Should Health Systems Share Genetic Findings With At-Risk Relatives When the Proband Is Deceased? Interviews With Individuals Diagnosed With Lynch Syndrome

Should Health Systems Share Genetic Findings With At-Risk Relatives When the Proband Is Deceased? Interviews With Individuals Diagnosed With Lynch Syndrome

Purpose: Genetic information has health implications for patients and their biological relatives. Death of a patient before sharing a genetic diagnosis with at-risk relatives is a missed opportunity to provide important information that could guide interventions to minimize cancer-related morbidity...

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Bibliographic Details
Main Authors: Jessica Ezzell Hunter, Jennifer L. Schneider, Alison J. Firemark, James V. Davis, Sara Gille, Pamala A. Pawloski, Su-Ying Liang, Victoria Schlieder, Alanna Kulchak Rahm
Format: Article
Language:English
Published: Advocate Aurora Health 2022-10-01
Series:Journal of Patient-Centered Research and Reviews
Subjects:
lynch syndrome
medical genetics
postmortem disclosure
family communication
bioethics
Online Access:https://institutionalrepository.aah.org/cgi/viewcontent.cgi?article=1945&context=jpcrr

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