Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper adds
Background: Transition for young people with intellectual disabilities from paediatric or adolescent services into adult health care services remains a difficult process for all stakeholders. The study assessed the type of interventions, the methodological approaches, study designs and location of e...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2019-11-01
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| Series: | Heliyon |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2405844019364102 |
| _version_ | 1818408524373295104 |
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| author | Axel Kaehne Joann Kiernan James Ridley |
| author_facet | Axel Kaehne Joann Kiernan James Ridley |
| author_sort | Axel Kaehne |
| collection | DOAJ |
| description | Background: Transition for young people with intellectual disabilities from paediatric or adolescent services into adult health care services remains a difficult process for all stakeholders. The study assessed the type of interventions, the methodological approaches, study designs and location of existing published evidence in health care transitions. Methods: A systematic review utilising the PRISMA protocol with an amended quality appraisal tool to explore the nature of published evidence on health care transitions for young people. Results: Findings demonstrate that health transition research for this population lacks a robust evidence base and researchers favour exploratory studies investigating the experiential dimension of transition. The lack of involvement of young people in the studies indicates a problematic absence of genuinely participatory research. Conclusion: The study is the first systematic review of empirical studies in health transition of young people with intellectual disabilities exploring the nature of existing evidence. The results will support setting priorities for future research. |
| first_indexed | 2024-12-14T09:45:06Z |
| format | Article |
| id | doaj.art-7c6f71e05b8f40ae8c060baf0047d42e |
| institution | Directory Open Access Journal |
| issn | 2405-8440 |
| language | English |
| last_indexed | 2024-12-14T09:45:06Z |
| publishDate | 2019-11-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Heliyon |
| spelling | doaj.art-7c6f71e05b8f40ae8c060baf0047d42e2022-12-21T23:07:39ZengElsevierHeliyon2405-84402019-11-01511e02750Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper addsAxel Kaehne0Joann Kiernan1James Ridley2Corresponding author.; Faculty of Health, Social Care and Medicine, Edge Hill University, Ormskirk, United KingdomFaculty of Health, Social Care and Medicine, Edge Hill University, Ormskirk, United KingdomFaculty of Health, Social Care and Medicine, Edge Hill University, Ormskirk, United KingdomBackground: Transition for young people with intellectual disabilities from paediatric or adolescent services into adult health care services remains a difficult process for all stakeholders. The study assessed the type of interventions, the methodological approaches, study designs and location of existing published evidence in health care transitions. Methods: A systematic review utilising the PRISMA protocol with an amended quality appraisal tool to explore the nature of published evidence on health care transitions for young people. Results: Findings demonstrate that health transition research for this population lacks a robust evidence base and researchers favour exploratory studies investigating the experiential dimension of transition. The lack of involvement of young people in the studies indicates a problematic absence of genuinely participatory research. Conclusion: The study is the first systematic review of empirical studies in health transition of young people with intellectual disabilities exploring the nature of existing evidence. The results will support setting priorities for future research.http://www.sciencedirect.com/science/article/pii/S2405844019364102TransitionHealth careYoung peopleIntellectual disabilitiesDevelopmental disabilitiesPaediatric services |
| spellingShingle | Axel Kaehne Joann Kiernan James Ridley Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper adds Heliyon Transition Health care Young people Intellectual disabilities Developmental disabilities Paediatric services |
| title | Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper adds |
| title_full | Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper adds |
| title_fullStr | Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper adds |
| title_full_unstemmed | Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper adds |
| title_short | Systematic review of study designs and methods in health transition research for young people with intellectual disabilitiesWhat this paper adds |
| title_sort | systematic review of study designs and methods in health transition research for young people with intellectual disabilitieswhat this paper adds |
| topic | Transition Health care Young people Intellectual disabilities Developmental disabilities Paediatric services |
| url | http://www.sciencedirect.com/science/article/pii/S2405844019364102 |
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