Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis

Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis

Purpose As more newborns have received expanded newborn screening (NBS) for metabolic disorders, the overall number of false-positive results has increased. The purpose of this study was to explore the psychological impacts experienced by mothers related to the NBS process. Methods An online parenti...

Full description

Bibliographic Details
Main Authors:	Myeong Seon Lee, Hyun-Sook Chung, Jin Sun Kim
Format:	Article
Language:	English
Published:	Korean Society of Women Health Nursing 2023-03-01
Series:	Korean Journal of Women Health Nursing
Subjects:	information inborn metabolism errors mothers neonatal screening
Online Access:	http://www.kjwhn.org/upload/pdf/kjwhn-2023-02-21.pdf

Similar Items

Perception towards newborn screening
by: Sridhar Amalakanti, et al.
Published: (2023-01-01)

Diagnosis of inborn errors of metabolism within the expanded newborn screening in the Madrid region
by: Álvaro Martín‐Rivada, et al.
Published: (2022-03-01)

Universal Implementation of Newborn Screening in India
by: Thomas Mookken
Published: (2020-03-01)

Newborn screening for lysosomal disorders in Brazil: A pilot study using customized fluorimetric assays
by: Fernanda Bender, et al.

Overview of neonatal screening for phenylketonuria in Brazil
by: Alessandra B. Trovó de Marqui
Published: (2016-12-01)

Expanded Newborn Screening for Inborn Errors of Metabolism and Genetic Characteristics in a Chinese Population
by: Kejian Guo, et al.
Published: (2018-04-01)

Machine Learning Methods Improve Specificity in Newborn Screening for Isovaleric Aciduria
by: Elaine Zaunseder, et al.
Published: (2023-02-01)

Tandem Mass Neonatal Screening in Taiwan—Report from One Center
by: Hsiang-Po Huang, et al.
Published: (2006-01-01)

Cost-effectiveness analysis of newborn screening by tandem mass spectrometry in Shenzhen, China: value and affordability of new screening technology
by: Mingren Yu, et al.
Published: (2022-08-01)

Expanded newborn screening for inherited metabolic disorders by tandem mass spectrometry in a northern Chinese population
by: Hong Zhang, et al.
Published: (2022-09-01)

Newborn screening of inherited metabolic disorders by tandem mass spectrometry: past, present and future
by: G. Scaturro, et al.
Published: (2013-04-01)

Insights into National Laboratory Newborn Screening and Future Prospects
by: Ahmed H. Mujamammi
Published: (2022-02-01)

Portuguese Neonatal Screening Program: A Cohort Study of 18 Years Using MS/MS
by: Maria Miguel Gonçalves, et al.
Published: (2024-03-01)

Expanded Newborn Screening in Italy Using Tandem Mass Spectrometry: Two Years of National Experience
by: Margherita Ruoppolo, et al.
Published: (2022-08-01)

A Rare Cause of Sudden Onset-Severe Metabolic Acidosis in Paediatric Surgical Patients- Organic Acidemia
by: Vipin Kumar Singh, et al.
Published: (2016-03-01)

Mass spectrometry for screening of metabolic disorders: 9-year biochemical genetics experience
by: Walaa S Nazim, et al.
Published: (2023-01-01)

Application of Next-Generation Sequencing Following Tandem Mass Spectrometry to Expand Newborn Screening for Inborn Errors of Metabolism: A Multicenter Study
by: Yuqi Yang, et al.
Published: (2019-02-01)

Newborn screening for severe combined immunodeficiency: lessons from a pilot study and prospects
by: O.R. Boyarchuk, et al.
Published: (2023-04-01)

Metabolic screening and metabolomics analysis in the Intellectual Developmental Disorders Mexico Study
by: Isabel Ibarra-González, et al.
Published: (2017-07-01)

Expanded Newborn Screening for Inborn Errors of Metabolism in Hong Kong: Results and Outcome of a 7 Year Journey
by: Kiran Moti Belaramani, et al.
Published: (2024-03-01)

Newborn screening for severe combined immunodeficiency: The results of the first pilot TREC and KREC study in Ukraine with involving of 10,350 neonates
by: Oksana Boyarchuk, et al.
Published: (2022-09-01)

Reference Standards for Newborn Screening of Metabolic Disorders by Tandem Mass Spectrometry: A Nationwide Study on Millions of Chinese Neonatal Populations
by: Falin He, et al.
Published: (2021-12-01)

GENE THERAPY IN MUCOPOLYSACCHARIDOSIS TYPE IIIA: CASE REPORTS
by: Benjamin Lah, et al.
Published: (2022-05-01)

Mothers’ lived experience of caring for children with inborn errors of amino acid metabolism
by: Sara Shirdelzade, et al.
Published: (2023-06-01)

Expanded Newborn Screening for Inborn Errors of Metabolism by Tandem Mass Spectrometry in Suzhou, China: Disease Spectrum, Prevalence, Genetic Characteristics in a Chinese Population
by: Ting Wang, et al.
Published: (2019-10-01)

Our Experience with Diagnostics of Congenital Disorders of Glycosylation
by: Ziad Albahri, et al.
Published: (2004-01-01)

Neonatal Seizures Revisited
by: Konrad Kaminiów, et al.
Published: (2021-02-01)

Isovaleric Acidemia as a Rare Cause for Bad Obstetric History
by: Sailatha Ramanujam, et al.
Published: (2021-09-01)

Swiss newborn screening for severe T and B cell deficiency with a combined TREC/KREC assay – management recommendations
by: Johannes Trück, et al.
Published: (2020-06-01)

Analytical Evaluation of the Ideal Strategy for High-Throughput Flow Injection Analysis by Tandem Mass Spectrometry in Routine Newborn Screening
by: Ilaria Cicalini, et al.
Published: (2021-07-01)

Development of Strategies to Decrease False Positive Results in Newborn Screening
by: Sabrina Malvagia, et al.
Published: (2020-11-01)

Screening for Inborn Errors of Metabolism
by: F.A. Elshaari, et al.
Published: (2013-09-01)

Timing of Newborn Blood Collection Alters Metabolic Disease Screening Performance
by: Gang Peng, et al.
Published: (2021-01-01)

Future Perspectives of Newborn Screening for Inborn Errors of Immunity
by: Maartje Blom, et al.
Published: (2021-11-01)

Inborn errors of amino acid metabolism – from underlying pathophysiology to therapeutic advances
by: Shira G. Ziegler, et al.
Published: (2023-11-01)

Metabolomic Studies in Inborn Errors of Metabolism: Last Years and Future Perspectives
by: Marcello Cossu, et al.
Published: (2023-03-01)

The Prevalence and Incidence of Congenital Phenylketonuria in 59 Countries: A Systematic Review
by: Nastaran Mojibi, et al.
Published: (2021-04-01)

Renal replacement therapy in neonates with an inborn error of metabolism
by: Heeyeon Cho
Published: (2019-02-01)

Screening for organic acidurias and aminoacidopathies in high-risk Brazilian patients: Eleven-year experience of a reference center
by: Moacir Wajner, et al.
Published: (2019-04-01)

Critical Newborn Screens in Double Heterozygotes of Inborn Errors of Metabolism—A Clinical Report and Recommendations
by: Katherine G. Langley, et al.
Published: (2016-11-01)