A systematic scoping review of the domains and innovations in secondary uses of digitised health-related data
Background: Substantial investments are being made in health information technology (HIT) based on assumptions that these systems will save costs through increased quality, safety and efficiency of care provision. Whilst short-term benefits have often proven difficult to demonstrate, there is in...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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BCS, The Chartered Institute for IT
2016-11-01
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| Series: | Journal of Innovation in Health Informatics |
| Subjects: | |
| Online Access: | https://hijournal.bcs.org/index.php/jhi/article/view/841 |
| _version_ | 1828228767292588032 |
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| author | Ann R R Robertson Ulugbek Nurmatov Harpreet S. Sood Kathrin Cresswell Pam Smith Aziz Sheikh |
| author_facet | Ann R R Robertson Ulugbek Nurmatov Harpreet S. Sood Kathrin Cresswell Pam Smith Aziz Sheikh |
| author_sort | Ann R R Robertson |
| collection | DOAJ |
| description | Background: Substantial investments are being made in health information technology (HIT) based on assumptions that these systems will save costs through increased quality, safety and efficiency of care provision. Whilst short-term benefits have often proven difficult to demonstrate, there is increasing interest in achieving benefits in the medium and long term through secondary uses of HIT-derived data.
Aims: We aimed to describe the range of secondary uses of HIT-derived data in the international literature and identify innovative developments of particular relevance to UK policymakers and managers.
Methods: We searched nine electronic databases to conduct a systematic scoping review of the international literature and augmented this by consulting a range of experts in the field.
Results: Reviewers independently screened 16,806 titles, resulting in 583 eligible studies for inclusion. Thematic organisation of reported secondary uses was validated during expert consultation (n = 23). A primary division was made between patient-identifiable data and datasets in which individuals were not identified. Secondary uses were then categorised under four domain headings of: i) research; ii) quality and safety of care provision; iii) financial management; and iv) healthcare professional education. We found that innovative developments were most evident in research where, in particular, dataset linkage studies offered important opportunities for exploitation.
Conclusions: Distinguishing patient-identifiable data from aggregated, de-identified datasets gives greater conceptual clarity in secondary uses of HIT-derived data. Secondary uses research has substantial potential for realising future benefits through generating new medical knowledge from dataset linkage studies, developing precision medicine and enabling cross-sectoral, evidence-based policymaking to benefit population-level well-being. |
| first_indexed | 2024-04-12T18:24:30Z |
| format | Article |
| id | doaj.art-76cd1a0181d4408e9bf02882af8d12af |
| institution | Directory Open Access Journal |
| issn | 2058-4555 2058-4563 |
| language | English |
| last_indexed | 2024-04-12T18:24:30Z |
| publishDate | 2016-11-01 |
| publisher | BCS, The Chartered Institute for IT |
| record_format | Article |
| series | Journal of Innovation in Health Informatics |
| spelling | doaj.art-76cd1a0181d4408e9bf02882af8d12af2022-12-22T03:21:17ZengBCS, The Chartered Institute for ITJournal of Innovation in Health Informatics2058-45552058-45632016-11-0123361161910.14236/jhi.v23i3.841808A systematic scoping review of the domains and innovations in secondary uses of digitised health-related dataAnn R R Robertson0Ulugbek Nurmatov1Harpreet S. Sood2Kathrin Cresswell3Pam Smith4Aziz Sheikh5The University of EdinburghThe University of EdinburghNational Health Service (NHS) England, LondonThe University of EdinburghThe University of EdinburghThe University of EdinburghBackground: Substantial investments are being made in health information technology (HIT) based on assumptions that these systems will save costs through increased quality, safety and efficiency of care provision. Whilst short-term benefits have often proven difficult to demonstrate, there is increasing interest in achieving benefits in the medium and long term through secondary uses of HIT-derived data. Aims: We aimed to describe the range of secondary uses of HIT-derived data in the international literature and identify innovative developments of particular relevance to UK policymakers and managers. Methods: We searched nine electronic databases to conduct a systematic scoping review of the international literature and augmented this by consulting a range of experts in the field. Results: Reviewers independently screened 16,806 titles, resulting in 583 eligible studies for inclusion. Thematic organisation of reported secondary uses was validated during expert consultation (n = 23). A primary division was made between patient-identifiable data and datasets in which individuals were not identified. Secondary uses were then categorised under four domain headings of: i) research; ii) quality and safety of care provision; iii) financial management; and iv) healthcare professional education. We found that innovative developments were most evident in research where, in particular, dataset linkage studies offered important opportunities for exploitation. Conclusions: Distinguishing patient-identifiable data from aggregated, de-identified datasets gives greater conceptual clarity in secondary uses of HIT-derived data. Secondary uses research has substantial potential for realising future benefits through generating new medical knowledge from dataset linkage studies, developing precision medicine and enabling cross-sectoral, evidence-based policymaking to benefit population-level well-being.https://hijournal.bcs.org/index.php/jhi/article/view/841systematic scoping reviewmedical informaticshealth services research |
| spellingShingle | Ann R R Robertson Ulugbek Nurmatov Harpreet S. Sood Kathrin Cresswell Pam Smith Aziz Sheikh A systematic scoping review of the domains and innovations in secondary uses of digitised health-related data Journal of Innovation in Health Informatics systematic scoping review medical informatics health services research |
| title | A systematic scoping review of the domains and innovations in secondary uses of digitised health-related data |
| title_full | A systematic scoping review of the domains and innovations in secondary uses of digitised health-related data |
| title_fullStr | A systematic scoping review of the domains and innovations in secondary uses of digitised health-related data |
| title_full_unstemmed | A systematic scoping review of the domains and innovations in secondary uses of digitised health-related data |
| title_short | A systematic scoping review of the domains and innovations in secondary uses of digitised health-related data |
| title_sort | systematic scoping review of the domains and innovations in secondary uses of digitised health related data |
| topic | systematic scoping review medical informatics health services research |
| url | https://hijournal.bcs.org/index.php/jhi/article/view/841 |
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