Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativa
Background:. Hidradenitis suppurativa (HS) is a chronic, inflammatory, debilitating skin disease that impacts an estimated 1 to 4% of the population; women are twice as likely to be diagnosed as men. There is no cure for HS, and many patients face a lifetime of various healthcare appointments, medic...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Wolters Kluwer
2022-10-01
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| Series: | International Journal of Women's Dermatology |
| Online Access: | http://journals.lww.com/10.1097/JW9.0000000000000049 |
| _version_ | 1797988149959327744 |
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| author | Natalie Ingraham, PhD, MPH Lena R. Hann, PhD, MPH J. Austin Williamson, PhD, MA Caleb Drew |
| author_facet | Natalie Ingraham, PhD, MPH Lena R. Hann, PhD, MPH J. Austin Williamson, PhD, MA Caleb Drew |
| author_sort | Natalie Ingraham, PhD, MPH |
| collection | DOAJ |
| description | Background:. Hidradenitis suppurativa (HS) is a chronic, inflammatory, debilitating skin disease that impacts an estimated 1 to 4% of the population; women are twice as likely to be diagnosed as men. There is no cure for HS, and many patients face a lifetime of various healthcare appointments, medical interventions, and personal experiences living with the disease.
Objective:. This study aimed to explore social, emotional, and medical experiences for individuals with HS, and to understand connections between those experiences and quality of life.
Methods:. Participants (n = 243) in the community-based convenience sample completed a cross-sectional survey about their experiences and quality of life and reported high rates of anxiety, embarrassment, and depressed mood. These and other negative emotions were commonly experienced during interactions with healthcare providers and romantic partners.
Results:. Participants who had more negative interactions with providers and partners surrounding their HS tended to experience a lower quality of life.
Limitations:. Limited generalizability due to convenience sampling.
Conclusion:. Providers should consider how patients experience patient -provider communication about HS, and how this communication impacts other areas of patients' lives, including quality of life, mental health, and romantic relationships. Future care approaches should prioritize mental health strategies in HS patients' care plans, and establish partnerships between dermatology practices and mental health professionals to aid in the multidisciplinary approach recommended for the treatment of HS. |
| first_indexed | 2024-04-11T07:59:11Z |
| format | Article |
| id | doaj.art-795dddb898034859ba9f249b030ea5d5 |
| institution | Directory Open Access Journal |
| issn | 2352-6475 |
| language | English |
| last_indexed | 2024-04-11T07:59:11Z |
| publishDate | 2022-10-01 |
| publisher | Wolters Kluwer |
| record_format | Article |
| series | International Journal of Women's Dermatology |
| spelling | doaj.art-795dddb898034859ba9f249b030ea5d52022-12-22T04:35:48ZengWolters KluwerInternational Journal of Women's Dermatology2352-64752022-10-0183e04910.1097/JW9.0000000000000049202210000-00027Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativaNatalie Ingraham, PhD, MPH0Lena R. Hann, PhD, MPH1J. Austin Williamson, PhD, MA2Caleb Drew3a Department of Sociology, California State University East Bay, Hayward, CAb Augustana College, Public Health Program, Rock Island, ILc Department of Psychology and Neuroscience, Augustana College, Rock Island, ILb Augustana College, Public Health Program, Rock Island, ILBackground:. Hidradenitis suppurativa (HS) is a chronic, inflammatory, debilitating skin disease that impacts an estimated 1 to 4% of the population; women are twice as likely to be diagnosed as men. There is no cure for HS, and many patients face a lifetime of various healthcare appointments, medical interventions, and personal experiences living with the disease. Objective:. This study aimed to explore social, emotional, and medical experiences for individuals with HS, and to understand connections between those experiences and quality of life. Methods:. Participants (n = 243) in the community-based convenience sample completed a cross-sectional survey about their experiences and quality of life and reported high rates of anxiety, embarrassment, and depressed mood. These and other negative emotions were commonly experienced during interactions with healthcare providers and romantic partners. Results:. Participants who had more negative interactions with providers and partners surrounding their HS tended to experience a lower quality of life. Limitations:. Limited generalizability due to convenience sampling. Conclusion:. Providers should consider how patients experience patient -provider communication about HS, and how this communication impacts other areas of patients' lives, including quality of life, mental health, and romantic relationships. Future care approaches should prioritize mental health strategies in HS patients' care plans, and establish partnerships between dermatology practices and mental health professionals to aid in the multidisciplinary approach recommended for the treatment of HS.http://journals.lww.com/10.1097/JW9.0000000000000049 |
| spellingShingle | Natalie Ingraham, PhD, MPH Lena R. Hann, PhD, MPH J. Austin Williamson, PhD, MA Caleb Drew Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativa International Journal of Women's Dermatology |
| title | Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativa |
| title_full | Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativa |
| title_fullStr | Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativa |
| title_full_unstemmed | Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativa |
| title_short | Communicating with health providers and romantic partners: The impact of negative emotions on quality of life for individuals with hidradenitis suppurativa |
| title_sort | communicating with health providers and romantic partners the impact of negative emotions on quality of life for individuals with hidradenitis suppurativa |
| url | http://journals.lww.com/10.1097/JW9.0000000000000049 |
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