Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device Caregivers
Background: Caregivers are essential for improved outcomes in patients living with left ventricular assist device (LVAD). There is a paucity of research on a long-term LVAD caregivers' experiences and burdens. Objectives: The aim of this study was to explore long-term challenges and needs of LV...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Mary Ann Liebert
2021-03-01
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| Series: | Palliative Medicine Reports |
| Subjects: | |
| Online Access: | https://www.liebertpub.com/doi/full/10.1089/PMR.2021.0001 |
| _version_ | 1797346097351360512 |
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| author | Shirlyn Hui Shan Neo Jasmine Si Min Ku Jasmine Yun Ting Tan Sungwon Yoon |
| author_facet | Shirlyn Hui Shan Neo Jasmine Si Min Ku Jasmine Yun Ting Tan Sungwon Yoon |
| author_sort | Shirlyn Hui Shan Neo |
| collection | DOAJ |
| description | Background: Caregivers are essential for improved outcomes in patients living with left ventricular assist device (LVAD). There is a paucity of research on a long-term LVAD caregivers' experiences and burdens.
Objectives: The aim of this study was to explore long-term challenges and needs of LVAD caregivers in the Asian health care setting.
Design: We conducted semistructured interviews with caregivers of patients who were currently or previously living with the LVAD.
Settings/Subjects: Caregivers were recruited from the National Heart Centre Singapore.
Measurements: Interviews were conducted in English and Chinese. All interviews were transcribed verbatim and analyzed based on grounded theory. Chinese interviews were translated to English before transcription.
Results: A multiethnic and multireligious sample of 11 caregivers participated. Median caregiving duration was 45 months. Caregivers described long-term challenges that were multifaceted. Misaligned patient expectations, stigmatization and limited social resources within the family and society affected caregivers' coping. Existing gender roles and spiritual and cultural influences shaped how caregivers appraised, made meaning of caregiving, and assessed support. Long-term caregivers' needs included learning from role models, shifting perspectives, enhancing communication between patient and caregivers, advocacy efforts, and holistic medical care.
Conclusions: Gender roles as well as cultural and spiritual influences affected coping and access to support in long-term Asian LVAD caregivers. Future interventions should consider culturally relevant approaches to improve well-being and quality of life of caregivers. |
| first_indexed | 2024-03-08T11:27:54Z |
| format | Article |
| id | doaj.art-77ec7388c36047819df8562dc6925d47 |
| institution | Directory Open Access Journal |
| issn | 2689-2820 |
| language | English |
| last_indexed | 2024-03-08T11:27:54Z |
| publishDate | 2021-03-01 |
| publisher | Mary Ann Liebert |
| record_format | Article |
| series | Palliative Medicine Reports |
| spelling | doaj.art-77ec7388c36047819df8562dc6925d472024-01-26T04:55:08ZengMary Ann LiebertPalliative Medicine Reports2689-28202021-03-0121849210.1089/PMR.2021.0001Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device CaregiversShirlyn Hui Shan NeoJasmine Si Min KuJasmine Yun Ting TanSungwon YoonBackground: Caregivers are essential for improved outcomes in patients living with left ventricular assist device (LVAD). There is a paucity of research on a long-term LVAD caregivers' experiences and burdens. Objectives: The aim of this study was to explore long-term challenges and needs of LVAD caregivers in the Asian health care setting. Design: We conducted semistructured interviews with caregivers of patients who were currently or previously living with the LVAD. Settings/Subjects: Caregivers were recruited from the National Heart Centre Singapore. Measurements: Interviews were conducted in English and Chinese. All interviews were transcribed verbatim and analyzed based on grounded theory. Chinese interviews were translated to English before transcription. Results: A multiethnic and multireligious sample of 11 caregivers participated. Median caregiving duration was 45 months. Caregivers described long-term challenges that were multifaceted. Misaligned patient expectations, stigmatization and limited social resources within the family and society affected caregivers' coping. Existing gender roles and spiritual and cultural influences shaped how caregivers appraised, made meaning of caregiving, and assessed support. Long-term caregivers' needs included learning from role models, shifting perspectives, enhancing communication between patient and caregivers, advocacy efforts, and holistic medical care. Conclusions: Gender roles as well as cultural and spiritual influences affected coping and access to support in long-term Asian LVAD caregivers. Future interventions should consider culturally relevant approaches to improve well-being and quality of life of caregivers.https://www.liebertpub.com/doi/full/10.1089/PMR.2021.0001caregiverschallengesleft ventricular assist deviceneeds |
| spellingShingle | Shirlyn Hui Shan Neo Jasmine Si Min Ku Jasmine Yun Ting Tan Sungwon Yoon Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device Caregivers Palliative Medicine Reports caregivers challenges left ventricular assist device needs |
| title | Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device Caregivers |
| title_full | Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device Caregivers |
| title_fullStr | Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device Caregivers |
| title_full_unstemmed | Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device Caregivers |
| title_short | Lived Experiences and Long-Term Challenges and Needs of Asian Left Ventricular Assist Device Caregivers |
| title_sort | lived experiences and long term challenges and needs of asian left ventricular assist device caregivers |
| topic | caregivers challenges left ventricular assist device needs |
| url | https://www.liebertpub.com/doi/full/10.1089/PMR.2021.0001 |
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