Experiences of patients and family members with follow-up care, information needs and provider support after identification of Lynch Syndrome

Abstract Background Lynch Syndrome is among the most common hereditary cancer syndromes and requires ongoing cancer surveillance, repeated screenings and potential risk-reducing surgeries. Despite the importance of continued surveillance, there is limited understanding of patient experiences after i...

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Bibliographic Details
Main Authors: Ryan Mooney, Yelena P. Wu, Kelsey Kehoe, Molly Volkmar, Wendy Kohlmann, Cathryn Koptiuch, Kimberly A Kaphingst
Format: Article
Language:English
Published: BMC 2023-12-01
Series:Hereditary Cancer in Clinical Practice
Subjects:
Online Access:https://doi.org/10.1186/s13053-023-00273-1

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