Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 1...
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| Format: | Article |
| Language: | English |
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Universidad de Antioquia
2021-06-01
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| Series: | Investigación y Educación en Enfermería |
| Subjects: | |
| Online Access: | https://revistas.udea.edu.co/index.php/iee/article/view/346566 |
| _version_ | 1797427210139729920 |
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| author | Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres |
| author_facet | Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres |
| author_sort | Joice Soares Campos |
| collection | DOAJ |
| description | Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases.
Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context.
Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles.
Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs. |
| first_indexed | 2024-03-09T08:40:57Z |
| format | Article |
| id | doaj.art-7b23d2e5d9894dafa54499d0287beb01 |
| institution | Directory Open Access Journal |
| issn | 2216-0280 |
| language | English |
| last_indexed | 2024-03-09T08:40:57Z |
| publishDate | 2021-06-01 |
| publisher | Universidad de Antioquia |
| record_format | Article |
| series | Investigación y Educación en Enfermería |
| spelling | doaj.art-7b23d2e5d9894dafa54499d0287beb012023-12-02T16:44:48ZengUniversidad de AntioquiaInvestigación y Educación en Enfermería2216-02802021-06-0139210.17533/udea.iee.v39n2e0943505Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseasesJoice Soares Campos0Anna Cláudia Yokoyama dos Anjos1Sebastião Benício da Costa Neto2Rodrigo Sanches Peres3Health Department of AraguariFederal University of UberlândiaUniversity of GoiásFederal University of UberlândiaObjective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context. Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles. Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.https://revistas.udea.edu.co/index.php/iee/article/view/346566caregivershome nursingagedfamily healthqualitative research |
| spellingShingle | Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases Investigación y Educación en Enfermería caregivers home nursing aged family health qualitative research |
| title | Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases |
| title_full | Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases |
| title_fullStr | Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases |
| title_full_unstemmed | Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases |
| title_short | Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases |
| title_sort | grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases |
| topic | caregivers home nursing aged family health qualitative research |
| url | https://revistas.udea.edu.co/index.php/iee/article/view/346566 |
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