‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities
This paper discusses youth and the significance of age in the lives of persons with profound intellectual and multiple disabilities. The analysis is based on an ethnographic research project that explores what makes a good life for this group of people. The findings indicate that whilst the meaning...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Stockholm University Press
2019-05-01
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| Series: | Scandinavian Journal of Disability Research |
| Subjects: | |
| Online Access: | https://www.sjdr.se/articles/590 |
| _version_ | 1797763640844091392 |
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| author | Reetta Mietola Simo Vehmas |
| author_facet | Reetta Mietola Simo Vehmas |
| author_sort | Reetta Mietola |
| collection | DOAJ |
| description | This paper discusses youth and the significance of age in the lives of persons with profound intellectual and multiple disabilities. The analysis is based on an ethnographic research project that explores what makes a good life for this group of people. The findings indicate that whilst the meaning and significance of youth and age were discussed often by care workers and family members, age had very little significance in the lives of our research participants. Youth as a phase of life gets lost in the transition from children’s services to adult services: age in the lives of persons with profound intellectual disabilities means merely a move from one service system to another. For the care workers, age provides a way to evaluate and criticize the service system and whether it caters for the individual needs of persons with profound intellectual disabilities. |
| first_indexed | 2024-03-12T19:44:21Z |
| format | Article |
| id | doaj.art-78cb458a4d4f459b85c748437400c709 |
| institution | Directory Open Access Journal |
| issn | 1745-3011 |
| language | English |
| last_indexed | 2024-03-12T19:44:21Z |
| publishDate | 2019-05-01 |
| publisher | Stockholm University Press |
| record_format | Article |
| series | Scandinavian Journal of Disability Research |
| spelling | doaj.art-78cb458a4d4f459b85c748437400c7092023-08-02T03:38:05ZengStockholm University PressScandinavian Journal of Disability Research1745-30112019-05-0121110.16993/sjdr.590522‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual DisabilitiesReetta Mietola0Simo Vehmas1University of HelsinkiStockholm UniversityThis paper discusses youth and the significance of age in the lives of persons with profound intellectual and multiple disabilities. The analysis is based on an ethnographic research project that explores what makes a good life for this group of people. The findings indicate that whilst the meaning and significance of youth and age were discussed often by care workers and family members, age had very little significance in the lives of our research participants. Youth as a phase of life gets lost in the transition from children’s services to adult services: age in the lives of persons with profound intellectual disabilities means merely a move from one service system to another. For the care workers, age provides a way to evaluate and criticize the service system and whether it caters for the individual needs of persons with profound intellectual disabilities.https://www.sjdr.se/articles/590agegood lifelifelong learningprofound intellectual disabilityyouth |
| spellingShingle | Reetta Mietola Simo Vehmas ‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities Scandinavian Journal of Disability Research age good life lifelong learning profound intellectual disability youth |
| title | ‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities |
| title_full | ‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities |
| title_fullStr | ‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities |
| title_full_unstemmed | ‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities |
| title_short | ‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities |
| title_sort | he is after all a young man claiming ordinary lives for young adults with profound intellectual disabilities |
| topic | age good life lifelong learning profound intellectual disability youth |
| url | https://www.sjdr.se/articles/590 |
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