Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System
ObjectivesThe demand for hospice has been increasing among patients with cancer. This study examined the current hospice referral scenario for terminally ill cancer patients and created a data form to collect hospice information and a modified health information exchange (HIE) form for a more effici...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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The Korean Society of Medical Informatics
2018-10-01
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| Series: | Healthcare Informatics Research |
| Subjects: | |
| Online Access: | http://e-hir.org/upload/pdf/hir-24-317.pdf |
| _version_ | 1798025710501101568 |
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| author | Kahyun Lim Jeong-Whun Kim Sooyoung Yoo Eunyoung Heo Hyerim Ji Beodeul Kang |
| author_facet | Kahyun Lim Jeong-Whun Kim Sooyoung Yoo Eunyoung Heo Hyerim Ji Beodeul Kang |
| author_sort | Kahyun Lim |
| collection | DOAJ |
| description | ObjectivesThe demand for hospice has been increasing among patients with cancer. This study examined the current hospice referral scenario for terminally ill cancer patients and created a data form to collect hospice information and a modified health information exchange (HIE) form for a more efficient referral system for terminally ill cancer patients.MethodsSurveys were conducted asking detailed information such as medical instruments and patient admission policies of hospices, and interviews were held to examine the current referral flow and any additional requirements. A task force team was organized to analyze the results of the interviews and surveys.ResultsSix hospices completed the survey, and 3 physicians, 2 nurses, and 2 hospital staff from a tertiary hospital were interviewed. Seven categories were defined as essential for establishing hospice data. Ten categories and 40 data items were newly suggested for the existing HIE document form. An implementation guide for the Consolidated Clinical Document Architecture developed by Health Level 7 (HL7 CCDA) was also proposed. It is an international standard for interoperability that provides a framework for the exchange, integration, sharing, and retrieval of electronic health information. Based on these changes, a hospice referral scenario for terminally ill cancer patients was designed.ConclusionsOur findings show potential improvements that can be made to the current hospice referral system for terminally ill cancer patients. To make the referral system useful in practice, governmental efforts and investments are needed. |
| first_indexed | 2024-04-11T18:23:14Z |
| format | Article |
| id | doaj.art-757a4a75b7c3457297da5ceed0cbe208 |
| institution | Directory Open Access Journal |
| issn | 2093-3681 2093-369X |
| language | English |
| last_indexed | 2024-04-11T18:23:14Z |
| publishDate | 2018-10-01 |
| publisher | The Korean Society of Medical Informatics |
| record_format | Article |
| series | Healthcare Informatics Research |
| spelling | doaj.art-757a4a75b7c3457297da5ceed0cbe2082022-12-22T04:09:43ZengThe Korean Society of Medical InformaticsHealthcare Informatics Research2093-36812093-369X2018-10-0124431732610.4258/hir.2018.24.4.317921Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange SystemKahyun Lim0Jeong-Whun Kim1Sooyoung Yoo2Eunyoung Heo3Hyerim Ji4Beodeul Kang5Office of e-Health Research and Business, Seoul National University Bundang Hospital, Seongnam, .KoreaDepartment of Otorhinolaryngology, Seoul National University Bundang Hospital, Seongnam, .KoreaOffice of e-Health Research and Business, Seoul National University Bundang Hospital, Seongnam, .KoreaOffice of e-Health Research and Business, Seoul National University Bundang Hospital, Seongnam, .KoreaOffice of e-Health Research and Business, Seoul National University Bundang Hospital, Seongnam, .KoreaDivision of Medical Oncology, Department of Internal Medicine, Yonsei Cancer Center, Yonsei University College of Medicine, Seoul, .KoreaObjectivesThe demand for hospice has been increasing among patients with cancer. This study examined the current hospice referral scenario for terminally ill cancer patients and created a data form to collect hospice information and a modified health information exchange (HIE) form for a more efficient referral system for terminally ill cancer patients.MethodsSurveys were conducted asking detailed information such as medical instruments and patient admission policies of hospices, and interviews were held to examine the current referral flow and any additional requirements. A task force team was organized to analyze the results of the interviews and surveys.ResultsSix hospices completed the survey, and 3 physicians, 2 nurses, and 2 hospital staff from a tertiary hospital were interviewed. Seven categories were defined as essential for establishing hospice data. Ten categories and 40 data items were newly suggested for the existing HIE document form. An implementation guide for the Consolidated Clinical Document Architecture developed by Health Level 7 (HL7 CCDA) was also proposed. It is an international standard for interoperability that provides a framework for the exchange, integration, sharing, and retrieval of electronic health information. Based on these changes, a hospice referral scenario for terminally ill cancer patients was designed.ConclusionsOur findings show potential improvements that can be made to the current hospice referral system for terminally ill cancer patients. To make the referral system useful in practice, governmental efforts and investments are needed.http://e-hir.org/upload/pdf/hir-24-317.pdfhospicesreferral and consultationhealth information exchangecancer care facilitiesmethodological study |
| spellingShingle | Kahyun Lim Jeong-Whun Kim Sooyoung Yoo Eunyoung Heo Hyerim Ji Beodeul Kang Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System Healthcare Informatics Research hospices referral and consultation health information exchange cancer care facilities methodological study |
| title | Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System |
| title_full | Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System |
| title_fullStr | Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System |
| title_full_unstemmed | Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System |
| title_short | Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System |
| title_sort | design of a hospice referral system for terminally ill cancer patients using a standards based health information exchange system |
| topic | hospices referral and consultation health information exchange cancer care facilities methodological study |
| url | http://e-hir.org/upload/pdf/hir-24-317.pdf |
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