Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study

Purpose: A growing body of scientific evidence supports the role of food and diet in the pathogenesis and management of inflammatory bowel diseases (IBD). However, little is known about the role of food and diet from the perspectives of pediatric patients and their parents. This study aimed to explo...

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Main Authors: Kim H. Chuong, Jennie Haw, Alain Stintzi, David R. Mack, Kieran C. O’Doherty
Format: Article
Language:English
Published: Taylor & Francis Group 2019-01-01
Series:International Journal of Qualitative Studies on Health & Well-Being
Subjects:
Online Access:http://dx.doi.org/10.1080/17482631.2019.1648945
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author Kim H. Chuong
Jennie Haw
Alain Stintzi
David R. Mack
Kieran C. O’Doherty
author_facet Kim H. Chuong
Jennie Haw
Alain Stintzi
David R. Mack
Kieran C. O’Doherty
author_sort Kim H. Chuong
collection DOAJ
description Purpose: A growing body of scientific evidence supports the role of food and diet in the pathogenesis and management of inflammatory bowel diseases (IBD). However, little is known about the role of food and diet from the perspectives of pediatric patients and their parents. This study aimed to explore how children and adolescents with IBD and their parents coped with the illness through food and diet in their daily lives. Methods: We conducted semi-structured interviews with 28 children and adolescents with IBD, 26 parents and one grandparent. Results: Two major themes, dietary strategies and family food practices, were identified through thematic analysis. There were three types of dietary strategies: food avoidance and moderation; following a specific diet; and healthy eating. For family food practices, two subthemes were identified: impact on grocery shopping, meal planning, and cooking; and maintaining routine and normality. Conclusions: Our findings have important implications for the clinical care of pediatric IBD. Notably, IBD not only influenced the food practices of the pediatric patients, but also their parents and other family members. Healthcare professionals should consider the family unit when giving nutritional advice or developing nutritional guidelines. Personalized nutritional counselling and ongoing nutritional assessment are also warranted.
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spelling doaj.art-76237031234045a9872760aacd76eab72024-02-01T14:39:34ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312019-01-0114110.1080/17482631.2019.16489451648945Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview studyKim H. Chuong0Jennie Haw1Alain Stintzi2David R. Mack3Kieran C. O’Doherty4University of GuelphUniversity of GuelphUniversity of OttawaUniversity of OttawaUniversity of GuelphPurpose: A growing body of scientific evidence supports the role of food and diet in the pathogenesis and management of inflammatory bowel diseases (IBD). However, little is known about the role of food and diet from the perspectives of pediatric patients and their parents. This study aimed to explore how children and adolescents with IBD and their parents coped with the illness through food and diet in their daily lives. Methods: We conducted semi-structured interviews with 28 children and adolescents with IBD, 26 parents and one grandparent. Results: Two major themes, dietary strategies and family food practices, were identified through thematic analysis. There were three types of dietary strategies: food avoidance and moderation; following a specific diet; and healthy eating. For family food practices, two subthemes were identified: impact on grocery shopping, meal planning, and cooking; and maintaining routine and normality. Conclusions: Our findings have important implications for the clinical care of pediatric IBD. Notably, IBD not only influenced the food practices of the pediatric patients, but also their parents and other family members. Healthcare professionals should consider the family unit when giving nutritional advice or developing nutritional guidelines. Personalized nutritional counselling and ongoing nutritional assessment are also warranted.http://dx.doi.org/10.1080/17482631.2019.1648945childrenchronic illnessdiethealthy eatinginflammatory bowel diseasenutritionthematic analysis
spellingShingle Kim H. Chuong
Jennie Haw
Alain Stintzi
David R. Mack
Kieran C. O’Doherty
Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study
International Journal of Qualitative Studies on Health & Well-Being
children
chronic illness
diet
healthy eating
inflammatory bowel disease
nutrition
thematic analysis
title Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study
title_full Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study
title_fullStr Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study
title_full_unstemmed Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study
title_short Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study
title_sort dietary strategies and food practices of pediatric patients and their parents living with inflammatory bowel disease a qualitative interview study
topic children
chronic illness
diet
healthy eating
inflammatory bowel disease
nutrition
thematic analysis
url http://dx.doi.org/10.1080/17482631.2019.1648945
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