Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network

The Emotional Well-Being and Economic Burden (EMOT-ECON) Research Network is one of six research networks funded by the National Institutes of Health (NIH) to advance research about emotional well-being (EWB), and the only one that focuses on addressing how economic burden due to disease or illness...

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Main Authors: Maria Pisu, Margaret I. Liang, Sarah D. Pressman, Carol D. Ryff, Minal R. Patel, Mustafa Hussein, Courtney P. Williams, Nora B. Henrikson, Yu-Mei Schoenberger, Laurel J. Pracht, Erin Bradshaw, Terrell Terri Carpenter, Amy Matthis, David L. Schwartz, Michelle Y. Martin
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-07-01
Series:Frontiers in Psychology
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1196525/full
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author Maria Pisu
Margaret I. Liang
Sarah D. Pressman
Carol D. Ryff
Minal R. Patel
Mustafa Hussein
Courtney P. Williams
Nora B. Henrikson
Yu-Mei Schoenberger
Laurel J. Pracht
Erin Bradshaw
Terrell Terri Carpenter
Amy Matthis
David L. Schwartz
Michelle Y. Martin
author_facet Maria Pisu
Margaret I. Liang
Sarah D. Pressman
Carol D. Ryff
Minal R. Patel
Mustafa Hussein
Courtney P. Williams
Nora B. Henrikson
Yu-Mei Schoenberger
Laurel J. Pracht
Erin Bradshaw
Terrell Terri Carpenter
Amy Matthis
David L. Schwartz
Michelle Y. Martin
author_sort Maria Pisu
collection DOAJ
description The Emotional Well-Being and Economic Burden (EMOT-ECON) Research Network is one of six research networks funded by the National Institutes of Health (NIH) to advance research about emotional well-being (EWB), and the only one that focuses on addressing how economic burden due to disease or illness affects EWB. The network convened researchers, patients, patient advocates, health care providers and other stakeholders from across the US to discuss the significance of addressing the impact of the economic burden of disease on EWB, the complexity of this prevalent problem for patients and families, and the research gaps that still need to be studied to ultimately develop strategies to reduce the impact of economic burden of disease on EWB and health. Participants identified some important future areas of research as those investigating: (i) prevalent and relevant emotions for patients experiencing economic burden of disease and financial hardship, and how their broader outlook on life is impacted; (ii) constructs and contexts that influence whether the economic burden is stressful; (iii) strategies to deal and cope and their positive or negative effects on EWB and health; and (iv) multi-level and multi-stakeholder interventions to address economic factors (e.g., costs, ability to pay), administrative burdens, education and training, and especially patients’ emotional as well as financial status.
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spelling doaj.art-751fcf22b7aa48cd9bea8f7fcc3d0af72023-07-28T11:08:28ZengFrontiers Media S.A.Frontiers in Psychology1664-10782023-07-011410.3389/fpsyg.2023.11965251196525Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research NetworkMaria Pisu0Margaret I. Liang1Sarah D. Pressman2Carol D. Ryff3Minal R. Patel4Mustafa Hussein5Courtney P. Williams6Nora B. Henrikson7Yu-Mei Schoenberger8Laurel J. Pracht9Erin Bradshaw10Terrell Terri Carpenter11Amy Matthis12David L. Schwartz13Michelle Y. Martin14Division of Preventive Medicine and O’Neal Comprehensive Cancer Center, University of Alabama at Birmingham, Birmingham, AL, United StatesDivision of Gynecologic Oncology, Department of Obstetrics and Gynecology, Cedars-Sinai Medical Center, Los Angeles, CA, United StatesDepartment of Psychological Science, University of California, Irvine, Irvine, CA, United StatesDepartment of Psychology and Institute on Aging, University of Wisconsin-Madison, Madison, WI, United StatesDepartment of Health Behavior and Health Education, School of Public Health, University of Michigan, Ann Arbor, MI, United StatesDepartment of Health Policy and Management, Graduate School of Public Health, The City University of New York, New York, NY, United StatesDivision of Preventive Medicine and O’Neal Comprehensive Cancer Center, University of Alabama at Birmingham, Birmingham, AL, United StatesKaiser Permanente, Washington Health Research Institute, Seattle, WA, United StatesDivision of Preventive Medicine and O’Neal Comprehensive Cancer Center, University of Alabama at Birmingham, Birmingham, AL, United StatesOvarian Cancer Research Alliance, New York, NY, United StatesPatient Advocate Foundation, Patient Insight Institute, Hampton, VA, United States0Carpenter Primary Healthcare, Memphis, TN, United States1American Diabetes Association, Alexandria, VA, United States2Departments of Radiation Oncology and Preventive Medicine, University of Tennessee Health Science Center, Memphis, TN, United States3Department of Preventive Medicine and Center for Innovation in Health Equity Research, University of Tennessee Health Science Center, Memphis, TN, United StatesThe Emotional Well-Being and Economic Burden (EMOT-ECON) Research Network is one of six research networks funded by the National Institutes of Health (NIH) to advance research about emotional well-being (EWB), and the only one that focuses on addressing how economic burden due to disease or illness affects EWB. The network convened researchers, patients, patient advocates, health care providers and other stakeholders from across the US to discuss the significance of addressing the impact of the economic burden of disease on EWB, the complexity of this prevalent problem for patients and families, and the research gaps that still need to be studied to ultimately develop strategies to reduce the impact of economic burden of disease on EWB and health. Participants identified some important future areas of research as those investigating: (i) prevalent and relevant emotions for patients experiencing economic burden of disease and financial hardship, and how their broader outlook on life is impacted; (ii) constructs and contexts that influence whether the economic burden is stressful; (iii) strategies to deal and cope and their positive or negative effects on EWB and health; and (iv) multi-level and multi-stakeholder interventions to address economic factors (e.g., costs, ability to pay), administrative burdens, education and training, and especially patients’ emotional as well as financial status.https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1196525/fullemotional well-beingmedical financial hardshipeconomic burden of diseasefinancial toxicitynetwork
spellingShingle Maria Pisu
Margaret I. Liang
Sarah D. Pressman
Carol D. Ryff
Minal R. Patel
Mustafa Hussein
Courtney P. Williams
Nora B. Henrikson
Yu-Mei Schoenberger
Laurel J. Pracht
Erin Bradshaw
Terrell Terri Carpenter
Amy Matthis
David L. Schwartz
Michelle Y. Martin
Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network
Frontiers in Psychology
emotional well-being
medical financial hardship
economic burden of disease
financial toxicity
network
title Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network
title_full Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network
title_fullStr Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network
title_full_unstemmed Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network
title_short Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network
title_sort expanding research on the impact of financial hardship on emotional well being guidance of diverse stakeholders to the emotional well being and economic burden of disease emot econ research network
topic emotional well-being
medical financial hardship
economic burden of disease
financial toxicity
network
url https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1196525/full
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