Hidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for research
Abstract Background Patients and caregivers investigate a wide range of approaches to address the signs and symptoms of their condition. Such investigation could lead to new treatment insights or avenues for research. However, currently there are few channels through which patients and families can...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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BMC
2023-10-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-023-00473-y |
| _version_ | 1797555745398456320 |
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| author | Freya Moxham Christine Cutaran Jakub Sadocha Korey Capozza |
| author_facet | Freya Moxham Christine Cutaran Jakub Sadocha Korey Capozza |
| author_sort | Freya Moxham |
| collection | DOAJ |
| description | Abstract Background Patients and caregivers investigate a wide range of approaches to address the signs and symptoms of their condition. Such investigation could lead to new treatment insights or avenues for research. However, currently there are few channels through which patients and families can share the results of their personal experiences; they need a platform to share their insights with the research community. Methodology Two non-profit organizations, Global Parents for Eczema Research and the International Alliance of Dermatology Patient Organizations, developed a project to pioneer new ways for patients and caregivers to share their personal insights for research and for researchers and treatment developers to learn about those ideas. This project, the “Big Ideas for AD Research”, was a global challenge that awarded prizes and recognition to patients’ and caregivers’ research hypotheses related to atopic dermatitis management, treatment, and prevention. Results The Challenge was open for 5 weeks and received 70 submissions from 11 countries. Entries were judged by two separate panels of experts that included both researchers and patients and caregivers. Winners were awarded with a monetary prize, recognized on social media, and connected by Global Parents for Eczema Research staff to an appropriate research group to help further their ideas. Conclusion The Big Ideas for Eczema Challenge provided a proof of concept for a novel approach to bridging the gap between patients/caregivers and researchers/clinicians by developing a platform to garner the best ideas from the patient community for research. This model could be further leveraged by other patient groups to help solicit patients’ and caregivers’ ideas for research. |
| first_indexed | 2024-03-10T16:52:59Z |
| format | Article |
| id | doaj.art-79418f97e5554e5ab0145a8b6ed4d070 |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-03-10T16:52:59Z |
| publishDate | 2023-10-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-79418f97e5554e5ab0145a8b6ed4d0702023-11-20T11:15:24ZengBMCResearch Involvement and Engagement2056-75292023-10-01911510.1186/s40900-023-00473-yHidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for researchFreya Moxham0Christine Cutaran1Jakub Sadocha2Korey Capozza3Global Parents for Eczema ResearchGlobal Parents for Eczema ResearchInternational Alliance of Dermatology Patient OrganizationsGlobal Parents for Eczema ResearchAbstract Background Patients and caregivers investigate a wide range of approaches to address the signs and symptoms of their condition. Such investigation could lead to new treatment insights or avenues for research. However, currently there are few channels through which patients and families can share the results of their personal experiences; they need a platform to share their insights with the research community. Methodology Two non-profit organizations, Global Parents for Eczema Research and the International Alliance of Dermatology Patient Organizations, developed a project to pioneer new ways for patients and caregivers to share their personal insights for research and for researchers and treatment developers to learn about those ideas. This project, the “Big Ideas for AD Research”, was a global challenge that awarded prizes and recognition to patients’ and caregivers’ research hypotheses related to atopic dermatitis management, treatment, and prevention. Results The Challenge was open for 5 weeks and received 70 submissions from 11 countries. Entries were judged by two separate panels of experts that included both researchers and patients and caregivers. Winners were awarded with a monetary prize, recognized on social media, and connected by Global Parents for Eczema Research staff to an appropriate research group to help further their ideas. Conclusion The Big Ideas for Eczema Challenge provided a proof of concept for a novel approach to bridging the gap between patients/caregivers and researchers/clinicians by developing a platform to garner the best ideas from the patient community for research. This model could be further leveraged by other patient groups to help solicit patients’ and caregivers’ ideas for research.https://doi.org/10.1186/s40900-023-00473-yAtopic dermatitisPatient-centered researchADResearch competitionBig ideasPatient insights |
| spellingShingle | Freya Moxham Christine Cutaran Jakub Sadocha Korey Capozza Hidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for research Research Involvement and Engagement Atopic dermatitis Patient-centered research AD Research competition Big ideas Patient insights |
| title | Hidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for research |
| title_full | Hidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for research |
| title_fullStr | Hidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for research |
| title_full_unstemmed | Hidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for research |
| title_short | Hidden gems: a pilot project to solicit and reward patients’ and caregivers’ ideas for research |
| title_sort | hidden gems a pilot project to solicit and reward patients and caregivers ideas for research |
| topic | Atopic dermatitis Patient-centered research AD Research competition Big ideas Patient insights |
| url | https://doi.org/10.1186/s40900-023-00473-y |
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