Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom
Plain English summary In more and more projects, researchers and young people are working together in partnership; but there is little guidance about how to organize this partnership. In this paper, we share what partnerships in six projects from Canada, Netherlands, and United Kingdom looked like,...
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| Format: | Article |
| Language: | English |
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BMC
2022-11-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-022-00400-7 |
| _version_ | 1798016752473341952 |
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| author | Linda Nguyen Bente van Oort Hanae Davis Eline van der Meulen Claire Dawe-McCord Anita Franklin Jan Willem Gorter Christopher Morris Marjolijn Ketelaar |
| author_facet | Linda Nguyen Bente van Oort Hanae Davis Eline van der Meulen Claire Dawe-McCord Anita Franklin Jan Willem Gorter Christopher Morris Marjolijn Ketelaar |
| author_sort | Linda Nguyen |
| collection | DOAJ |
| description | Plain English summary In more and more projects, researchers and young people are working together in partnership; but there is little guidance about how to organize this partnership. In this paper, we share what partnerships in six projects from Canada, Netherlands, and United Kingdom looked like, so that others can be inspired. To do so, a researcher and a young partner from each project were asked to together: (1) describe their project, (2) summarize the practical details about the collaboration and (3) think about things that went well or could be improved. We found that all projects had the same beliefs important to partnerships, like having respect for each other. Young people could work on parts of the project they liked in a way that worked for them. They were supported by staff, could join meetings and were appreciated for their work. Clear communication during and in-between meetings was helpful. Youth were often asked about the role they wanted in the project. While there was often no formal training on how to do research, there were many opportunities to learn. We offer six recommendations to researchers and young people who want to partner together: (1) It is okay to not know what the partnership will look like and there is no single recipe of how to partner; (2) Take your time; (3) Discuss how the partnership is going; (4) Think about who is doing what and why; (5) Consider the diversity of young partners. We hope others will share their experiences. |
| first_indexed | 2024-04-11T15:54:42Z |
| format | Article |
| id | doaj.art-75338d2ceaa647bf95edeef37bd63f43 |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-04-11T15:54:42Z |
| publishDate | 2022-11-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-75338d2ceaa647bf95edeef37bd63f432022-12-22T04:15:11ZengBMCResearch Involvement and Engagement2056-75292022-11-018111410.1186/s40900-022-00400-7Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United KingdomLinda Nguyen0Bente van Oort1Hanae Davis2Eline van der Meulen3Claire Dawe-McCord4Anita Franklin5Jan Willem Gorter6Christopher Morris7Marjolijn Ketelaar8School of Rehabilitation Science, McMaster UniversityThe Netherlands Organisation for Health Research and DevelopmentSibling Youth Advisory CouncilSupervisory board of Stichting JongPITCumming School of Medicine, University of CalgarySchool of Education and Sociology, University of PortsmouthSchool of Rehabilitation Science, McMaster UniversityPenCRU (Peninsula Childhood Disability Research Unit), University of Exeter Medical School, University of ExeterUMC Utrecht Brain Center, University Medical Center UtrechtPlain English summary In more and more projects, researchers and young people are working together in partnership; but there is little guidance about how to organize this partnership. In this paper, we share what partnerships in six projects from Canada, Netherlands, and United Kingdom looked like, so that others can be inspired. To do so, a researcher and a young partner from each project were asked to together: (1) describe their project, (2) summarize the practical details about the collaboration and (3) think about things that went well or could be improved. We found that all projects had the same beliefs important to partnerships, like having respect for each other. Young people could work on parts of the project they liked in a way that worked for them. They were supported by staff, could join meetings and were appreciated for their work. Clear communication during and in-between meetings was helpful. Youth were often asked about the role they wanted in the project. While there was often no formal training on how to do research, there were many opportunities to learn. We offer six recommendations to researchers and young people who want to partner together: (1) It is okay to not know what the partnership will look like and there is no single recipe of how to partner; (2) Take your time; (3) Discuss how the partnership is going; (4) Think about who is doing what and why; (5) Consider the diversity of young partners. We hope others will share their experiences.https://doi.org/10.1186/s40900-022-00400-7InvolvementPartnershipDisability researchYoung peopleAdolescents and young adultsParticipatory research |
| spellingShingle | Linda Nguyen Bente van Oort Hanae Davis Eline van der Meulen Claire Dawe-McCord Anita Franklin Jan Willem Gorter Christopher Morris Marjolijn Ketelaar Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom Research Involvement and Engagement Involvement Partnership Disability research Young people Adolescents and young adults Participatory research |
| title | Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom |
| title_full | Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom |
| title_fullStr | Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom |
| title_full_unstemmed | Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom |
| title_short | Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom |
| title_sort | exploring the how in research partnerships with young partners by experience lessons learned in six projects from canada the netherlands and the united kingdom |
| topic | Involvement Partnership Disability research Young people Adolescents and young adults Participatory research |
| url | https://doi.org/10.1186/s40900-022-00400-7 |
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