Data-driven sudden cardiac arrest research in Europe: Experts’ perspectives on ethical challenges and governance strategies

Data-driven sudden cardiac arrest research in Europe: Experts’ perspectives on ethical challenges and governance strategies

Background: Observational studies using large-scale databases and biobanks help improve prevention and treatment of sudden cardiac arrest (SCA) but the lack of guidance on data protection issues in this setting may harm patients’ rights and the research enterprise itself. This qualitative study expl...

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Bibliographic Details
Main Authors: Marieke A.R. Bak, Jelle C.H. Vroonland, Marieke T. Blom, Domagoj Damjanovic, Dick L. Willems, Hanno L. Tan, M. Corrette Ploem
Format: Article
Language:English
Published: Elsevier 2023-09-01
Series:Resuscitation Plus
Subjects:
Research ethics
Data protection
Observational studies
Big data
Biobank
Genetics
Online Access:http://www.sciencedirect.com/science/article/pii/S2666520423000577

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