Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors

Purpose: The-Optimal-Lymph-Flow health IT system (TOLF) is a patient-centered, web-and-mobile-based educational and behavioral health IT system focusing on safe, innovative, and pragmatic self-care strategies for lymphedema symptom management. The purpose of this study was to evaluate usability, fea...

Full description

Bibliographic Details
Main Authors: Mei R. Fu, PhD, RN, FAAN, Deborah Axelrod, MD, FACS, Amber A. Guth, MD, FACS, Yao Wang, PhD, Joan Scagliola, MSN, RN, Karen Hiotis, MD, Kavita Rampertaap, RN, BSN, CPON, Nardin El-Shammaa, BA
Format: Article
Language:English
Published: Elsevier 2016-09-01
Series:Internet Interventions
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2214782916300173
_version_ 1811228974673559552
author Mei R. Fu, PhD, RN, FAAN
Deborah Axelrod, MD, FACS
Amber A. Guth, MD, FACS
Yao Wang, PhD
Joan Scagliola, MSN, RN
Karen Hiotis, MD
Kavita Rampertaap, RN, BSN, CPON
Nardin El-Shammaa, BA
author_facet Mei R. Fu, PhD, RN, FAAN
Deborah Axelrod, MD, FACS
Amber A. Guth, MD, FACS
Yao Wang, PhD
Joan Scagliola, MSN, RN
Karen Hiotis, MD
Kavita Rampertaap, RN, BSN, CPON
Nardin El-Shammaa, BA
author_sort Mei R. Fu, PhD, RN, FAAN
collection DOAJ
description Purpose: The-Optimal-Lymph-Flow health IT system (TOLF) is a patient-centered, web-and-mobile-based educational and behavioral health IT system focusing on safe, innovative, and pragmatic self-care strategies for lymphedema symptom management. The purpose of this study was to evaluate usability, feasibility, and acceptability of TOLF among the end-user of breast cancer survivors. Methods: Two types of usability testing were completed with 30 breast cancer survivors: heuristic evaluation and end-user testing. Each participant was asked to think aloud while completing a set of specified tasks designed to explicate and freely explore the system features. A heuristic evaluation checklist, the Perceived Ease of Use and Usefulness Questionnaire, and The Post Study System Usability Questionnaire were used to evaluate usability of the system. Open-ended questions were used to gather qualitative data. Quantitative data were analyzed using descriptive statistics and qualitative data were summarized thematically. Results: Breast cancer survivors were very satisfied with the system: 90% (n = 27) rated the system having no usability problems; 10% (n = 3) noted minor cosmetic problems: spelling errors or text font size. The majority of participants 96.6% (n = 29) strongly agreed that the system was easy to use and effective in helping to learn about lymphedema, symptoms and self-care strategies. Themes from the qualitative data included empowerment, high quality information, loving avatar simulation videos, easy accessibility, and user-friendliness. Conclusions: This usability study provided evidence on breast cancer survivor's acceptance and highly positive evaluation of TOLF's usability as well as feasibility of using technologically-driven delivery model to enhance self-care strategies for lymphedema symptom management.
first_indexed 2024-04-12T10:06:34Z
format Article
id doaj.art-7803e6384a1d4258a2da0ab5d84593da
institution Directory Open Access Journal
issn 2214-7829
language English
last_indexed 2024-04-12T10:06:34Z
publishDate 2016-09-01
publisher Elsevier
record_format Article
series Internet Interventions
spelling doaj.art-7803e6384a1d4258a2da0ab5d84593da2022-12-22T03:37:25ZengElsevierInternet Interventions2214-78292016-09-015C566410.1016/j.invent.2016.08.001Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivorsMei R. Fu, PhD, RN, FAAN0Deborah Axelrod, MD, FACS1Amber A. Guth, MD, FACS2Yao Wang, PhD3Joan Scagliola, MSN, RN4Karen Hiotis, MD5Kavita Rampertaap, RN, BSN, CPON6Nardin El-Shammaa, BA7NYU Rory Meyers College of Nursing, New York University, New York, NY, United StatesDepartment of Surgery, New York University School of Medicine, New York, NY, United StatesDepartment of Surgery, New York University School of Medicine, New York, NY, United StatesDepartment of Electrical and Computer Engineering, Tandon School of Engineering, New York University, New York, NY, United StatesNYU Laura and Isaac Perlmutter Cancer Center, New York, NY, United StatesDepartment of Surgery, New York University School of Medicine, New York, NY, United StatesNYU Rory Meyers College of Nursing, New York University, New York, NY, United StatesNYU Rory Meyers College of Nursing, New York University, New York, NY, United StatesPurpose: The-Optimal-Lymph-Flow health IT system (TOLF) is a patient-centered, web-and-mobile-based educational and behavioral health IT system focusing on safe, innovative, and pragmatic self-care strategies for lymphedema symptom management. The purpose of this study was to evaluate usability, feasibility, and acceptability of TOLF among the end-user of breast cancer survivors. Methods: Two types of usability testing were completed with 30 breast cancer survivors: heuristic evaluation and end-user testing. Each participant was asked to think aloud while completing a set of specified tasks designed to explicate and freely explore the system features. A heuristic evaluation checklist, the Perceived Ease of Use and Usefulness Questionnaire, and The Post Study System Usability Questionnaire were used to evaluate usability of the system. Open-ended questions were used to gather qualitative data. Quantitative data were analyzed using descriptive statistics and qualitative data were summarized thematically. Results: Breast cancer survivors were very satisfied with the system: 90% (n = 27) rated the system having no usability problems; 10% (n = 3) noted minor cosmetic problems: spelling errors or text font size. The majority of participants 96.6% (n = 29) strongly agreed that the system was easy to use and effective in helping to learn about lymphedema, symptoms and self-care strategies. Themes from the qualitative data included empowerment, high quality information, loving avatar simulation videos, easy accessibility, and user-friendliness. Conclusions: This usability study provided evidence on breast cancer survivor's acceptance and highly positive evaluation of TOLF's usability as well as feasibility of using technologically-driven delivery model to enhance self-care strategies for lymphedema symptom management.http://www.sciencedirect.com/science/article/pii/S2214782916300173Self-careLymphedema symptomsHealth ITUsabilityFeasibilityBreast neoplasmsBreast cancer survivorLymphedemaSymptoms
spellingShingle Mei R. Fu, PhD, RN, FAAN
Deborah Axelrod, MD, FACS
Amber A. Guth, MD, FACS
Yao Wang, PhD
Joan Scagliola, MSN, RN
Karen Hiotis, MD
Kavita Rampertaap, RN, BSN, CPON
Nardin El-Shammaa, BA
Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors
Internet Interventions
Self-care
Lymphedema symptoms
Health IT
Usability
Feasibility
Breast neoplasms
Breast cancer survivor
Lymphedema
Symptoms
title Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors
title_full Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors
title_fullStr Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors
title_full_unstemmed Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors
title_short Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors
title_sort usability and feasibility of health it interventions to enhance self care for lymphedema symptom management in breast cancer survivors
topic Self-care
Lymphedema symptoms
Health IT
Usability
Feasibility
Breast neoplasms
Breast cancer survivor
Lymphedema
Symptoms
url http://www.sciencedirect.com/science/article/pii/S2214782916300173
work_keys_str_mv AT meirfuphdrnfaan usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors
AT deborahaxelrodmdfacs usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors
AT amberaguthmdfacs usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors
AT yaowangphd usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors
AT joanscagliolamsnrn usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors
AT karenhiotismd usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors
AT kavitarampertaaprnbsncpon usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors
AT nardinelshammaaba usabilityandfeasibilityofhealthitinterventionstoenhanceselfcareforlymphedemasymptommanagementinbreastcancersurvivors