Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis
The role of end-of-life care is fundamental for end-stage renal disease (ESRD) patients, who are known to have a high morbidity and mortality rate despite being on dialysis. This requires effective communication and shared decision-making. Thus, exploring patients' knowledge and perceptions is...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wolters Kluwer Medknow Publications
2022-01-01
|
| Series: | Saudi Journal of Kidney Diseases and Transplantation |
| Online Access: | http://www.sjkdt.org/article.asp?issn=1319-2442;year=2022;volume=33;issue=5;spage=664;epage=673;aulast=Rozi |
| _version_ | 1797226159857991680 |
|---|---|
| author | Nur Raziana Binti Rozi Wan Ahmad Syahril Rozli Bin Wan Ali Che Rosle Bin Draman Hafizah Binti Pasi Mohammad Yousuf Rathor |
| author_facet | Nur Raziana Binti Rozi Wan Ahmad Syahril Rozli Bin Wan Ali Che Rosle Bin Draman Hafizah Binti Pasi Mohammad Yousuf Rathor |
| author_sort | Nur Raziana Binti Rozi |
| collection | DOAJ |
| description | The role of end-of-life care is fundamental for end-stage renal disease (ESRD) patients, who are known to have a high morbidity and mortality rate despite being on dialysis. This requires effective communication and shared decision-making. Thus, exploring patients' knowledge and perceptions is essential to improve the gaps in delivering end-of-life care. This study aimed to describe the knowledge and perceptions of end-of-life care among ESRD patients on hemodialysis (HD). This was a cross-sectional study involving 14 outpatient HD centers in Kuantan, Malaysia. Patients were recruited from March to June 2019. A validated questionnaire was delivered via interview-based surveys by the researcher or trained interviewers. The majority of the respondents had poor knowledge of the disease and end-of-life care. However, more than 70% of the respondents felt that it was important for them to be actively involved in medical decision-making, as well as being prepared and planning for death. End-of-life needs, which included management of symptoms and psychological, social, and spiritual support, were important to most respondents. Additionally, patients with higher educational backgrounds were observed to have higher scores for both knowledge and perceptions (P <0.05). The study found poor knowledge but acceptable perceptions among patients. This highlights the gaps in the current local approach in clinical practice to end-of-life care in ESRD. |
| first_indexed | 2024-04-24T14:20:29Z |
| format | Article |
| id | doaj.art-72766df6564c41e1b7204be257577c40 |
| institution | Directory Open Access Journal |
| issn | 1319-2442 |
| language | English |
| last_indexed | 2024-04-24T14:20:29Z |
| publishDate | 2022-01-01 |
| publisher | Wolters Kluwer Medknow Publications |
| record_format | Article |
| series | Saudi Journal of Kidney Diseases and Transplantation |
| spelling | doaj.art-72766df6564c41e1b7204be257577c402024-04-03T06:41:31ZengWolters Kluwer Medknow PublicationsSaudi Journal of Kidney Diseases and Transplantation1319-24422022-01-0133566467310.4103/1319-2442.389426Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on HemodialysisNur Raziana Binti RoziWan Ahmad Syahril Rozli Bin Wan AliChe Rosle Bin DramanHafizah Binti PasiMohammad Yousuf RathorThe role of end-of-life care is fundamental for end-stage renal disease (ESRD) patients, who are known to have a high morbidity and mortality rate despite being on dialysis. This requires effective communication and shared decision-making. Thus, exploring patients' knowledge and perceptions is essential to improve the gaps in delivering end-of-life care. This study aimed to describe the knowledge and perceptions of end-of-life care among ESRD patients on hemodialysis (HD). This was a cross-sectional study involving 14 outpatient HD centers in Kuantan, Malaysia. Patients were recruited from March to June 2019. A validated questionnaire was delivered via interview-based surveys by the researcher or trained interviewers. The majority of the respondents had poor knowledge of the disease and end-of-life care. However, more than 70% of the respondents felt that it was important for them to be actively involved in medical decision-making, as well as being prepared and planning for death. End-of-life needs, which included management of symptoms and psychological, social, and spiritual support, were important to most respondents. Additionally, patients with higher educational backgrounds were observed to have higher scores for both knowledge and perceptions (P <0.05). The study found poor knowledge but acceptable perceptions among patients. This highlights the gaps in the current local approach in clinical practice to end-of-life care in ESRD.http://www.sjkdt.org/article.asp?issn=1319-2442;year=2022;volume=33;issue=5;spage=664;epage=673;aulast=Rozi |
| spellingShingle | Nur Raziana Binti Rozi Wan Ahmad Syahril Rozli Bin Wan Ali Che Rosle Bin Draman Hafizah Binti Pasi Mohammad Yousuf Rathor Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis Saudi Journal of Kidney Diseases and Transplantation |
| title | Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis |
| title_full | Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis |
| title_fullStr | Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis |
| title_full_unstemmed | Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis |
| title_short | Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis |
| title_sort | knowledge and perceptions on end of life care among end stage renal disease patients on hemodialysis |
| url | http://www.sjkdt.org/article.asp?issn=1319-2442;year=2022;volume=33;issue=5;spage=664;epage=673;aulast=Rozi |
| work_keys_str_mv | AT nurrazianabintirozi knowledgeandperceptionsonendoflifecareamongendstagerenaldiseasepatientsonhemodialysis AT wanahmadsyahrilrozlibinwanali knowledgeandperceptionsonendoflifecareamongendstagerenaldiseasepatientsonhemodialysis AT cheroslebindraman knowledgeandperceptionsonendoflifecareamongendstagerenaldiseasepatientsonhemodialysis AT hafizahbintipasi knowledgeandperceptionsonendoflifecareamongendstagerenaldiseasepatientsonhemodialysis AT mohammadyousufrathor knowledgeandperceptionsonendoflifecareamongendstagerenaldiseasepatientsonhemodialysis |