Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare
Clinical genomics is a system of multiple stakeholders and institutions. Yet, studies focusing on the comparative perspectives of these stakeholders are limited. This study engages four groups of professionals (clinical geneticists, genetic counselors, laboratory professionals, and researchers) work...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2023-01-01
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| Series: | New Genetics and Society |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/14636778.2023.2192472 |
| _version_ | 1797681235830505472 |
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| author | Yuwan Malakar Justine Lacey Natalie A. Twine Denis C. Bauer |
| author_facet | Yuwan Malakar Justine Lacey Natalie A. Twine Denis C. Bauer |
| author_sort | Yuwan Malakar |
| collection | DOAJ |
| description | Clinical genomics is a system of multiple stakeholders and institutions. Yet, studies focusing on the comparative perspectives of these stakeholders are limited. This study engages four groups of professionals (clinical geneticists, genetic counselors, laboratory professionals, and researchers) working in clinical genomics to investigate their perceptions of the benefits and risks of using genomics in Australian healthcare. The study is underpinned by a risk governance approach. For data collection, qualitative semi-structured interviews were used. Our results show that all professionals unanimously identified that the benefit of clinical genomics lies in improving health outcomes for patients. However, the risks associated with delivering this benefit differed by professional category. We found that the further the profession was from the patient (e.g. researcher) the narrower the perceived risks were amongst the individuals interviewed. However, “privacy” as a perceived risk was ranked highly by all professions indicating a shared desire for responsible data governance practices. |
| first_indexed | 2024-03-11T23:41:45Z |
| format | Article |
| id | doaj.art-73deca2e259f4f299b2611216275e2df |
| institution | Directory Open Access Journal |
| issn | 1463-6778 1469-9915 |
| language | English |
| last_indexed | 2024-03-11T23:41:45Z |
| publishDate | 2023-01-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | New Genetics and Society |
| spelling | doaj.art-73deca2e259f4f299b2611216275e2df2023-09-19T15:22:19ZengTaylor & Francis GroupNew Genetics and Society1463-67781469-99152023-01-0142110.1080/14636778.2023.21924722192472Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcareYuwan Malakar0Justine Lacey1Natalie A. Twine2Denis C. Bauer3Commonwealth Scientific and Industrial Research Organisation (CSIRO)Commonwealth Scientific and Industrial Research Organisation (CSIRO)Commonwealth Scientific and Industrial Research Organisation (CSIRO)Commonwealth Scientific and Industrial Research Organisation (CSIRO)Clinical genomics is a system of multiple stakeholders and institutions. Yet, studies focusing on the comparative perspectives of these stakeholders are limited. This study engages four groups of professionals (clinical geneticists, genetic counselors, laboratory professionals, and researchers) working in clinical genomics to investigate their perceptions of the benefits and risks of using genomics in Australian healthcare. The study is underpinned by a risk governance approach. For data collection, qualitative semi-structured interviews were used. Our results show that all professionals unanimously identified that the benefit of clinical genomics lies in improving health outcomes for patients. However, the risks associated with delivering this benefit differed by professional category. We found that the further the profession was from the patient (e.g. researcher) the narrower the perceived risks were amongst the individuals interviewed. However, “privacy” as a perceived risk was ranked highly by all professions indicating a shared desire for responsible data governance practices.http://dx.doi.org/10.1080/14636778.2023.2192472perceived risksperceived benefitsclinical genomicsrisk governanceaustralia |
| spellingShingle | Yuwan Malakar Justine Lacey Natalie A. Twine Denis C. Bauer Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare New Genetics and Society perceived risks perceived benefits clinical genomics risk governance australia |
| title | Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare |
| title_full | Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare |
| title_fullStr | Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare |
| title_full_unstemmed | Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare |
| title_short | Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare |
| title_sort | applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in australian healthcare |
| topic | perceived risks perceived benefits clinical genomics risk governance australia |
| url | http://dx.doi.org/10.1080/14636778.2023.2192472 |
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