Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study

<p><strong>Introduction: </strong>Polycystic ovary syndrome (PCOS) has a negative impact on the health-related quality of life (HRQoL) of affected women. There are no studies conducted on HRQoL of women with PCOS in Sri Lanka, partly due to non-availability of a disease-specific va...

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Main Authors: Buddhika Achini Ranasinghe, Aindralal Balasuriya, Chandrika N. Wijeyaratne, Neil Fernando
Format: Article
Language:English
Published: College of Community Physicians of Sri Lanka 2021-09-01
Series:Journal of the College of Community Physicians
Subjects:
Online Access:https://jccpsl.sljol.info/articles/8335
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author Buddhika Achini Ranasinghe
Aindralal Balasuriya
Chandrika N. Wijeyaratne
Neil Fernando
author_facet Buddhika Achini Ranasinghe
Aindralal Balasuriya
Chandrika N. Wijeyaratne
Neil Fernando
author_sort Buddhika Achini Ranasinghe
collection DOAJ
description <p><strong>Introduction: </strong>Polycystic ovary syndrome (PCOS) has a negative impact on the health-related quality of life (HRQoL) of affected women. There are no studies conducted on HRQoL of women with PCOS in Sri Lanka, partly due to non-availability of a disease-specific validated tool.</p><p><strong> </strong></p><p><strong>Objectives: </strong>To translate and evaluate the validity and reliability of the modified polycystic ovary syndrome health-related quality of life questionnaire (M - PCOSQ) among Sri Lankan women with PCOS</p><p><strong> </strong></p><p><strong>Methods: </strong>The M-PCOSQ was translated into Sinhala language and content and consensual validity was assessed using modified Delphi process. The Short Form Health Survey (SF-36) Sinhala version and translated M-PCOSQ were completed by 94 participants attending three different clinics at a maternity hospital in Sri Lanka. Convergent validity was measured using SF-36 while divergent validity was not measured due to the absence of a suitable tool. Ethical issues were adequately addressed. Retest was done in 10% of the sample two weeks later.</p><p><strong> </strong></p><p><strong>Results: </strong>With the modified Delphi process, items 4, 10 and 27 of M-PCOSQ Sinhala version were stated as positive statements and scoring changed accordingly. The mean age of the sample was 27.13 years and the majority (77.1% had no children). All six domains of M-PCOSQ had high intra-class correlation coefficients ranging from 0.97 to 0.99 demonstrating excellent test-retest reliability. Cronbach's alpha was 0.67 or more for four of the six domains indicating satisfactory internal consistency. Construct validity was observed by the high correlation between emotion subscale of M-PCOSQ and emotional well-being scale of SF-36 (r=0.63; p&lt;0.01).</p><p><strong> </strong></p><strong>Conclusions and Recommendations: </strong>M-PCOSQ-Sinhala version is a valid and reliable tool to measure HRQoL of PCOS women.
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spelling doaj.art-7ae26e52fee74e12a4e23b675f0e83a12022-12-22T02:08:48ZengCollege of Community Physicians of Sri LankaJournal of the College of Community Physicians1391-31742579-14512021-09-0127235035910.4038/jccpsl.v27i2.83355973Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation StudyBuddhika Achini Ranasinghe0Aindralal Balasuriya1Chandrika N. Wijeyaratne2Neil Fernando3General Sri John Kotelawala Defence UniversityGeneral Sri John Kotelawala Defence UniversityUniversity of ColomboGeneral Sri John Kotelawala Defence University<p><strong>Introduction: </strong>Polycystic ovary syndrome (PCOS) has a negative impact on the health-related quality of life (HRQoL) of affected women. There are no studies conducted on HRQoL of women with PCOS in Sri Lanka, partly due to non-availability of a disease-specific validated tool.</p><p><strong> </strong></p><p><strong>Objectives: </strong>To translate and evaluate the validity and reliability of the modified polycystic ovary syndrome health-related quality of life questionnaire (M - PCOSQ) among Sri Lankan women with PCOS</p><p><strong> </strong></p><p><strong>Methods: </strong>The M-PCOSQ was translated into Sinhala language and content and consensual validity was assessed using modified Delphi process. The Short Form Health Survey (SF-36) Sinhala version and translated M-PCOSQ were completed by 94 participants attending three different clinics at a maternity hospital in Sri Lanka. Convergent validity was measured using SF-36 while divergent validity was not measured due to the absence of a suitable tool. Ethical issues were adequately addressed. Retest was done in 10% of the sample two weeks later.</p><p><strong> </strong></p><p><strong>Results: </strong>With the modified Delphi process, items 4, 10 and 27 of M-PCOSQ Sinhala version were stated as positive statements and scoring changed accordingly. The mean age of the sample was 27.13 years and the majority (77.1% had no children). All six domains of M-PCOSQ had high intra-class correlation coefficients ranging from 0.97 to 0.99 demonstrating excellent test-retest reliability. Cronbach's alpha was 0.67 or more for four of the six domains indicating satisfactory internal consistency. Construct validity was observed by the high correlation between emotion subscale of M-PCOSQ and emotional well-being scale of SF-36 (r=0.63; p&lt;0.01).</p><p><strong> </strong></p><strong>Conclusions and Recommendations: </strong>M-PCOSQ-Sinhala version is a valid and reliable tool to measure HRQoL of PCOS women.https://jccpsl.sljol.info/articles/8335health-related quality of life, m-pcosq, reliability, sri lanka, validity
spellingShingle Buddhika Achini Ranasinghe
Aindralal Balasuriya
Chandrika N. Wijeyaratne
Neil Fernando
Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study
Journal of the College of Community Physicians
health-related quality of life, m-pcosq, reliability, sri lanka, validity
title Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study
title_full Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study
title_fullStr Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study
title_full_unstemmed Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study
title_short Health-Related Quality of Life Questionnaire for Women with Polycystic Ovary Syndrome: A Sinhala Translation and Validation Study
title_sort health related quality of life questionnaire for women with polycystic ovary syndrome a sinhala translation and validation study
topic health-related quality of life, m-pcosq, reliability, sri lanka, validity
url https://jccpsl.sljol.info/articles/8335
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