Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adults

Background: Remaining in one's own home and community is a priority for many older adults as they age. Decision-making and planning is critical to ensure successful aging-in-place (AIP), especially when individuals experience age-related changes such as cognitive decline. Objectives: We are tes...

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Main Authors: Lee A. Lindquist, Ruqayyah Muhammad, Amber P. Miller-Winder, Lauren Opsasnick, Kwang-Youn Kim, Julia Yoshino Benavente, Michael Wolf, Vanessa Ramirez-Zohfeld
Format: Article
Language:English
Published: Elsevier 2021-06-01
Series:Contemporary Clinical Trials Communications
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2451865421000570
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author Lee A. Lindquist
Ruqayyah Muhammad
Amber P. Miller-Winder
Lauren Opsasnick
Kwang-Youn Kim
Julia Yoshino Benavente
Michael Wolf
Vanessa Ramirez-Zohfeld
author_facet Lee A. Lindquist
Ruqayyah Muhammad
Amber P. Miller-Winder
Lauren Opsasnick
Kwang-Youn Kim
Julia Yoshino Benavente
Michael Wolf
Vanessa Ramirez-Zohfeld
author_sort Lee A. Lindquist
collection DOAJ
description Background: Remaining in one's own home and community is a priority for many older adults as they age. Decision-making and planning is critical to ensure successful aging-in-place (AIP), especially when individuals experience age-related changes such as cognitive decline. Objectives: We are testing how decision-making and planning for AIP is impacted by changes in older adults' cognition and function, chronic conditions, social influences, environmental factors and identifying the mediating/moderating interactions between factors. We will also assess whether decision-making and planning for AIP translates into timely adoption of plans and goal concordance between older adults and their surrogate/caregiver decision makers. Methods: We will conduct a longitudinal single-group interventional clinical trial of community-dwelling older adults who are enrolled in LitCog, (R01AG03611) and expose them to an online intervention, PlanYourLifespan.org, which facilitates decision-making and planning for AIP. Enrolled participants (n = 398) will complete interviews at baseline, one month, and every six months up to 42 months in conjunction with the LitCog study, where cognitive, social, functional, and health literacy data is collected. Additionally, we will collect data on decision-making, resource use, communication of plans, timing of plan implementation, and goal concordance. Projected outcomes: Findings from this study may generate evidence on how age-related changes in older adults may affect decision-making and implementation in relation to AIP as well as the impact of social relationships and support. Ultimately these findings may help shape the design of programs and practices that may improve the lives of older adults and the capacity of institutions to adapt to societal aging and AIP.
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spelling doaj.art-7900851e351246d0b54fcf87962e56462022-12-21T22:11:05ZengElsevierContemporary Clinical Trials Communications2451-86542021-06-0122100756Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adultsLee A. Lindquist0Ruqayyah Muhammad1Amber P. Miller-Winder2Lauren Opsasnick3Kwang-Youn Kim4Julia Yoshino Benavente5Michael Wolf6Vanessa Ramirez-Zohfeld7Corresponding author. Division of General Internal Medicine and Geriatrics, Northwestern University, Feinberg School of Medicine, 750 N. Lake Shore Drive, 10th floor, Chicago, IL 60611, USA.; Division of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USADivision of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USADivision of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USADivision of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USADivision of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USADivision of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USADivision of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USADivision of General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USABackground: Remaining in one's own home and community is a priority for many older adults as they age. Decision-making and planning is critical to ensure successful aging-in-place (AIP), especially when individuals experience age-related changes such as cognitive decline. Objectives: We are testing how decision-making and planning for AIP is impacted by changes in older adults' cognition and function, chronic conditions, social influences, environmental factors and identifying the mediating/moderating interactions between factors. We will also assess whether decision-making and planning for AIP translates into timely adoption of plans and goal concordance between older adults and their surrogate/caregiver decision makers. Methods: We will conduct a longitudinal single-group interventional clinical trial of community-dwelling older adults who are enrolled in LitCog, (R01AG03611) and expose them to an online intervention, PlanYourLifespan.org, which facilitates decision-making and planning for AIP. Enrolled participants (n = 398) will complete interviews at baseline, one month, and every six months up to 42 months in conjunction with the LitCog study, where cognitive, social, functional, and health literacy data is collected. Additionally, we will collect data on decision-making, resource use, communication of plans, timing of plan implementation, and goal concordance. Projected outcomes: Findings from this study may generate evidence on how age-related changes in older adults may affect decision-making and implementation in relation to AIP as well as the impact of social relationships and support. Ultimately these findings may help shape the design of programs and practices that may improve the lives of older adults and the capacity of institutions to adapt to societal aging and AIP.http://www.sciencedirect.com/science/article/pii/S2451865421000570GeriatricsAging-in-placeAlzheimer's diseaseDecision-making
spellingShingle Lee A. Lindquist
Ruqayyah Muhammad
Amber P. Miller-Winder
Lauren Opsasnick
Kwang-Youn Kim
Julia Yoshino Benavente
Michael Wolf
Vanessa Ramirez-Zohfeld
Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adults
Contemporary Clinical Trials Communications
Geriatrics
Aging-in-place
Alzheimer's disease
Decision-making
title Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adults
title_full Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adults
title_fullStr Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adults
title_full_unstemmed Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adults
title_short Rationale and study design for decision making & implementation of aging-in-place/long term care plans among older adults
title_sort rationale and study design for decision making amp implementation of aging in place long term care plans among older adults
topic Geriatrics
Aging-in-place
Alzheimer's disease
Decision-making
url http://www.sciencedirect.com/science/article/pii/S2451865421000570
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