Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design Approach

Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design Approach

Background: Huntington's disease (HD) is an autosomal dominant neurodegenerative disease that affects the quality of life (QoL) of HD gene expansion carriers (HDGECs) and their partners. Although HD expertise centers have been emerging across Europe, there are still some important barriers to c...

Full description

Bibliographic Details
Main Authors: Pearl J. C. van Lonkhuizen, Niko J. H. Vegt, Eline Meijer, Erik van Duijn, Susanne T. de Bot, Jiří Klempíř, Wiebke Frank, G. Bernhard Landwehrmeyer, Alzbeta Mühlbäck, Jennifer Hoblyn, Ferdinando Squitieri, Peter Foley, Niels H. Chavannes, Anne-Wil Heemskerk
Format: Article
Language:English
Published: Frontiers Media S.A. 2021-09-01
Series:Frontiers in Neurology
Subjects:
Huntington disease
neurodegenerative diseases
telemedicine
eHealth
user-centered design
quality of life
Online Access:https://www.frontiersin.org/articles/10.3389/fneur.2021.719460/full

Similar Items

Similar Items