Rajagiri College of Social Sciences (Autonomous), Kochi 683104, Kerala, IndiaDepartment of Social Work, Rajagiri College of Social Sciences (Autonomous), Kochi 683104, Kerala, IndiaDepartment of Social Work, Melbourne School of Health Sciences at the University of Melbourne, Parkville 3010, AustraliaBackground: Mental illness in parents impairs their parenting capability, which has a lifelong detrimental impact on their children’s physical and psychological health. In the current Indian context, due to weak social security nets, family is the only plausible intervention to ensure adequate substitute child care. Therefore, this study explores various risk factors and barriers to providing substitute family care. Methods: We used a mixed-method approach to gather information from 94 substitute family caregivers. Quantitative screening data were collected from four hospitals using a clinical data mining tool and an interview guide to gather caregiver perspectives on economic, familial, and social risks and barriers associated with caring. We used thematic analysis to consolidate the qualitative findings. Results: Most of the substitute caregivers were females from low-income households. The study identified 11 sub-themes and 23 specific themes associated with risks and barriers to substitute care. These themes fell into four broad areas: economic, familial, school-related risks, and specific cultural and service access barriers. Focus on economic interventions is likely to result in strengthening the substitute family caregiver. Conclusion: The paradigmatic shift of treatment focus from the patient to the entire household would benefit the children just as it does the patient.https://www.mdpi.com/2227-9032/10/12/2408parental mental illnesschildrenrisk factorsfamily careIndia
spellingShingle Saju Madavanakadu Devassy
Lorane Scaria
Lynette Joubert
Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, India
Healthcare
parental mental illness
children
risk factors
family care
India
title Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, India
title_full Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, India
title_fullStr Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, India
title_full_unstemmed Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, India
title_short Risks and Barriers in Substitute Care for the Children of Parents with Serious Mental Illness: A Mixed-Method Study in Kerala, India
title_sort risks and barriers in substitute care for the children of parents with serious mental illness a mixed method study in kerala india
topic parental mental illness
children
risk factors
family care
India
url https://www.mdpi.com/2227-9032/10/12/2408
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AT loranescaria risksandbarriersinsubstitutecareforthechildrenofparentswithseriousmentalillnessamixedmethodstudyinkeralaindia
AT lynettejoubert risksandbarriersinsubstitutecareforthechildrenofparentswithseriousmentalillnessamixedmethodstudyinkeralaindia