The quality of German - language patient decision aids for oncological patients on the internet
Abstract Background Previous studies have already shown that decision aids are a suitable tool for patient decision-making. The aim of this work is to conduct an online search for freely available, German-language patient decision aids (PDAs) for cancer patients, followed by an assessment of their q...
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| Format: | Article |
| Language: | English |
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BMC
2023-08-01
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| Series: | BMC Medical Informatics and Decision Making |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12911-023-02259-4 |
| _version_ | 1797559259054997504 |
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| author | Julia Möller Lena Josfeld Christian Keinki Nathalie Zieglowski Jens Büntzel Jutta Hübner |
| author_facet | Julia Möller Lena Josfeld Christian Keinki Nathalie Zieglowski Jens Büntzel Jutta Hübner |
| author_sort | Julia Möller |
| collection | DOAJ |
| description | Abstract Background Previous studies have already shown that decision aids are a suitable tool for patient decision-making. The aim of this work is to conduct an online search for freely available, German-language patient decision aids (PDAs) for cancer patients, followed by an assessment of their quality. For this purpose, a rating tool that is as manageable as possible was developed on the basis of already existing quality criteria. Methods A simulated patient online search was conducted via the four most frequently used search engines in Germany. A quality assessment tool was created utilizing international and national guidelines, with a focus on practicality and manageability. Subsequently, the identified PDAs were rated by 4 raters based on the rating tool. Results The number of German-language oncology PDAs is low (n = 22 of 200 URLs) with limited variability regarding rare cancers. Most originate from non-profit organizations. The overall quality is low, as indicated by an average of 57.52% of the maximum evaluation points of the developed quality assessment tool. Reference values used to assess quality were related to e.g. support/effectiveness, adaptation, layout, etc. No qualitative differences were found regarding different publishers. Quality differed between PDAs of different length, with longer PDAs achieving better results. Conclusion Overall, the supply and quality of German-language PDAs is not satisfactory. The assessment tool created in this study provides a solid, but more manageable basis, for developing and identifying high-quality PDAs. Practice implications PDAs should be increasingly used by physicians in practice. For this, a quick qualitative assessment of PDAs in everyday life must be possible. Future research has to investigate especially the aspect of the length of a PDA in more detail. |
| first_indexed | 2024-03-10T17:42:53Z |
| format | Article |
| id | doaj.art-7a5a27b82e9f489a8cd3ab4f3a943d18 |
| institution | Directory Open Access Journal |
| issn | 1472-6947 |
| language | English |
| last_indexed | 2024-03-10T17:42:53Z |
| publishDate | 2023-08-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Medical Informatics and Decision Making |
| spelling | doaj.art-7a5a27b82e9f489a8cd3ab4f3a943d182023-11-20T09:38:29ZengBMCBMC Medical Informatics and Decision Making1472-69472023-08-0123111210.1186/s12911-023-02259-4The quality of German - language patient decision aids for oncological patients on the internetJulia Möller0Lena Josfeld1Christian Keinki2Nathalie Zieglowski3Jens Büntzel4Jutta Hübner5Klinik für Innere Medizin II Hämatologie und Internistische Onkologie, Universitätsklinikum JenaKlinik für Innere Medizin II Hämatologie und Internistische Onkologie, Universitätsklinikum JenaKlinik für Innere Medizin II Hämatologie und Internistische Onkologie, Universitätsklinikum JenaKlinik für Innere Medizin II Hämatologie und Internistische Onkologie, Universitätsklinikum JenaKlinik für HNO-Erkrankungen Kopf-Hals-Chirurgie, Interdisziplinäre Palliativstation Südharz Klinikum NordhausenKlinik für Innere Medizin II Hämatologie und Internistische Onkologie, Universitätsklinikum JenaAbstract Background Previous studies have already shown that decision aids are a suitable tool for patient decision-making. The aim of this work is to conduct an online search for freely available, German-language patient decision aids (PDAs) for cancer patients, followed by an assessment of their quality. For this purpose, a rating tool that is as manageable as possible was developed on the basis of already existing quality criteria. Methods A simulated patient online search was conducted via the four most frequently used search engines in Germany. A quality assessment tool was created utilizing international and national guidelines, with a focus on practicality and manageability. Subsequently, the identified PDAs were rated by 4 raters based on the rating tool. Results The number of German-language oncology PDAs is low (n = 22 of 200 URLs) with limited variability regarding rare cancers. Most originate from non-profit organizations. The overall quality is low, as indicated by an average of 57.52% of the maximum evaluation points of the developed quality assessment tool. Reference values used to assess quality were related to e.g. support/effectiveness, adaptation, layout, etc. No qualitative differences were found regarding different publishers. Quality differed between PDAs of different length, with longer PDAs achieving better results. Conclusion Overall, the supply and quality of German-language PDAs is not satisfactory. The assessment tool created in this study provides a solid, but more manageable basis, for developing and identifying high-quality PDAs. Practice implications PDAs should be increasingly used by physicians in practice. For this, a quick qualitative assessment of PDAs in everyday life must be possible. Future research has to investigate especially the aspect of the length of a PDA in more detail.https://doi.org/10.1186/s12911-023-02259-4Patient decision aidsPatient informationShared-decision-makingDecision-making processTherapy decisionMedical screening |
| spellingShingle | Julia Möller Lena Josfeld Christian Keinki Nathalie Zieglowski Jens Büntzel Jutta Hübner The quality of German - language patient decision aids for oncological patients on the internet BMC Medical Informatics and Decision Making Patient decision aids Patient information Shared-decision-making Decision-making process Therapy decision Medical screening |
| title | The quality of German - language patient decision aids for oncological patients on the internet |
| title_full | The quality of German - language patient decision aids for oncological patients on the internet |
| title_fullStr | The quality of German - language patient decision aids for oncological patients on the internet |
| title_full_unstemmed | The quality of German - language patient decision aids for oncological patients on the internet |
| title_short | The quality of German - language patient decision aids for oncological patients on the internet |
| title_sort | quality of german language patient decision aids for oncological patients on the internet |
| topic | Patient decision aids Patient information Shared-decision-making Decision-making process Therapy decision Medical screening |
| url | https://doi.org/10.1186/s12911-023-02259-4 |
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