Awareness of FMF among Caregivers
Aim:Familial Mediterranean Fever (FMF) is one of the most frequent genetic diseases with a frequency of 1/1,000 in our country. We aimed to assess awareness of FMF among caregivers of patients with and without FMF.Materials and Methods:Caregivers of FMF patients (group 1) and other caregivers who we...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Galenos Yayinevi
2021-12-01
|
| Series: | Journal of Pediatric Research |
| Subjects: | |
| Online Access: |
http://jpedres.org/archives/archive-detail/article-preview/awareness-of-fmf-among-caregivers/49644
|
| _version_ | 1797920003821928448 |
|---|---|
| author | Belde Kasap Demir Tuğçe Karahafız Gülşah Yılmaz Eren Soyaltın |
| author_facet | Belde Kasap Demir Tuğçe Karahafız Gülşah Yılmaz Eren Soyaltın |
| author_sort | Belde Kasap Demir |
| collection | DOAJ |
| description | Aim:Familial Mediterranean Fever (FMF) is one of the most frequent genetic diseases with a frequency of 1/1,000 in our country. We aimed to assess awareness of FMF among caregivers of patients with and without FMF.Materials and Methods:Caregivers of FMF patients (group 1) and other caregivers who were in hospital for other reasons (group 2) were given a questionnaire regarding FMF and the results were compared between the 2 groups.Results:The mean ages were similar between group 1 (n=142) and group 2 (n=207). Female gender and lower educational status were more frequent in group 1. Group 1 was more aware that recurrent fever, joint pain, abdominal pain, and its occurrence in attacks are seen in FMF; and also that the disease is inherited rather than contagious; that a specific treatment exists; that the risk of kidney and heart failure increases when not treated; that attacks are triggered by sleeplessness, tiredness or emotional stress; that colchicine does not provide complete recovery; and that diarrhea is the most common side effect of colchicine (p<0.05). However, awareness about chest pain as a feature, infertility as a complication, non-adherence as a trigger for the disease and the statement that “patients feel healthy between attacks” were similar (p>0.05). Interestingly, group 2 was more aware that different treatment options exist (p=0.04). The total score was higher in group 1 and in participants who only graduated from secondary school or less (p<0.01).Conclusion:Being a caregiver of a patient was associated with a higher level of awareness of FMF regardless of education level, however, they still need to be informed about current developments. |
| first_indexed | 2024-04-10T13:54:15Z |
| format | Article |
| id | doaj.art-7747d9d283fa41a5b4b065858b0f7b61 |
| institution | Directory Open Access Journal |
| issn | 2147-9445 2587-2478 |
| language | English |
| last_indexed | 2024-04-10T13:54:15Z |
| publishDate | 2021-12-01 |
| publisher | Galenos Yayinevi |
| record_format | Article |
| series | Journal of Pediatric Research |
| spelling | doaj.art-7747d9d283fa41a5b4b065858b0f7b612023-02-15T16:10:32ZengGalenos YayineviJournal of Pediatric Research2147-94452587-24782021-12-018445145510.4274/jpr.galenos.2021.2144713049054Awareness of FMF among CaregiversBelde Kasap DemirTuğçe KarahafızGülşah YılmazEren SoyaltınAim:Familial Mediterranean Fever (FMF) is one of the most frequent genetic diseases with a frequency of 1/1,000 in our country. We aimed to assess awareness of FMF among caregivers of patients with and without FMF.Materials and Methods:Caregivers of FMF patients (group 1) and other caregivers who were in hospital for other reasons (group 2) were given a questionnaire regarding FMF and the results were compared between the 2 groups.Results:The mean ages were similar between group 1 (n=142) and group 2 (n=207). Female gender and lower educational status were more frequent in group 1. Group 1 was more aware that recurrent fever, joint pain, abdominal pain, and its occurrence in attacks are seen in FMF; and also that the disease is inherited rather than contagious; that a specific treatment exists; that the risk of kidney and heart failure increases when not treated; that attacks are triggered by sleeplessness, tiredness or emotional stress; that colchicine does not provide complete recovery; and that diarrhea is the most common side effect of colchicine (p<0.05). However, awareness about chest pain as a feature, infertility as a complication, non-adherence as a trigger for the disease and the statement that “patients feel healthy between attacks” were similar (p>0.05). Interestingly, group 2 was more aware that different treatment options exist (p=0.04). The total score was higher in group 1 and in participants who only graduated from secondary school or less (p<0.01).Conclusion:Being a caregiver of a patient was associated with a higher level of awareness of FMF regardless of education level, however, they still need to be informed about current developments. http://jpedres.org/archives/archive-detail/article-preview/awareness-of-fmf-among-caregivers/49644 familial mediterranean feverawarenesscaregivers |
| spellingShingle | Belde Kasap Demir Tuğçe Karahafız Gülşah Yılmaz Eren Soyaltın Awareness of FMF among Caregivers Journal of Pediatric Research familial mediterranean fever awareness caregivers |
| title | Awareness of FMF among Caregivers |
| title_full | Awareness of FMF among Caregivers |
| title_fullStr | Awareness of FMF among Caregivers |
| title_full_unstemmed | Awareness of FMF among Caregivers |
| title_short | Awareness of FMF among Caregivers |
| title_sort | awareness of fmf among caregivers |
| topic | familial mediterranean fever awareness caregivers |
| url |
http://jpedres.org/archives/archive-detail/article-preview/awareness-of-fmf-among-caregivers/49644
|
| work_keys_str_mv | AT beldekasapdemir awarenessoffmfamongcaregivers AT tugcekarahafız awarenessoffmfamongcaregivers AT gulsahyılmaz awarenessoffmfamongcaregivers AT erensoyaltın awarenessoffmfamongcaregivers |