Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention
Abstract Background Internationally, it has been stressed that advance care planning integrated within kidney services can lead to more patients being involved in decisions for end-of-life care. In Denmark, there is no systematic approach to advance care planning and end-of-life care interventions w...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2022-10-01
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| Series: | Pilot and Feasibility Studies |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40814-022-01184-z |
| _version_ | 1811194916671324160 |
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| author | Louise Engelbrecht Buur Jeanette Finderup Henning Søndergaard Michell Kannegaard Jens Kristian Madsen Hilary Louise Bekker |
| author_facet | Louise Engelbrecht Buur Jeanette Finderup Henning Søndergaard Michell Kannegaard Jens Kristian Madsen Hilary Louise Bekker |
| author_sort | Louise Engelbrecht Buur |
| collection | DOAJ |
| description | Abstract Background Internationally, it has been stressed that advance care planning integrated within kidney services can lead to more patients being involved in decisions for end-of-life care. In Denmark, there is no systematic approach to advance care planning and end-of-life care interventions within kidney services. A shared decision-making intervention for planning end-of-life care may support more effective treatment management between patients with end-stage kidney disease, their relatives and the health professionals. The purpose of this research is to find evidence to design a shared decision-making intervention and test its acceptability to patients with end-stage kidney disease, their relatives, and health professionals in Danish kidney services. Methods This research project will be conducted from November 2020 to November 2023 and is structured according to the UK Medical Research Council framework for complex intervention design and evaluation research. The development phase research includes mixed method surveys. First, a systematic literature review synthesising primary empirical evidence of patient-involvement interventions for patients with end-stage kidney disease making end-of-life care decisions will be conducted. Second, interview methods will be carried out with patients with end-stage kidney disease, relatives, and health professionals to identify experiences of involvement in decision-making and decisional needs when planning end-of-life care. Findings will inform the co-design of the shared decision-making intervention using an iterative process with our multiple-stakeholder steering committee. A pilot test across five kidney units assessing if the shared decision-making intervention is acceptable and feasible to patients, relatives, and health professionals providing services to support delivery of care in kidney services. Discussion This research will provide evidence informing the content and design of a shared decision-making intervention supporting patient-professional planning of end-of-life care for patients with end-stage kidney disease, and assessing its acceptability and feasibility when integrated within Danish kidney units. This research is the first step to innovating the involvement of patients in end-of-life care planning with kidney professionals. |
| first_indexed | 2024-04-12T00:35:18Z |
| format | Article |
| id | doaj.art-764bfa3d242343d7ba4326817f90c2eb |
| institution | Directory Open Access Journal |
| issn | 2055-5784 |
| language | English |
| last_indexed | 2024-04-12T00:35:18Z |
| publishDate | 2022-10-01 |
| publisher | BMC |
| record_format | Article |
| series | Pilot and Feasibility Studies |
| spelling | doaj.art-764bfa3d242343d7ba4326817f90c2eb2022-12-22T03:55:11ZengBMCPilot and Feasibility Studies2055-57842022-10-01811910.1186/s40814-022-01184-zShared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex interventionLouise Engelbrecht Buur0Jeanette Finderup1Henning Søndergaard2Michell Kannegaard3Jens Kristian Madsen4Hilary Louise Bekker5Department of Renal Medicine, Aarhus University HospitalDepartment of Renal Medicine, Aarhus University HospitalThe Danish Kidney AssociationProfession School UCN act2learnDepartment of Renal Medicine, Aarhus University HospitalResCenPI-Research Centre for Patient Involvement, Aarhus University & the Central Denmark RegionAbstract Background Internationally, it has been stressed that advance care planning integrated within kidney services can lead to more patients being involved in decisions for end-of-life care. In Denmark, there is no systematic approach to advance care planning and end-of-life care interventions within kidney services. A shared decision-making intervention for planning end-of-life care may support more effective treatment management between patients with end-stage kidney disease, their relatives and the health professionals. The purpose of this research is to find evidence to design a shared decision-making intervention and test its acceptability to patients with end-stage kidney disease, their relatives, and health professionals in Danish kidney services. Methods This research project will be conducted from November 2020 to November 2023 and is structured according to the UK Medical Research Council framework for complex intervention design and evaluation research. The development phase research includes mixed method surveys. First, a systematic literature review synthesising primary empirical evidence of patient-involvement interventions for patients with end-stage kidney disease making end-of-life care decisions will be conducted. Second, interview methods will be carried out with patients with end-stage kidney disease, relatives, and health professionals to identify experiences of involvement in decision-making and decisional needs when planning end-of-life care. Findings will inform the co-design of the shared decision-making intervention using an iterative process with our multiple-stakeholder steering committee. A pilot test across five kidney units assessing if the shared decision-making intervention is acceptable and feasible to patients, relatives, and health professionals providing services to support delivery of care in kidney services. Discussion This research will provide evidence informing the content and design of a shared decision-making intervention supporting patient-professional planning of end-of-life care for patients with end-stage kidney disease, and assessing its acceptability and feasibility when integrated within Danish kidney units. This research is the first step to innovating the involvement of patients in end-of-life care planning with kidney professionals.https://doi.org/10.1186/s40814-022-01184-zEnd-stage kidney diseaseShared decision-makingAdvance care planningEnd of life carePalliative careKidney services |
| spellingShingle | Louise Engelbrecht Buur Jeanette Finderup Henning Søndergaard Michell Kannegaard Jens Kristian Madsen Hilary Louise Bekker Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention Pilot and Feasibility Studies End-stage kidney disease Shared decision-making Advance care planning End of life care Palliative care Kidney services |
| title | Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention |
| title_full | Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention |
| title_fullStr | Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention |
| title_full_unstemmed | Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention |
| title_short | Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention |
| title_sort | shared decision making and planning end of life care for patients with end stage kidney disease a protocol for developing and testing a complex intervention |
| topic | End-stage kidney disease Shared decision-making Advance care planning End of life care Palliative care Kidney services |
| url | https://doi.org/10.1186/s40814-022-01184-z |
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