Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study
<p><strong>Introduction: </strong>Polycystic ovary syndrome (PCOS) has a negative impact on the health-related quality of life (HRQoL) of affected women. There are no studies conducted on HRQoL of women with PCOS in Sri Lanka, partly due to non-availability of a disease-specific va...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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College of Community Physicians of Sri Lanka
2021-09-01
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| Series: | Journal of the College of Community Physicians |
| Subjects: | |
| Online Access: | https://jccpsl.sljol.info/articles/8335 |
| Summary: | <p><strong>Introduction: </strong>Polycystic ovary syndrome (PCOS) has a negative impact on the health-related quality of life (HRQoL) of affected women. There are no studies conducted on HRQoL of women with PCOS in Sri Lanka, partly due to non-availability of a disease-specific validated tool.</p><p><strong> </strong></p><p><strong>Objectives: </strong>To translate and evaluate the validity and reliability of the modified polycystic ovary syndrome health-related quality of life questionnaire (M - PCOSQ) among Sri Lankan women with PCOS</p><p><strong> </strong></p><p><strong>Methods: </strong>The M-PCOSQ was translated into Sinhala language and content and consensual validity was assessed using modified Delphi process. The Short Form Health Survey (SF-36) Sinhala version and translated M-PCOSQ were completed by 94 participants attending three different clinics at a maternity hospital in Sri Lanka. Convergent validity was measured using SF-36 while divergent validity was not measured due to the absence of a suitable tool. Ethical issues were adequately addressed. Retest was done in 10% of the sample two weeks later.</p><p><strong> </strong></p><p><strong>Results: </strong>With the modified Delphi process, items 4, 10 and 27 of M-PCOSQ Sinhala version were stated as positive statements and scoring changed accordingly. The mean age of the sample was 27.13 years and the majority (77.1% had no children). All six domains of M-PCOSQ had high intra-class correlation coefficients ranging from 0.97 to 0.99 demonstrating excellent test-retest reliability. Cronbach's alpha was 0.67 or more for four of the six domains indicating satisfactory internal consistency. Construct validity was observed by the high correlation between emotion subscale of M-PCOSQ and emotional well-being scale of SF-36 (r=0.63; p<0.01).</p><p><strong> </strong></p><strong>Conclusions and Recommendations: </strong>M-PCOSQ-Sinhala version is a valid and reliable tool to measure HRQoL of PCOS women. |
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| ISSN: | 1391-3174 2579-1451 |