Qualitative measures that assess functional disability and quality of life in ALS

Qualitative measures that assess functional disability and quality of life in ALS

Abstract Background Selection of appropriate trial endpoints and outcome measures is particularly important in rare disease and rapidly progressing disease such as amyotrophic lateral sclerosis (ALS) where the challenges to conducting clinical trials, are substantial: patient and disease heterogenei...

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Main Authors: Susan L. Hartmaier, Thomas Rhodes, Suzanne F. Cook, Courtney Schlusser, Chao Chen, Steve Han, Neta Zach, Venkatesha Murthy, Shreya Davé
Format: Article
Language:English
Published: BMC 2022-01-01
Series:Health and Quality of Life Outcomes
Subjects:
ALS
ALSFRS-R
Clinical trials
Qualitative outcome measures
HRQoL
ALS cognitive screens
Online Access:https://doi.org/10.1186/s12955-022-01919-9

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