Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive
Background: Studies that identify children after acute trauma and prospectively track risk/protective factors and trauma responses over time are resource-intensive; small sample sizes often limit power and generalizability. The Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Arc...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2020-12-01
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| Series: | European Journal of Psychotraumatology |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/20008198.2020.1729025 |
| _version_ | 1828065735608369152 |
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| author | Nancy Kassam-Adams Justin A. Kenardy Douglas L. Delahanty Meghan L. Marsac Richard Meiser-Stedman Reginald D. V. Nixon Markus A. Landolt Patrick A. Palmieri |
| author_facet | Nancy Kassam-Adams Justin A. Kenardy Douglas L. Delahanty Meghan L. Marsac Richard Meiser-Stedman Reginald D. V. Nixon Markus A. Landolt Patrick A. Palmieri |
| author_sort | Nancy Kassam-Adams |
| collection | DOAJ |
| description | Background: Studies that identify children after acute trauma and prospectively track risk/protective factors and trauma responses over time are resource-intensive; small sample sizes often limit power and generalizability. The Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive was created to facilitate more robust integrative cross-study data analyses. Objectives: To (a) describe creation of this research resource, including harmonization of key variables; (b) describe key study- and participant-level variables; and (c) examine retention to follow-up across studies. Methods: For the first 30 studies in the Archive, we described study-level (design factors, retention rates) and participant-level (demographic, event, traumatic stress) variables. We used Chi square or ANOVA to examine study- and participant-level variables potentially associated with retention. Results: These 30 prospective studies (N per study = 50 to 568; overall N = 5499) conducted by 15 research teams in 5 countries enrolled children exposed to injury (46%), disaster (24%), violence (13%), traffic accidents (10%), or other acute events. Participants were school-age or adolescent (97%), 60% were male, and approximately half were of minority ethnicity. Using harmonized data from 22 measures, 24% reported significant traumatic stress ≥1 month post-event. Other commonly assessed outcomes included depression (19 studies), internalizing/externalizing symptoms (19), and parent mental health (19). Studies involved 2 to 5 research assessments; 80% of participants were retained for ≥2 assessments. At the study level, greater retention was associated with more planned assessments. At the participant level, adolescents, minority youth, and those of lower socioeconomic status had lower retention rates. Conclusion: This project demonstrates the feasibility and value of bringing together traumatic stress research data and making it available for re-use. As an ongoing research resource, the Archive can promote ‘FAIR’ data practices and facilitate integrated analyses to advance understanding of child traumatic stress. |
| first_indexed | 2024-04-10T23:18:44Z |
| format | Article |
| id | doaj.art-738f5e2c170c4516bda80602c0404cf1 |
| institution | Directory Open Access Journal |
| issn | 2000-8066 |
| language | English |
| last_indexed | 2024-04-10T23:18:44Z |
| publishDate | 2020-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | European Journal of Psychotraumatology |
| spelling | doaj.art-738f5e2c170c4516bda80602c0404cf12023-01-12T15:31:32ZengTaylor & Francis GroupEuropean Journal of Psychotraumatology2000-80662020-12-0111110.1080/20008198.2020.17290251729025Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data ArchiveNancy Kassam-Adams0Justin A. Kenardy1Douglas L. Delahanty2Meghan L. Marsac3Richard Meiser-Stedman4Reginald D. V. Nixon5Markus A. Landolt6Patrick A. Palmieri7Children’s Hospital of Philadelphia and University of Pennsylvania Perelman School of MedicineUniversity of QueenslandKent State UniversityUniversity of KentuckyUniversity of East AngliaFlinders UniversityUniversity of ZurichSumma Health SystemBackground: Studies that identify children after acute trauma and prospectively track risk/protective factors and trauma responses over time are resource-intensive; small sample sizes often limit power and generalizability. The Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive was created to facilitate more robust integrative cross-study data analyses. Objectives: To (a) describe creation of this research resource, including harmonization of key variables; (b) describe key study- and participant-level variables; and (c) examine retention to follow-up across studies. Methods: For the first 30 studies in the Archive, we described study-level (design factors, retention rates) and participant-level (demographic, event, traumatic stress) variables. We used Chi square or ANOVA to examine study- and participant-level variables potentially associated with retention. Results: These 30 prospective studies (N per study = 50 to 568; overall N = 5499) conducted by 15 research teams in 5 countries enrolled children exposed to injury (46%), disaster (24%), violence (13%), traffic accidents (10%), or other acute events. Participants were school-age or adolescent (97%), 60% were male, and approximately half were of minority ethnicity. Using harmonized data from 22 measures, 24% reported significant traumatic stress ≥1 month post-event. Other commonly assessed outcomes included depression (19 studies), internalizing/externalizing symptoms (19), and parent mental health (19). Studies involved 2 to 5 research assessments; 80% of participants were retained for ≥2 assessments. At the study level, greater retention was associated with more planned assessments. At the participant level, adolescents, minority youth, and those of lower socioeconomic status had lower retention rates. Conclusion: This project demonstrates the feasibility and value of bringing together traumatic stress research data and making it available for re-use. As an ongoing research resource, the Archive can promote ‘FAIR’ data practices and facilitate integrated analyses to advance understanding of child traumatic stress.http://dx.doi.org/10.1080/20008198.2020.1729025traumatic stresschild and adolescentfair datadata sharingintegrative data analysis |
| spellingShingle | Nancy Kassam-Adams Justin A. Kenardy Douglas L. Delahanty Meghan L. Marsac Richard Meiser-Stedman Reginald D. V. Nixon Markus A. Landolt Patrick A. Palmieri Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive European Journal of Psychotraumatology traumatic stress child and adolescent fair data data sharing integrative data analysis |
| title | Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive |
| title_full | Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive |
| title_fullStr | Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive |
| title_full_unstemmed | Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive |
| title_short | Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive |
| title_sort | development of an international data repository and research resource the prospective studies of acute child trauma and recovery pact r data archive |
| topic | traumatic stress child and adolescent fair data data sharing integrative data analysis |
| url | http://dx.doi.org/10.1080/20008198.2020.1729025 |
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