Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement

Abstract Background Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home‐based BP management can be effective at maintaining optimal BP. Objective To describe the optimization of a digital intervention for stroke patient...

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Main Authors: Tanvi Rai, Kate Morton, Cristian Roman, Roisin Doogue, Cathy Rice, Marney Williams, Claire Schwartz, Carmelo Velardo, Lionel Tarassenko CBE, Lucy Yardley, Richard J. McManus, Lisa Hinton
Format: Article
Language:English
Published: Wiley 2021-04-01
Series:Health Expectations
Subjects:
Online Access:https://doi.org/10.1111/hex.13173
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author Tanvi Rai
Kate Morton
Cristian Roman
Roisin Doogue
Cathy Rice
Marney Williams
Claire Schwartz
Carmelo Velardo
Lionel Tarassenko CBE
Lucy Yardley
Richard J. McManus
Lisa Hinton
author_facet Tanvi Rai
Kate Morton
Cristian Roman
Roisin Doogue
Cathy Rice
Marney Williams
Claire Schwartz
Carmelo Velardo
Lionel Tarassenko CBE
Lucy Yardley
Richard J. McManus
Lisa Hinton
author_sort Tanvi Rai
collection DOAJ
description Abstract Background Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home‐based BP management can be effective at maintaining optimal BP. Objective To describe the optimization of a digital intervention for stroke patients and the value of participant diversity, using the person‐based approach (PBA) and integral patient and public involvement (PPI). Setting and participants Stroke patients recruited from primary care and community settings, and health‐care professionals in primary care, in England and Ireland. Design Three linked qualitative studies conducted iteratively to develop an intervention using the PBA, with integral PPI. Intervention The BP: Together intervention, adapted from existing BP self‐monitoring interventions, is delivered via mobile phone or web interface to support self‐monitoring of BP at home. It alerts patients and their clinicians when a change in antihypertensive medication is needed. Findings Feedback from a diverse range of participants identified potential barriers, which were addressed to improve the intervention accessibility, feasibility and persuasiveness. Easy‐to‐read materials were developed to improve usability for patients with aphasia and lower literacy. The importance of including family members who support patient care was also highlighted. Feedback messages regarding medication change were refined to ensure usefulness for patients and clinicians. Discussion Input from PPI alongside qualitative research with a diverse study sample allowed the creation of a simple and equitable BP management intervention for stroke patients. Patient involvement Two PPI co‐investigators contributed to design, conduct of study, data interpretation and manuscript preparation; community PPI sessions informed early planning. Study participants were stroke patients and family members.
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spelling doaj.art-76e0ab6855014490b751afa1790fa8e82022-12-21T19:51:30ZengWileyHealth Expectations1369-65131369-76252021-04-0124232734010.1111/hex.13173Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvementTanvi Rai0Kate Morton1Cristian Roman2Roisin Doogue3Cathy Rice4Marney Williams5Claire Schwartz6Carmelo Velardo7Lionel Tarassenko CBE8Lucy Yardley9Richard J. McManus10Lisa Hinton11Nuffield Department of Primary Care Health Sciences University of Oxford Oxford UKSchool of Psychology University of Southampton Southampton UKDepartment of Engineering Science University of Oxford UKGraduate Entry Medical School University of Limerick Limerick IrelandPublic and Patient Involvement (PPI) Contributor Bristol UKPublic and Patient Involvement (PPI) Contributor Bristol UKNuffield Department of Primary Care Health Sciences University of Oxford Oxford UKDepartment of Engineering Science University of Oxford UKDepartment of Engineering Science University of Oxford UKSchool of Psychology University of Southampton Southampton UKNuffield Department of Primary Care Health Sciences University of Oxford Oxford UKNuffield Department of Primary Care Health Sciences University of Oxford Oxford UKAbstract Background Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home‐based BP management can be effective at maintaining optimal BP. Objective To describe the optimization of a digital intervention for stroke patients and the value of participant diversity, using the person‐based approach (PBA) and integral patient and public involvement (PPI). Setting and participants Stroke patients recruited from primary care and community settings, and health‐care professionals in primary care, in England and Ireland. Design Three linked qualitative studies conducted iteratively to develop an intervention using the PBA, with integral PPI. Intervention The BP: Together intervention, adapted from existing BP self‐monitoring interventions, is delivered via mobile phone or web interface to support self‐monitoring of BP at home. It alerts patients and their clinicians when a change in antihypertensive medication is needed. Findings Feedback from a diverse range of participants identified potential barriers, which were addressed to improve the intervention accessibility, feasibility and persuasiveness. Easy‐to‐read materials were developed to improve usability for patients with aphasia and lower literacy. The importance of including family members who support patient care was also highlighted. Feedback messages regarding medication change were refined to ensure usefulness for patients and clinicians. Discussion Input from PPI alongside qualitative research with a diverse study sample allowed the creation of a simple and equitable BP management intervention for stroke patients. Patient involvement Two PPI co‐investigators contributed to design, conduct of study, data interpretation and manuscript preparation; community PPI sessions informed early planning. Study participants were stroke patients and family members.https://doi.org/10.1111/hex.13173blood pressurecommunity‐based recruitmentdigital healthhypertensionpatient and public involvementperson‐based approach
spellingShingle Tanvi Rai
Kate Morton
Cristian Roman
Roisin Doogue
Cathy Rice
Marney Williams
Claire Schwartz
Carmelo Velardo
Lionel Tarassenko CBE
Lucy Yardley
Richard J. McManus
Lisa Hinton
Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement
Health Expectations
blood pressure
community‐based recruitment
digital health
hypertension
patient and public involvement
person‐based approach
title Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement
title_full Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement
title_fullStr Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement
title_full_unstemmed Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement
title_short Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement
title_sort optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample integrating the person based approach and patient and public involvement
topic blood pressure
community‐based recruitment
digital health
hypertension
patient and public involvement
person‐based approach
url https://doi.org/10.1111/hex.13173
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