Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis
Purpose As more newborns have received expanded newborn screening (NBS) for metabolic disorders, the overall number of false-positive results has increased. The purpose of this study was to explore the psychological impacts experienced by mothers related to the NBS process. Methods An online parenti...
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| Format: | Article |
| Language: | English |
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Korean Society of Women Health Nursing
2023-03-01
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| Series: | Korean Journal of Women Health Nursing |
| Subjects: | |
| Online Access: | http://www.kjwhn.org/upload/pdf/kjwhn-2023-02-21.pdf |
| _version_ | 1797692868917198848 |
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| author | Myeong Seon Lee Hyun-Sook Chung Jin Sun Kim |
| author_facet | Myeong Seon Lee Hyun-Sook Chung Jin Sun Kim |
| author_sort | Myeong Seon Lee |
| collection | DOAJ |
| description | Purpose As more newborns have received expanded newborn screening (NBS) for metabolic disorders, the overall number of false-positive results has increased. The purpose of this study was to explore the psychological impacts experienced by mothers related to the NBS process. Methods An online parenting community in Korea was selected, and questions regarding NBS were collected using web crawling for the period from October 2018 to August 2021. In total, 634 posts were analyzed. The collected unstructured text data were preprocessed, and keyword analysis, topic modeling, and visualization were performed. Results Of 1,057 words extracted from posts, the top keyword based on ‘term frequency-inverse document frequency’ values was “hypothyroidism,” followed by “discharge,” “close examination,” “thyroid-stimulating hormone levels,” and “jaundice.” The top keyword based on the simple frequency of appearance was “XXX hospital,” followed by “close examination,” “discharge,” “breastfeeding,” “hypothyroidism,” and “professor.” As a result of LDA topic modeling, posts related to inborn errors of metabolism (IEMs) were classified into four main themes: “confirmatory tests of IEMs,” “mother and newborn with thyroid function problems,” “retests of IEMs,” and “feeding related to IEMs.” Mothers experienced substantial frustration, stress, and anxiety when they received positive NBS results. Conclusion The online parenting community played an important role in acquiring and sharing information, as well as psychological support related to NBS in newborn mothers. Nurses can use this study’s findings to develop timely and evidence-based information for parents whose children receive positive NBS results to reduce the negative psychological impact. |
| first_indexed | 2024-03-12T02:33:49Z |
| format | Article |
| id | doaj.art-7348438cdfab4675aeab2568703e6e2a |
| institution | Directory Open Access Journal |
| issn | 2287-1640 2093-7695 |
| language | English |
| last_indexed | 2024-03-12T02:33:49Z |
| publishDate | 2023-03-01 |
| publisher | Korean Society of Women Health Nursing |
| record_format | Article |
| series | Korean Journal of Women Health Nursing |
| spelling | doaj.art-7348438cdfab4675aeab2568703e6e2a2023-09-05T01:52:54ZengKorean Society of Women Health NursingKorean Journal of Women Health Nursing2287-16402093-76952023-03-01291203110.4069/kjwhn.2023.02.21989Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysisMyeong Seon Lee0Hyun-Sook Chung1Jin Sun Kim2Department of Nursing, Nambu University, Gwangju, KoreaDepartment of Computer Engineering, Chosun University, Gwangju, KoreaDepartment of Nursing, Chosun University, Gwangju, KoreaPurpose As more newborns have received expanded newborn screening (NBS) for metabolic disorders, the overall number of false-positive results has increased. The purpose of this study was to explore the psychological impacts experienced by mothers related to the NBS process. Methods An online parenting community in Korea was selected, and questions regarding NBS were collected using web crawling for the period from October 2018 to August 2021. In total, 634 posts were analyzed. The collected unstructured text data were preprocessed, and keyword analysis, topic modeling, and visualization were performed. Results Of 1,057 words extracted from posts, the top keyword based on ‘term frequency-inverse document frequency’ values was “hypothyroidism,” followed by “discharge,” “close examination,” “thyroid-stimulating hormone levels,” and “jaundice.” The top keyword based on the simple frequency of appearance was “XXX hospital,” followed by “close examination,” “discharge,” “breastfeeding,” “hypothyroidism,” and “professor.” As a result of LDA topic modeling, posts related to inborn errors of metabolism (IEMs) were classified into four main themes: “confirmatory tests of IEMs,” “mother and newborn with thyroid function problems,” “retests of IEMs,” and “feeding related to IEMs.” Mothers experienced substantial frustration, stress, and anxiety when they received positive NBS results. Conclusion The online parenting community played an important role in acquiring and sharing information, as well as psychological support related to NBS in newborn mothers. Nurses can use this study’s findings to develop timely and evidence-based information for parents whose children receive positive NBS results to reduce the negative psychological impact.http://www.kjwhn.org/upload/pdf/kjwhn-2023-02-21.pdfinformationinborn metabolism errorsmothersneonatal screening |
| spellingShingle | Myeong Seon Lee Hyun-Sook Chung Jin Sun Kim Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis Korean Journal of Women Health Nursing information inborn metabolism errors mothers neonatal screening |
| title | Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis |
| title_full | Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis |
| title_fullStr | Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis |
| title_full_unstemmed | Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis |
| title_short | Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis |
| title_sort | analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling a quantitative content analysis |
| topic | information inborn metabolism errors mothers neonatal screening |
| url | http://www.kjwhn.org/upload/pdf/kjwhn-2023-02-21.pdf |
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