Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England
Abstract Background One in five children with an intellectual disability in the UK display behaviours that challenge. Despite associated impacts on the children themselves, their families, and services, little research has been published about how best to design, organise, and deliver health and car...
| Main Authors: | , , , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2023-12-01
|
| Series: | BMC Health Services Research |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12913-023-10388-9 |
| _version_ | 1827590703319875584 |
|---|---|
| author | Emma L. Taylor Paul A. Thompson Nicholas Manktelow Samantha Flynn David Gillespie Jill Bradshaw Nick Gore Ashley Liew Mark Lovell Kate Sutton Caroline Richards Stavros Petrou Peter E. Langdon Gemma Grant Vivien Cooper Kate Seers Richard P. Hastings |
| author_facet | Emma L. Taylor Paul A. Thompson Nicholas Manktelow Samantha Flynn David Gillespie Jill Bradshaw Nick Gore Ashley Liew Mark Lovell Kate Sutton Caroline Richards Stavros Petrou Peter E. Langdon Gemma Grant Vivien Cooper Kate Seers Richard P. Hastings |
| author_sort | Emma L. Taylor |
| collection | DOAJ |
| description | Abstract Background One in five children with an intellectual disability in the UK display behaviours that challenge. Despite associated impacts on the children themselves, their families, and services, little research has been published about how best to design, organise, and deliver health and care services to these children. The purpose of this study was to describe how services are structured and organised (“service models”) in England for community-based health and care services for children with intellectual disability who display behaviours that challenge. Methods Survey data about services were collected from 161 eligible community-based services in England. Staff from 60 of these services were also interviewed. A combination of latent class and descriptive analysis, coupled with consultation with family carers and professionals was used to identify and describe groupings of similar services (i.e., “service models”). Results The latent class analysis, completed as a first step in the process, supported a distinction between specialist services and non-specialist services for children who display behaviours that challenge. Planned descriptive analyses incorporating additional study variables were undertaken to further refine the service models. Five service models were identified: Child and Adolescent Mental Health Services (CAMHS) (n = 69 services), Intellectual Disability CAMHS (n = 28 services), Children and Young People Disability services (n = 25 services), Specialist services for children who display behaviours that challenge (n = 27 services), and broader age range services for children and/or adolescents and adults (n= 12 services). Conclusions Our analysis led to a typology of five service models for community health and care services for children with intellectual disabilities and behaviours that challenge in England. Identification of a typology of service models is a first step in building evidence about the best provision of services for children with intellectual disabilities who display behaviours that challenge. The methods used in the current study may be useful in research developing service typologies in other specialist fields of health and care. Study registration Trial Registration: Current Controlled Trials ISRCTN88920546, Date assigned 05/07/2022. |
| first_indexed | 2024-03-09T01:20:33Z |
| format | Article |
| id | doaj.art-77d8c4b59e9b44959827190364a3edd3 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-03-09T01:20:33Z |
| publishDate | 2023-12-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-77d8c4b59e9b44959827190364a3edd32023-12-10T12:12:21ZengBMCBMC Health Services Research1472-69632023-12-0123111310.1186/s12913-023-10388-9Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in EnglandEmma L. Taylor0Paul A. Thompson1Nicholas Manktelow2Samantha Flynn3David Gillespie4Jill Bradshaw5Nick Gore6Ashley Liew7Mark Lovell8Kate Sutton9Caroline Richards10Stavros Petrou11Peter E. Langdon12Gemma Grant13Vivien Cooper14Kate Seers15Richard P. Hastings16Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of WarwickCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of WarwickCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of WarwickCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of WarwickCentre for Trials Research, Cardiff UniversityTizard Centre, University of KentTizard Centre, University of KentCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of WarwickTees, Esk and Wear Valleys, NHS Foundation Trust, Rosewood Centre, Acklam Road HospitalLearning Disability and Autism Programme, NHS EnglandSchool of Psychology/ UK & Cerebra Network, University of BirminghamNuffield Department of Primary Care Health Sciences, University of OxfordCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of WarwickWarwick Medical School, University of WarwickThe Challenging Behaviour FoundationWarwick Medical School, University of WarwickCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of WarwickAbstract Background One in five children with an intellectual disability in the UK display behaviours that challenge. Despite associated impacts on the children themselves, their families, and services, little research has been published about how best to design, organise, and deliver health and care services to these children. The purpose of this study was to describe how services are structured and organised (“service models”) in England for community-based health and care services for children with intellectual disability who display behaviours that challenge. Methods Survey data about services were collected from 161 eligible community-based services in England. Staff from 60 of these services were also interviewed. A combination of latent class and descriptive analysis, coupled with consultation with family carers and professionals was used to identify and describe groupings of similar services (i.e., “service models”). Results The latent class analysis, completed as a first step in the process, supported a distinction between specialist services and non-specialist services for children who display behaviours that challenge. Planned descriptive analyses incorporating additional study variables were undertaken to further refine the service models. Five service models were identified: Child and Adolescent Mental Health Services (CAMHS) (n = 69 services), Intellectual Disability CAMHS (n = 28 services), Children and Young People Disability services (n = 25 services), Specialist services for children who display behaviours that challenge (n = 27 services), and broader age range services for children and/or adolescents and adults (n= 12 services). Conclusions Our analysis led to a typology of five service models for community health and care services for children with intellectual disabilities and behaviours that challenge in England. Identification of a typology of service models is a first step in building evidence about the best provision of services for children with intellectual disabilities who display behaviours that challenge. The methods used in the current study may be useful in research developing service typologies in other specialist fields of health and care. Study registration Trial Registration: Current Controlled Trials ISRCTN88920546, Date assigned 05/07/2022.https://doi.org/10.1186/s12913-023-10388-9ChildrenIntellectual disabilitiesLearning disabilitiesBehaviours that challengeChallenging behaviourCommunity services |
| spellingShingle | Emma L. Taylor Paul A. Thompson Nicholas Manktelow Samantha Flynn David Gillespie Jill Bradshaw Nick Gore Ashley Liew Mark Lovell Kate Sutton Caroline Richards Stavros Petrou Peter E. Langdon Gemma Grant Vivien Cooper Kate Seers Richard P. Hastings Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England BMC Health Services Research Children Intellectual disabilities Learning disabilities Behaviours that challenge Challenging behaviour Community services |
| title | Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England |
| title_full | Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England |
| title_fullStr | Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England |
| title_full_unstemmed | Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England |
| title_short | Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England |
| title_sort | mapping and identifying service models for community based services for children with intellectual disabilities and behaviours that challenge in england |
| topic | Children Intellectual disabilities Learning disabilities Behaviours that challenge Challenging behaviour Community services |
| url | https://doi.org/10.1186/s12913-023-10388-9 |
| work_keys_str_mv | AT emmaltaylor mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT paulathompson mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT nicholasmanktelow mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT samanthaflynn mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT davidgillespie mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT jillbradshaw mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT nickgore mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT ashleyliew mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT marklovell mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT katesutton mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT carolinerichards mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT stavrospetrou mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT peterelangdon mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT gemmagrant mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT viviencooper mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT kateseers mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland AT richardphastings mappingandidentifyingservicemodelsforcommunitybasedservicesforchildrenwithintellectualdisabilitiesandbehavioursthatchallengeinengland |