An experience of practitioners navigating the role of patient/caregiver
This journey involved one of us having (repeat) intraspinal surgery in a country far from home but of a similar culture and with the same first language. The carer travelled across the world to be present during the hospital stay. We kept a journal during our admission, and following discharge reali...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
The Beryl Institute
2017-04-01
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| Series: | Patient Experience Journal |
| Subjects: | |
| Online Access: | https://pxjournal.org/journal/vol4/iss1/17 |
| _version_ | 1798033245250519040 |
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| author | Susan Shaw Rain Lamdin |
| author_facet | Susan Shaw Rain Lamdin |
| author_sort | Susan Shaw |
| collection | DOAJ |
| description | This journey involved one of us having (repeat) intraspinal surgery in a country far from home but of a similar culture and with the same first language. The carer travelled across the world to be present during the hospital stay. We kept a journal during our admission, and following discharge realised there were significant differences between how we had documented our experience and the record presented in the clinical notes. The particular examples we present illustrate the relationships, rules and issues that we navigated. We share our experience in the form of moments from our journal, some of them alongside information recorded in the clinical notes for the corresponding timeframe. This provides insights into differing narratives between the experiences of the patient/caregiver and practitioners. We recommend that individual practitioners and organisations consider the lived experience of patients and how they consciously engage with patients/carers to address the risk of ‘othering’. |
| first_indexed | 2024-04-11T20:27:13Z |
| format | Article |
| id | doaj.art-7b0e2b2f4c8b44dc95f0bb9aa06b8971 |
| institution | Directory Open Access Journal |
| issn | 2372-0247 |
| language | English |
| last_indexed | 2024-04-11T20:27:13Z |
| publishDate | 2017-04-01 |
| publisher | The Beryl Institute |
| record_format | Article |
| series | Patient Experience Journal |
| spelling | doaj.art-7b0e2b2f4c8b44dc95f0bb9aa06b89712022-12-22T04:04:38ZengThe Beryl InstitutePatient Experience Journal2372-02472017-04-01An experience of practitioners navigating the role of patient/caregiverSusan ShawRain LamdinThis journey involved one of us having (repeat) intraspinal surgery in a country far from home but of a similar culture and with the same first language. The carer travelled across the world to be present during the hospital stay. We kept a journal during our admission, and following discharge realised there were significant differences between how we had documented our experience and the record presented in the clinical notes. The particular examples we present illustrate the relationships, rules and issues that we navigated. We share our experience in the form of moments from our journal, some of them alongside information recorded in the clinical notes for the corresponding timeframe. This provides insights into differing narratives between the experiences of the patient/caregiver and practitioners. We recommend that individual practitioners and organisations consider the lived experience of patients and how they consciously engage with patients/carers to address the risk of ‘othering’.https://pxjournal.org/journal/vol4/iss1/17patient experiencepatient-centered care patient engagementpatient- and family- centered carequality of carecommunication |
| spellingShingle | Susan Shaw Rain Lamdin An experience of practitioners navigating the role of patient/caregiver Patient Experience Journal patient experience patient-centered care patient engagement patient- and family- centered care quality of care communication |
| title | An experience of practitioners navigating the role of patient/caregiver |
| title_full | An experience of practitioners navigating the role of patient/caregiver |
| title_fullStr | An experience of practitioners navigating the role of patient/caregiver |
| title_full_unstemmed | An experience of practitioners navigating the role of patient/caregiver |
| title_short | An experience of practitioners navigating the role of patient/caregiver |
| title_sort | experience of practitioners navigating the role of patient caregiver |
| topic | patient experience patient-centered care patient engagement patient- and family- centered care quality of care communication |
| url | https://pxjournal.org/journal/vol4/iss1/17 |
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