Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities

IntroductionCaregiver preparedness is defined as the perceived preparation of caregivers to care for the physical and emotional needs of the patient.PurposeThis study investigated caregiver preparedness and its influences on caregiver burden, depression, and quality of life (QoL) in caregivers of in...

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Main Authors: Kyeong Eun Uhm, Heeyoune Jung, Min Woo Woo, Hyo Eun Kwon, Mooyeon Oh-Park, Bo Ram Lee, Eun Joo Kim, Jung Hwan Kim, Seung Ah Lee, Jongmin Lee
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-07-01
Series:Frontiers in Public Health
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fpubh.2023.1153588/full
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author Kyeong Eun Uhm
Heeyoune Jung
Min Woo Woo
Hyo Eun Kwon
Mooyeon Oh-Park
Bo Ram Lee
Eun Joo Kim
Jung Hwan Kim
Seung Ah Lee
Jongmin Lee
author_facet Kyeong Eun Uhm
Heeyoune Jung
Min Woo Woo
Hyo Eun Kwon
Mooyeon Oh-Park
Bo Ram Lee
Eun Joo Kim
Jung Hwan Kim
Seung Ah Lee
Jongmin Lee
author_sort Kyeong Eun Uhm
collection DOAJ
description IntroductionCaregiver preparedness is defined as the perceived preparation of caregivers to care for the physical and emotional needs of the patient.PurposeThis study investigated caregiver preparedness and its influences on caregiver burden, depression, and quality of life (QoL) in caregivers of individuals with disabilities.MethodsWe conducted a multicenter cross-sectional survey study on caregivers caring for patients with disabilities. Sociodemographic characteristics were collected via questionnaires. The Preparedness for Caregiving Scale (PCS), Burden Interview (BI), Center for Epidemiologic Studies Depression Scale (CES-D), and EuroQol-Visual Analogue Scale (EQ-VAS) were administered.ResultsA total of 151 caregivers were enrolled. The mean age of caregivers was 53.7 ± 12.4 years, and 80.8% were female. The majority of participants were the main caregivers of patients with stroke, spinal cord injury, or traumatic brain injury. The mean PCS score was 2.1 ± 0.9, demonstrating significant relationships with BI (r = −0.512, p < 0.001), CES-D (r = −0.622, p < 0.001), and EQ-VAS (r = 0.441, p < 0.001). The CES-D was significantly associated with the PCS after controlling other variables. However, PCS did not show any correlation with the duration of caregiving or amount of time spent per day on caregiving.DiscussionThe clinical implications of this study are that higher caregiver preparedness is a predictor of less caregiver burden and depression, and better QoL. However, preparedness did not increase as the duration or time spent on caregiving was extended. Therefore, efforts to enhance the caregivers’ preparedness are required to reduce caregiver burden and improve health outcomes for both caregivers and patients.
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spelling doaj.art-7535d5cb28e24c5fbebf1460d09134322023-07-26T06:39:51ZengFrontiers Media S.A.Frontiers in Public Health2296-25652023-07-011110.3389/fpubh.2023.11535881153588Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilitiesKyeong Eun Uhm0Heeyoune Jung1Min Woo Woo2Hyo Eun Kwon3Mooyeon Oh-Park4Bo Ram Lee5Eun Joo Kim6Jung Hwan Kim7Seung Ah Lee8Jongmin Lee9Department of Rehabilitation Medicine, Konkuk University Medical Center, Seoul, Republic of KoreaDepartment of Rehabilitation Medicine, National Traffic Injury Rehabilitation Hospital, Yangpyeong, Republic of KoreaDepartment of Rehabilitation Medicine, Konkuk University Medical Center, Seoul, Republic of KoreaDepartment of Rehabilitation Medicine, Konkuk University Medical Center, Seoul, Republic of KoreaBurke Rehabilitation Hospital, Montefiore Health System, White Plains, NY, United StatesDepartment of Psychiatry, Cheil Hospital, Seoul, Republic of KoreaDepartment of Rehabilitation Medicine, National Rehabilitation Center, Seoul, Republic of KoreaDepartment of Rehabilitation Medicine, National Rehabilitation Center, Seoul, Republic of KoreaDepartment of Physical Medicine and Rehabilitation, College of Medicine, Kyung Hee University, Seoul, Republic of KoreaDepartment of Rehabilitation Medicine, Konkuk University Medical Center, Seoul, Republic of KoreaIntroductionCaregiver preparedness is defined as the perceived preparation of caregivers to care for the physical and emotional needs of the patient.PurposeThis study investigated caregiver preparedness and its influences on caregiver burden, depression, and quality of life (QoL) in caregivers of individuals with disabilities.MethodsWe conducted a multicenter cross-sectional survey study on caregivers caring for patients with disabilities. Sociodemographic characteristics were collected via questionnaires. The Preparedness for Caregiving Scale (PCS), Burden Interview (BI), Center for Epidemiologic Studies Depression Scale (CES-D), and EuroQol-Visual Analogue Scale (EQ-VAS) were administered.ResultsA total of 151 caregivers were enrolled. The mean age of caregivers was 53.7 ± 12.4 years, and 80.8% were female. The majority of participants were the main caregivers of patients with stroke, spinal cord injury, or traumatic brain injury. The mean PCS score was 2.1 ± 0.9, demonstrating significant relationships with BI (r = −0.512, p < 0.001), CES-D (r = −0.622, p < 0.001), and EQ-VAS (r = 0.441, p < 0.001). The CES-D was significantly associated with the PCS after controlling other variables. However, PCS did not show any correlation with the duration of caregiving or amount of time spent per day on caregiving.DiscussionThe clinical implications of this study are that higher caregiver preparedness is a predictor of less caregiver burden and depression, and better QoL. However, preparedness did not increase as the duration or time spent on caregiving was extended. Therefore, efforts to enhance the caregivers’ preparedness are required to reduce caregiver burden and improve health outcomes for both caregivers and patients.https://www.frontiersin.org/articles/10.3389/fpubh.2023.1153588/fullcaregiverscaregiver burdendepressionpreparednessquality of life
spellingShingle Kyeong Eun Uhm
Heeyoune Jung
Min Woo Woo
Hyo Eun Kwon
Mooyeon Oh-Park
Bo Ram Lee
Eun Joo Kim
Jung Hwan Kim
Seung Ah Lee
Jongmin Lee
Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities
Frontiers in Public Health
caregivers
caregiver burden
depression
preparedness
quality of life
title Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities
title_full Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities
title_fullStr Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities
title_full_unstemmed Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities
title_short Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities
title_sort influence of preparedness on caregiver burden depression and quality of life in caregivers of people with disabilities
topic caregivers
caregiver burden
depression
preparedness
quality of life
url https://www.frontiersin.org/articles/10.3389/fpubh.2023.1153588/full
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