A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care
BackgroundEmbedding Public and Patient Involvement (PPI) in postgraduate research has been recognized as an important component of post-graduate training, providing research scholars with an awareness and a skillset in an area which prepares them for future roles as healthcare researchers. Improving...
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Frontiers Media S.A.
2022-07-01
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| Series: | Frontiers in Rehabilitation Sciences |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fresc.2022.877598/full |
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| author | Frances Horgan Frances Horgan Olive Lennon Olive Lennon Anne Hickey Anne Hickey Jan Sorensen Jan Sorensen Thilo Kroll Thilo Kroll Thilo Kroll Deirdre McCartan Patricia Hall Geraldine O'Callaghan Clare Fitzgerald Julianne Hickey Julianne Hickey Martin Fahy Martin Fahy Philip Osborne Philip Osborne Mary Scullion Mary Scullion Clíodhna Ní Bhroin Clíodhna Ní Bhroin David J. Williams David J. Williams David J. Williams The iPASTAR Collaborative Doctoral Award Programme Team |
| author_facet | Frances Horgan Frances Horgan Olive Lennon Olive Lennon Anne Hickey Anne Hickey Jan Sorensen Jan Sorensen Thilo Kroll Thilo Kroll Thilo Kroll Deirdre McCartan Patricia Hall Geraldine O'Callaghan Clare Fitzgerald Julianne Hickey Julianne Hickey Martin Fahy Martin Fahy Philip Osborne Philip Osborne Mary Scullion Mary Scullion Clíodhna Ní Bhroin Clíodhna Ní Bhroin David J. Williams David J. Williams David J. Williams The iPASTAR Collaborative Doctoral Award Programme Team |
| author_sort | Frances Horgan |
| collection | DOAJ |
| description | BackgroundEmbedding Public and Patient Involvement (PPI) in postgraduate research has been recognized as an important component of post-graduate training, providing research scholars with an awareness and a skillset in an area which prepares them for future roles as healthcare researchers. Improving Pathways for Acute STroke And Rehabilitation (iPASTAR) is a structured PhD training program [Collaborative Doctoral Award (CDA)] which aims to design a person-centered stroke pathway throughout the trajectory of stroke care, to optimize post-stroke health and wellbeing. PPI is embedded at all stages.PurposeThe iPASTAR research programme was strongly informed by a round-table PPI consultation process with individuals who experienced stroke and who provided broad representation across ages, gender, geographical locations (urban and rural) and the PhD themed areas of acute care, early supported discharge and lifestyle-based interventions after stroke. Four PhD scholars taking part in the CDA-iPASTAR now work collaboratively with four stroke champions, supported by a wider PPI advisory panel.MethodsThis study will evaluate the process and impact of embedding PPI during a PhD program. We will conduct a longitudinal mixed-methods evaluation, conducting focus groups at 24, 36, and 48 months to explore the experiences of the key stakeholders involved. The participants will include PhD scholars, PPI partners (PPI Advisory Group and PPI Champions), PhD supervisors and a PPI manager. An independent researcher will conduct the evaluation. We will include focus groups, individual interviews and participant reflections. Qualitative data will be analyzed using thematic and content analysis, quantitative data will be analyzed using descriptive statistics.DiscussionPPI and patient voice initiatives bring together researchers, family, and people with health care issues into meaningful dialogue and allow the development of a patient-voice learning network. Embedding PPI training within a PhD program can build meaningful capacity in PPI partnerships in stroke research. |
| first_indexed | 2024-04-11T01:42:25Z |
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| institution | Directory Open Access Journal |
| issn | 2673-6861 |
| language | English |
| last_indexed | 2024-04-11T01:42:25Z |
| publishDate | 2022-07-01 |
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| series | Frontiers in Rehabilitation Sciences |
| spelling | doaj.art-78a06d8c0514416a9f000fb2402a51732023-01-03T08:16:14ZengFrontiers Media S.A.Frontiers in Rehabilitation Sciences2673-68612022-07-01310.3389/fresc.2022.877598877598A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke careFrances Horgan0Frances Horgan1Olive Lennon2Olive Lennon3Anne Hickey4Anne Hickey5Jan Sorensen6Jan Sorensen7Thilo Kroll8Thilo Kroll9Thilo Kroll10Deirdre McCartan11Patricia Hall12Geraldine O'Callaghan13Clare Fitzgerald14Julianne Hickey15Julianne Hickey16Martin Fahy17Martin Fahy18Philip Osborne19Philip Osborne20Mary Scullion21Mary Scullion22Clíodhna Ní Bhroin23Clíodhna Ní Bhroin24David J. Williams25David J. Williams26David J. Williams27The iPASTAR Collaborative Doctoral Award Programme Team28Improving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandSchool of Physiotherapy, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandSchool of Public Health, Physiotherapy and Sports Science, University College Dublin, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandDepartment of Psychology, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandHealthcare Outcomes Research Centre, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandUniversity College Dublin (UCD) Centre for Interdisciplinary Research, Education and Innovation in Health Systems, Dublin, IrelandHealth Research Board (HRB), Public and Patient Involvement (PPI)-Ignite University College Dublin, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Public and Patient Involvement (PPI) Champion iPASTAR Collaborative Doctoral Award Programme, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Public and Patient Involvement (PPI) Champion iPASTAR Collaborative Doctoral Award Programme, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Public and Patient Involvement (PPI) Champion iPASTAR Collaborative Doctoral Award Programme, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Public and Patient Involvement (PPI) Champion iPASTAR Collaborative Doctoral Award Programme, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Public and Patient Involvement (PPI) Champion iPASTAR Collaborative Doctoral Award Programme, Dublin, IrelandImproving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandSchool of Medicine Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, Ireland0Department of Geriatric and Stroke Medicine, Beaumont Hospital, Dublin, Ireland1Improving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, IrelandBackgroundEmbedding Public and Patient Involvement (PPI) in postgraduate research has been recognized as an important component of post-graduate training, providing research scholars with an awareness and a skillset in an area which prepares them for future roles as healthcare researchers. Improving Pathways for Acute STroke And Rehabilitation (iPASTAR) is a structured PhD training program [Collaborative Doctoral Award (CDA)] which aims to design a person-centered stroke pathway throughout the trajectory of stroke care, to optimize post-stroke health and wellbeing. PPI is embedded at all stages.PurposeThe iPASTAR research programme was strongly informed by a round-table PPI consultation process with individuals who experienced stroke and who provided broad representation across ages, gender, geographical locations (urban and rural) and the PhD themed areas of acute care, early supported discharge and lifestyle-based interventions after stroke. Four PhD scholars taking part in the CDA-iPASTAR now work collaboratively with four stroke champions, supported by a wider PPI advisory panel.MethodsThis study will evaluate the process and impact of embedding PPI during a PhD program. We will conduct a longitudinal mixed-methods evaluation, conducting focus groups at 24, 36, and 48 months to explore the experiences of the key stakeholders involved. The participants will include PhD scholars, PPI partners (PPI Advisory Group and PPI Champions), PhD supervisors and a PPI manager. An independent researcher will conduct the evaluation. We will include focus groups, individual interviews and participant reflections. Qualitative data will be analyzed using thematic and content analysis, quantitative data will be analyzed using descriptive statistics.DiscussionPPI and patient voice initiatives bring together researchers, family, and people with health care issues into meaningful dialogue and allow the development of a patient-voice learning network. Embedding PPI training within a PhD program can build meaningful capacity in PPI partnerships in stroke research.https://www.frontiersin.org/articles/10.3389/fresc.2022.877598/fullstroke carepublic patient involvement (PPI)engagement (involvement)evaluationstructured PhD programme |
| spellingShingle | Frances Horgan Frances Horgan Olive Lennon Olive Lennon Anne Hickey Anne Hickey Jan Sorensen Jan Sorensen Thilo Kroll Thilo Kroll Thilo Kroll Deirdre McCartan Patricia Hall Geraldine O'Callaghan Clare Fitzgerald Julianne Hickey Julianne Hickey Martin Fahy Martin Fahy Philip Osborne Philip Osborne Mary Scullion Mary Scullion Clíodhna Ní Bhroin Clíodhna Ní Bhroin David J. Williams David J. Williams David J. Williams The iPASTAR Collaborative Doctoral Award Programme Team A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care Frontiers in Rehabilitation Sciences stroke care public patient involvement (PPI) engagement (involvement) evaluation structured PhD programme |
| title | A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care |
| title_full | A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care |
| title_fullStr | A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care |
| title_full_unstemmed | A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care |
| title_short | A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care |
| title_sort | protocol to evaluate the impact of embedding public and patient involvement in a structured phd program for stroke care |
| topic | stroke care public patient involvement (PPI) engagement (involvement) evaluation structured PhD programme |
| url | https://www.frontiersin.org/articles/10.3389/fresc.2022.877598/full |
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